Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.

 
 
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Old 05-12-2008, 02:45 PM #1
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olecyn olecyn is offline
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Join Date: Aug 2006
Location: Anaheim, CA
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olecyn olecyn is offline
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Join Date: Aug 2006
Location: Anaheim, CA
Posts: 737
15 yr Member
Default Tos & The Er...for The Pros

It's been some time since I have written even though I read at times.

OK, professional TOS ladies & gents!

Why is it no paramedic nor nurse knows the severity of pain we are in?

When WE have to call 911 due to our system shutting down or the pain goes sky high ...what do you guys tell the paramedics, the nurses station, what we have? TOS isn't understood.

I have had to explain everything to them. They have put me n the psych room twice. Thursday I had to ask them to move me due to the heroine addict going crazy with 10 personnel including maybe 8 police surrounding him as he is screaming swear words. How does one try to relax the muscles in that situation. They did move me immediately.

I always have my 3 page medical history on hand for everyone to read.
The ER docs understand but it takes hours for the IV to come...

2 pushes of morphine, phenegran & ativan I'm good to go.

It's baffling and I go over and over what, how our condition should be explained more simply and to the point.

Latest update on olecyn:
CRPS is getting worse.
Have had stellate ganglion block, brachial plexus block.
Opana ER twice daily, Opana regular as needed when I function, like now.
Valium and anything else to ward off the flares of CRPS and the ER
Wednesday a scalene block.
Dr. Gelabert requests a SSEP. O **** NO, not a painful procedure under NO anesthetic. I choose not to go to the ER for another IV push due to a flare up.
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