I'm rather disappointed in what I saw on Dr Phil today. Tamara has had a few threads here about getting people to write in to try to get him to do a piece on TOS. He just had another show where he has a panel of several doctors answering questions about different conditions. They did a specific piece on a woman suffering from Morgellons Syndrome......a condition with skin lesions that has threads coming out of them which many doctors believe is psychiatric in nature. I'm not suggesting that people with Morgellons don't deserve attention to their plight too....but they said that there might be around 1000 people in the US with that condition. I think our numbers are MUCH higher and we can't get ANY attention.

Okay....I am stepping off of my soapbox now

images if you want to see what it looks like -
http://images.google.com/images?q=Mo...=1&sa=N&tab=wi

Well I suppose part of it boils down to looks - most with TOS still look "normal" - Just not as attention getting as those with obvious visual anomalies....

And it is visual as well as most likely a testable and provable dx

dr phil is just re-runs in the summer. so that episode wouldn't be a new one.

i would say keep writing. he might add it to a show in the fall when the new ones air.

do we need a petion or a mass mailing to send to him from all of us in our little world oh sorry big world!!!

love and hugs,
Victoria

I just wanna say that I think Dr. Phil dumbed down his program only one level higher than Maury Povich. He was wonderful to watch in the beginning but once he began using dramatizations using the people he is counseling I think his program got cheapened. The show focuses on conflict much more than the resolve for ratings purposes in my opinion.
Sorry- I just had to say this. I used to like him so much!!!

Hi there after reading your thread i went on to doctor Phil's sight and i went under one of the medical things and i wrote my story so may if more of use do that we will get enough attend that they will finely listen now i don't know how many have done this but maybe we should find out. If i hear from his show i will let yous know oh yes i also told them about this sight hopefully some one from there show will check it out.

Hi,

I would have to agree with Jo. We all look "normal". People are not interested if you dont look sick and they cant stop and point and stare!

Hey we could all act like a lot of the people on dr phil do!!!
love and hugs,
Victoria

LOL Vic.... someone might say that we DO act like alot of the people on that show (at times....) Heck, during a flare I might behave like someone on springer!

you are too funny Dabbo!! I should be in relationship counseling....life counseling and boy when I get sore do I get cranky....springer here we come!!!! LOL LOL
too funny!!!!

love and hugs,
Victoria