Hi guys,

I've been reading the numerous posts and replies here and have joined in now in hopes that perhaps some of you can give me some help/advice. I have had symptoms of TOS for approximately 20 years. As I'm sure that many of you have experienced, you really go through the ringer with this, as most physicians don't know about this. As such, I have been treated for severe headaches, been through several boughts of PT, have had acupuncture, massage therapy, cortisone injections, some "investigative" treatments (some of which were quite painful - none of which worked), etc., etc. Recently I went to an orthopedist who specializes in shoulder injuries as I've been losing significant ROM lately. He felt I have brachial plexopathy/TOS but told me that there really isn't a way to diagnose this or really treat it. I've heard this kind of stuff before ... I call them "god" diagnoses as they provide an explanation with no ability to be proven or disproven ... kind of like fibromyalgia and chronic fatigue syndrome. Mostly I think these are garbage because it really feels like the doc just wants you out of their office. Anyway ... sorry to be so cynical ... but this has been going on too long! What I am hoping that I can find here are some experienced TOS sufferers who have had good experiences with physicians/treatments as 1. I would like to have some hope and 2. if you know of anyone in the Philadelphia or NJ area (do not want to go to Hopkins) who you felt was able to adequately diagnose and treat you could you please provide me with that information? I would greatly appreciate it.

Also, in a previous search I found a small group (n=3) of docs at UMDNJ who appeared to specialize in TOS. For some crazy, crazy reason I can't seem to locate that page! If anyone knows about these guys, could you give me a shout? They sounded like they might be worth the trip up. Thanks in advance for any help you can give!