Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 03-30-2008, 11:16 PM #1
fareastY fareastY is offline
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Join Date: Nov 2006
Location: Osaka, Japan
Posts: 27
15 yr Member
fareastY fareastY is offline
Junior Member
 
Join Date: Nov 2006
Location: Osaka, Japan
Posts: 27
15 yr Member
Unhappy Bone marrow donor

Hi All,
Has anybody heard or possibly experienced being a bone marrow donor?
I was contacted by Japan Marrow Donor Program (BTW I'm in Japan) last Friday about me being selected as a possible donor.
BUT, when I called the JMDP a little while ago to let them know that I've had TOS for 9 years and occasionally used pain meds (and surgery done 8 years ago), they almost exclude me from the candidate list right away After kept explaining my current condition and all, they said, "let us discuss about it. And we'll get back to you by the end of this week".
One thing I know of is that they are afraid of worsening my numbness during taking bone marrow.

Is this a common practice in the U.S. and other countries
So far, I can't find "patients with TOS can not be registered as a donor or be a donor" clause anywhere in other donor programs in other countries.

I might be removed anyway, but something bothers me a lot.

Y
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