Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 09-03-2006, 07:52 PM #1
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Default has anyone heard from any others??

I know I'll not get all the names but some that come to mind are-

corvettemom
lady parrot
gibbrn
butterfly123
jennyhurts
periwinkle
gypsymom2go
just a partial list - got chicken
on the BBQ
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Old 09-03-2006, 10:21 PM #2
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Good post sweetie.

I have been so sick, I didn't do a big email yet.

I will.

Also, someone named "Marla" called today when I was so sick - and I think maybe I was rude, but anyways, she said, "it's Marla" and then hung up. If Marla sees this, I apologize - you caught me asleep - feel free to call again.

I'm really batting a thousand these days...feeling such high pain...
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Old 09-04-2006, 07:50 AM #3
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Hi all who still remember me,

it is a long long time that I haven't been here......
The life goes on without surgery. It isn't hard like it used to be, put I'm not painless neither. Some days I feel more pain, some days less, it depends mostly from the computer use! Mostly my problems are scalenes, pronator, ear an eye pain... I'm got so used to the loss of fine hand ability and those hand pains. I had before summer some carpal symptoms, but they went away for the moment. My neurologist said that with hormonal changes it could come back, yep, I know.
In my case, she doesn't really even recommand botox in scalenes or traps.... there are too many risks to develop more nasty things, yep, I know.
My life is bearable with my pain levels however.
But, I'm more and more tired! Maybe the age

I wish you all the most painless day than possible........

healing hugs
Merja


PS. I will try to find time to lurk how all you are going in these days, and some after their surgeries.......
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terrible TOS pain from 2000 to 2003 then little by little the inflammation in plexus went away...
right-sided TOS from 2000
bilateral TOS from 2002
lost fine hand abilities, still pains, mostly scalenes, pronator etc.
bilateral pudendal nerve entrapment too, from 2001
no surgery and the life goes on...
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Old 09-04-2006, 08:46 AM #4
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Default Bonjour merja,

what a nice surprise to see you here again!!!

This summer I thought a lot of you because I spent my summer holidays in a scandinavian country...brrrr cold....but marvellous!

I am very happy to read again from you and I wish you a good day in Paris!
Barbara
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Old 09-04-2006, 01:51 PM #5
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Barbara,

I don't know where in Scandinavia you were (in Island?), but in Finland we had +30°C in the shadow all our six weeks of holidays, and it continued still after!
The water in the enormous lake Saimaa was so so down that we had it hard to believe, and it has gone more and more down since......

I have been thinking about many of you here, but once you start to post here again, you can't be without posting any more and lurking, it takes time...... and for the TOS:ers it's not the top of the top to be in the front of their screens.......
So, I needed to take a break.........
I still continue also my cat shelter volunteering as well, and have been posting on cat Forum, because another girl was on holiday, thank God she is back today!

I have been away also because I think I know enough, and don't necessary want to know more about TOS than I already know.... I know the surgery is not my choice for the moment, who ever knows if it will be at one day. Not only TOS-surgery, but even any kind of surgery, unless really really necessary is to be banned after my neurologist..... I'm not even up to date to my vaccins.... Yes, I know it sounds quite crazy, but is my choice for the momen, and my neurologist do understand and agree.
I try to live as normally as I can, and I know I can do much more things that many out of here....... TOS comes on every doses. My luckiness was that I only had 3 horribles years, not more.....
I continue to create some word games, and in the same time I try to find a normal job, but it isn't easy at my age, and after such a "different" job.
Let's see......

healing hugs to all of you!
merja
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terrible TOS pain from 2000 to 2003 then little by little the inflammation in plexus went away...
right-sided TOS from 2000
bilateral TOS from 2002
lost fine hand abilities, still pains, mostly scalenes, pronator etc.
bilateral pudendal nerve entrapment too, from 2001
no surgery and the life goes on...
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Old 09-04-2006, 03:44 PM #6
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Hi Merja!

It was so nice to see you posting here- and to hear that you're doing OK and still working with the cats. I'll hope you come back here more often when you feel like it.
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Old 09-04-2006, 04:17 PM #7
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HI Debbie (do I remember right your name?)

how are you actually?
I see many old ones (members I want to say, not old in age ) are still here.... I would like to hear that some are better than they used to be... but is there any case?

Have to sleep now (it's 11.20 Pm here)

healing hugs
merja
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terrible TOS pain from 2000 to 2003 then little by little the inflammation in plexus went away...
right-sided TOS from 2000
bilateral TOS from 2002
lost fine hand abilities, still pains, mostly scalenes, pronator etc.
bilateral pudendal nerve entrapment too, from 2001
no surgery and the life goes on...
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Old 09-05-2006, 04:57 AM #8
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Hi Merja,
yes, indeed I have been to Iceland this summer: 12°C when we arrived (this was 23°C less than we had in Austria when we left) - that`s why I said brrr...cold.

Greetings
Barbara
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Old 09-18-2006, 07:12 PM #9
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Default hi y'all

good 2 hear from y'all, took me a while to find this site again.

been real busy w/ overtime etc. been going through some health challenges with my blood pressure & blood thinners. had another workman's comp injury but it wasn't too bad. it may have even knocked my ribs more back into place. lol.

was real determined to exercise more & lose weight, but my knees said no no no no no, so now i am in gimp mode. wonder if my meds are affecting my muscular health or if i just overdid.

been going monthly for rib adjustments. seems like all that does is keep it from getting worse, but i guess that's something.

hit the big 5-oh and bot a mid life chrysler. asked myself, what would scuby do?
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Old 09-19-2006, 07:14 AM #10
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Merja, nice to see you aroud again... I think we all take breaks from the computer now and again... and also bet the lurkers will always be about, just may not be in shape to add what they want !!!!

MY BEST 2 U.... Mark-n-Goober
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First you forget names, then you forget faces.
Then you forget to pull up your zipper.
But it's worse when you forget to pull it down.

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