Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 03-15-2008, 02:54 PM #1
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DiMarie DiMarie is offline
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Exclamation Wilkes Barre PA support meeting Dr T April 2008

Hi friends,
Emily left a message that Dr, Togut would like to get us together again for support and informational meeting.
I work Some Wed.,Thur, Fri, I think doctor visits family on Monday Fridays.
Do you think a Tuesday would work? Maybe 600PM
Maybe the First Tuesay next month, April? With the Last Tuesday as a back up. I can pass along the dates options.

I really would like Dr Togut to put together a set of DVD's on TOS and have contacted a person that makes these. So am gathering input for his thoughts and our needs.

Create an outline I guess we can add to.
Example
DVD 1 TOS the Diagnosis
Symptoms- test avaiable- how important to understand the history of symptoms and injury
What test do we need, what do they mean?
When is surgery indicated
What can we gain from surgery, and what is surgery


DVD 2 TOS Accomadating Life with TOS and options in treatment
Medication options,
Keeping range of motion
Reducing symptoms/Flares
Understanding the long term effects
Family support and understanding of a member with TOS
Working with TOS

As a long Time Father of TOS Mark Jordan shared with us, you can control TOS or it will control you.
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astern (03-16-2008), Dolfinz (03-16-2008), mucker (03-15-2008)
Old 03-15-2008, 04:26 PM #2
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Di...sounds like a great idea. Please post the info once you know. I am definately interested. Thanks.
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Old 03-15-2008, 09:08 PM #3
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Great idea! I would love a set of TOS videos from Dr. T. I have a friend in the movie business. Perhaps I can find out if he knows anyone who makes DVD's (assuming Dr.T is interested in doind it).
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Old 03-15-2008, 09:18 PM #4
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That sounds like a great idea and for a real toser to be in it and talk about the range of symptoms because from the information out they sure don't talk about the real symptoms that we go through i really think that is important because for a long time i thought there was something else wrong till i found this sight and found out that there where many who had the same systems as i did but were no where in the articles.
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Old 03-16-2008, 07:29 AM #5
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I might be able to attend if it's first week in april, tuesday or wednesday. It's a long drive from atl.

would LOVE to be there!
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Old 03-16-2008, 10:13 AM #6
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What a great thing ! I would love to attend ( I live in Mass. ) but I think too much driving right now. But I would definitely be interested also in the tapes !

What a great idea and gathering !

Dolfinz
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Old 03-21-2008, 05:29 PM #7
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Quote:
Originally Posted by DiMarie View Post
Hi friends,
Emily left a message that Dr, Togut would like to get us together again for support and informational meeting.
I work Some Wed.,Thur, Fri, I think doctor visits family on Monday Fridays.
Do you think a Tuesday would work? Maybe 600PM
Maybe the First Tuesay next month, April? With the Last Tuesday as a back up. I can pass along the dates options.

I really would like Dr Togut to put together a set of DVD's on TOS and have contacted a person that makes these. So am gathering input for his thoughts and our needs.

Create an outline I guess we can add to.
Example
DVD 1 TOS the Diagnosis
Symptoms- test avaiable- how important to understand the history of symptoms and injury
What test do we need, what do they mean?
When is surgery indicated
What can we gain from surgery, and what is surgery


DVD 2 TOS Accomadating Life with TOS and options in treatment
Medication options,
Keeping range of motion
Reducing symptoms/Flares
Understanding the long term effects
Family support and understanding of a member with TOS
Working with TOS

As a long Time Father of TOS Mark Jordan shared with us, you can control TOS or it will control you.
If a DVD becomes available, I would love to have a copy!
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