Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 01-19-2008, 01:43 PM #1
momzpeachy momzpeachy is offline
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Join Date: Feb 2007
Location: NE PA
Posts: 150
15 yr Member
momzpeachy momzpeachy is offline
Member
 
Join Date: Feb 2007
Location: NE PA
Posts: 150
15 yr Member
Default Home from hospital

Hi everyone

I made it home okay and I'm trying out my voice software. This is pretty cool but doesn't really work all that well. My hospital stay was miserable and I will have to tell you all about that at a later date. I did get a private room but not at first and wait to you hear that story. They were in a hurry to get me out of the hospital but yet it took forever to get discharge. I came home Wednesday afternoon after finally getting my medication straightened out. Thank goodness my husband and was there to yell at the nurses and help me with everything. He was a big help to me the whole time.

I am one a pretty strong medication called dilaudid. This stuff works pretty well. I have been taking it every two to three hours and ibuprofen 400 mg every four to five hours. But I still have some pain but the doctor said that his normal. My pain is that of level 3 to four and I don't let it go above 5.

I can't use my right arm at all and I have instructions not to do anything until I see this surge in again in five weeks. I am not allowed to lift my arm above the shoulder level or lift anything at all I feel pretty drugged up and in and out of sleep all day. I am not eating very much and I am still having trouble swallowing nobody told me how difficult it would be to swallow. I am having more trouble than yesterday. I feel like I swallowed a frog. I don't have much of an appetite who and I feel like I have a giant lump in my throat. Yesterday I was talking and standing and almost fell over after a few minutes. I can't be on my feet very long or talk very long. I knew I would have pain but never imagined how hard this was going to be. I have a long road ahead of me. At least the surgeon found the problem and feels that the surgery will be a success. I have already noticed a difference with my vision and hearing my right eye was affected greatly. My ear has been ringing and I have been getting the shocks down my own arm. I feel as though I am getting shock therapy. The doctor has said my nerves will take some time to recover from all of this. The surgeon said my nerves were really trapped with scarring and by the muscles. The whole team couldn't believe how much compression there was and how lucky I was that they could find it so easily. The surgery took three hours and I did not do well with the anesthesia. I sure hope this works because I don't want to do that ever again. The surgeon is concerned about my left side as well. I am not sure what my future holds but I have very long recovery time and have to be very careful. We think that the injections I had caused most of the scarring. The whole hospital staff was interested in my case. They don't see too many of these surgeries and conditions had lots of questions for me. I guess I was a rarer breed but they did take good care of me(well at least the surgeon's team did) I will send another update next week. I need to go rest. Thank you for all your support and concerns.

Momz
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momz of NE PA:
Right side TOS (Scalenectomy 1-14-08). Spinal problems. Thoracic Spine hernaited discs pressing on spinal cord and small tumor - still being investigated. A very tired mom who feels like giving up!

Wishing I could think more positive and be well again!
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astern (01-20-2008), Jomar (01-19-2008)
 


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