Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 04-16-2008, 10:03 AM #1
TraceyW TraceyW is offline
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Join Date: Apr 2008
Posts: 239
15 yr Member
TraceyW TraceyW is offline
Member
 
Join Date: Apr 2008
Posts: 239
15 yr Member
Default being diagnosed with TOS

Hello, im new to this site, just came across it whilst i was researching about MRA's.....im gonna tell you a little about my problem and would love some feedback from anyone who has experience same or similar to me...

just over 3 years ago i was healthy and never had any probs with my arms....then i fell down the stairs and landed directly on my mid back and jolting my neck too.

about 6 months after this i developed pain in my right thumb - couple of months after this started, this nagging dull pain developed in my right shoulder blade....more symptoms slowly came after this (all on the right hand side) :

little finger is wobbly and feels like it doesnt belong to me - kinda numb feeling
fatigued arm - feeling heavy
coldness in shoulder blade and right hand - sometimes this can change to hot feeling, but more often cold!
some muscle wasteage in right hand
right hand changes in colour - nail beds can go really purple if i get a bit cold
neck is weak - feel like i cant support my head
cant look downwards for anylength of time as it hurts!
cant sit up unsupported for very long
right collar bone has protuded and feels very bony these days - it aches and pain shoots up towards my the front of my neck and jaw.

the list sometimes seems endless!

i left an office job because of the pain, im on my 3rd doctor now and have had x-rays, MRI's (with and without contrast), my pulse dimished on the adsons test, tender on lower C/upper T vertebrae, also doc pushed on something next to my windpipe which almost made me cry with pain!.

from what i've read i think i may have vascular form of TOS?....help please - im finding diagnosis very difficult!
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