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-   -   not doing well (https://www.neurotalk.org/thoracic-outlet-syndrome/39584-doing.html)

dabbo 03-01-2008 09:47 PM

Momz- i'm sorry to read about the troubles you've been having. I hope that your recovery improves, and that you start to feel better. I'm sorry about the hubby too... us men can be difficult at times. I have trouble just walking away from a "debate." I think that Trix made a good point that the injury is family-wide; at least for me tho, the problem is how do you deal with that? How do you get your family members to a better level of understanding?

Peg24 03-02-2008 08:00 PM

Rest
 
Momz,

I'm not remembering exactly when you had your surgery, but when I had mine the doctor told me that is could be up to 9 months recovery.

Another words, he was saying he didn't want to hear that pain was still there until after 9 months and then we could say if the surgery worked or didn't.

He was so right. Nine months to a year.....and what a difference.

After that surgery, it is rough. There were many times that I felt, it just didn't work, but in time it did get better.

Keep your chin up and rest as much as you can.

Peggy

Steve M 09-16-2009 10:05 PM

Shoulder Nerve Pain
 
Quote:

Originally Posted by momzpeachy (Post 220421)
Hi everyone

I just wanted to post a short message letting you know how my post op time is going.

The last few days have been miserable and I am so tired of pain that I can't stand it anymore. I got so mad the other day that I started kicking things, crying and screaming. I just can't take it anymore. Even with all the medication I'm on I still have pain and it's worse than it was before the surgery. I can only talk for a little while before I have so much pain that I can't move. The whole area around my incision is sore and I can't even touch it. I have constant aching around the shoulder in the back of my head. I get headaches from hell and they just don't stop. It's at the base of my head where it starts and all around my neck just flares up in pain. I would like to detach my head if I could. It hurts so bad that I can not open my eyes or move. I try to massage the area and when pressing in certain areas it actually helps it go away. I am still getting excruciating nerve pain that is in the neck and shoulder along with numbness on the surface of my chest and neck. It is the craziest feeling. I can't feel my fingers when I touched the area but yet the pain is just unbearable. I honestly don't know what happened! I cannot move my arm if I try to use it in any light motion to pain shoots right up to my neck. I still in dealing with the cold hand in color changes but it's worse than before surgery.

I have really bad sharp pain in the right side shoulder blade. That seems to be where a lot of my pain coming from because anytime I moved my armoh my it hurts. It's where if you go from your shoulder and go down into your back its right where you're arm and shoulder kind of connect. It's hard to describe but it's basically been in my back below the shoulder just touching that area is so darn painful . Can anyone tell me why that area would hurt so bad. It hurt before the surgery and always felt like knotted muscles there but even massages didn't do anything. The pain is just so bad and it moves into my shoulder so I wonder was something missed? He said he freed up all my nerves. I got a copy of the operative report stating that all four nerve roots were encased in scar tissue and also the scaling muscles do not look so The one muscle had atrophy and he removed to scaling muscles that were pressing down on the nerves. He told me at the hospital that he felt I would have a good outcome but what the heck?

I still have all the same pain I had before and new pain that is 10 times worse! I totally regret having the surgery now and I'm so upset. I don't know if there is something else that is causing the problem. I did make one boo-boo the other day. My husband and I got in a fight and I got really ****** off and took my rings off then threw them (with my right hand of course) which was totally stupid But I wasn't thinking. I just took it and threw it and boy did I have pain. It was a shock instantly right to my neck. After that my kids and I went for a walk but I felt pain the whole night. So I am also worried that by doing something stupid cause damage somewhere. Something is wrong because I shouldn't be in so much pain. Everyone else sees it because I'm all hunched over and just can't move.

I see the surgeon tomorrow and also my pain management doctor. The meds just don't even seem to be working anymore so now what? I'd like to detach my arm and head. I think that's the only solution at this point.

Sorry for all the depressing news but I hope everyone has a great day

Momz

You are describing the same kind of pain I experienced from a Suprascapular Nerve Entrapment. This is rare but unbelieveably painful. I had this injury and the pain was 500 on a scale of 1-10! If everything else has been ruled out, have your doctor look into this. My EMG's were negative and my surgeon at Hopkin's termed the surgery "speculative" but he freed the nerve and I was able to start rebuilding my life. If left untreated, this becomes a monster that can destroy your life, it nearly did mine!!!

Find a neurologist familiar with this and pursue it. Mine literally blew the dust off a manual and located my symptoms, that's how rare it is, but if you have it, it's nothing to play with. Get it checked.

freeflying 09-17-2009 10:31 AM

dads point
 
i am a guy been hurt for 17 years my wife of 20 years got hurt when she was in the canadian military in bosnia herniated disk 7 years ago. men want to fix things women want to talk about things .. i have been a stay home dad all these years . it is more painfull to see my wife hurting and not be able to fix it than the pain i am in .. i would take her pain not because i would be a good guy .it is just so much easyer to be in pain than to see someone you love in that condition ... how my wife has been able to stay with me, when doctors could not figger out what was wrong, sometimes i just want to get off the pain train, so i look at my wife and 4 kids and think if she gets worse who would look after them .it is nice in a way to know that i am not the only one who feels this way sometimes thank you .

saramk 09-25-2009 08:00 PM

I am so sorry:(
 
It is so very hard to be in so much pain. I have had TOS for almost two years and they are looking at doing another surgery as a last option. My doctor is from Denver and he says this is the last thing he thinks that could maybe help me:( After that its pain management and disability he says. I am only 23 now and the pain is always terrible. I am in nursing school and fighting my way through. Just don't give up on yourself or your doctors. I really think that they try to help us, its just as hard on them as it is on us, they don't want to see us suffer and I believe they want to help. Best of luck to you when you see your doctor.


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