Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 09-17-2006, 02:56 PM #11
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Congratulations! That's really great news! I hope your new PM treatment will help, too...sounds very promising. I've read some good reports about the SCS.

Happy is good!

Donna
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Old 09-17-2006, 03:31 PM #12
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I thought I posted a congratulations here for you - but it must have been during my puter problems...grrr.

OH HAPPY DAY!!
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Old 09-17-2006, 08:20 PM #13
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Thanks for the congrats and good wishes! Gromlily, I can't wait for that first airport adventure with the SCS G-Mom, so good to see you here! How are things with you?

The ketamine treatment really did work for awhile, but wore off after 4-5 months, and insurance isn't paying for any of it. Some people in AU are having it done multiple times (it's paid for through national health service) and see longer-lasting results each time, but I would worry about cumulative effects of the treatment I think, the in-patient part is pretty tough on the mind.

The coma treatment in Germany was mentioned, but I'd rather wait a few years and see where things stand and if other pain-relief options become available. I think the SCS is the way to go for now, hopefully it works for me! I go for a history/physical on Wednesday and get my bloodwork done this week, and then am scheduled to have the trial implant done on the 29th at 11:00 a.m.

My lawyer got our request for damages out a week ago, am so GLAD to be done chasing receipts, bills, cancelled checks, insurance statements, etc, for the last 3 1/2 years! All the expenses are itemized, future needs asked for (that we know of), lost wages figured, everything totalled up to put a dollar amount to my injury. As if you ever really could!

My lawyer says to just expect the other side's first offer will make me mad, it will be so low, so to just expect it. Not sure when we'll hear back, think they have 30 days to respond. But it could drag on for months.

The end is near though, and I'm hanging tough!!

beth
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Old 09-18-2006, 06:32 PM #14
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Oh Beth, I'm so happy that my first post on the new BT2 can be to say:

HOO-FREAKIN-RAYYYYYY!!!!


Girl, this has been so long coming and you have fought so hard... I'm thrilled that the end is in sight. Easing your money worries is a huge relief to you and the entire family, I know.

Hoping the pain management continues well for you,
Anne
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Old 09-20-2006, 06:41 PM #15
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dahling that's mahvelous.
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