[Triste]

Is anyone else showing signs of this. I'm almost 3 years post DR. Avery's TOS surgery that was so BAD. I woke up with my NECK sewn down to tight. That never changed. He took too much tissue out of the R side of my neck and Stictched me back together too tight. It is like being a dog with a leash too tight thethered too tight to a tree on the right side-- all the time.
Imagine if a dog had to live an entire life like that--walk, sit, eat, etc while thethered too tight by the neck to a tree on the right--I mean neck against the tree. Picture it. That is how I have felt since the very painful, damaging surgery. Now both my arms barely work. hands sweat if I use them, like now trying to type. Legs have lost strength--when I can get to my warm rehab pool I can NO LONGER kick or use my arms to swim or even stablize myself--my legs don't work anymore. ( I could drown in 3 feet of water) I'm getting so much worse so fast now. A CT was finally done of my neck this summer which shows a 13% BEND in my cervical spine now. A scoliosis of cervical spine which I feel certain is more now. I asked a neurosurgeon is this due to the muscles being cut on one side and he said YES!. God Please help me--I can no longer be a passenger in a car as my neck is too unstable-NO stabilizing collar works---I can't get to any medical center unless by ambulance. Local doctors act like criminals--failing to even try to do something to help me--ie refer me, do tests, etc. I really now believe the corruption and criminal aspect of covering up problems in medicine is HUGE. They blame the patient whenever they can--and don't take responsibility for allowing surgeon to get away with MURDER, and Mutilation. Sorry, but I'm getting very worried. I am not equipped to live this disabled. I don't have equipment I need, nor a team of specialists to help, nor the hope I need to stay positive tho I will try--as NO doctor says there is any--and NONE offer me anything. I think TOS-type symptoms (whether it is true TOS or not) leaves us open to unfavorable treatment options and unsavory surgeons. Sorry but that is my EXPERIENCE and feelings. If your surgery fails, YOU are NOT to blame!!! And I do NOT see how a re-do surgery will just not cause MORE scarring unless areas are filled in with a fat pads--which are hard to do successfully or functionally in the neck--your body will SCAR. We need to DEMAND that the hospitals allowing these surgeries are prepared for our outcomes!! We need to organize as patients.

[Jomar]

Have you considered seeing some plastic surgeons?

If they can rebuild a person that had disfiguring accidents or deformities- surely a good one might be able to help in some way.

[Triste]

Jo55- that is who did my first 2 surgeries see www.sonic.net/bjj the idea was to release Long thoracic nerve and 2nd one tried that fat pad over the nerve--it worked with 2nd surgery for 36 hrs--until I lifted my arm accidentally to put reach for a hanger in closet--I was staying with friends in Dallas--but closet was too high. Surgeon did not tell me ANY restrictions--and my ARM felt totally NORMAL again--not like after 1st surgery with Nath. My scapula was holding great for 36 hrs until I reached up for the hanger too high and that was the END of scapular stabilization again. Fat pad thus didn't work. Avery took the WHOLE thing out and damaged so much of my neck in the process I'm certain I will die from this deterioration of much of my neck structures. A person cannot atrophy too much in this area--the R hollow-and now whole R side and back of the neck because it affects too much else. www.sonic.net/bjj It is a very difficult life. You can see the deeper ligaments of my neck and they are pulled tight like the dickens--swallowing is difficult--breathing, getting a deep breath, use of both arms, standing, holding head up...how will I survive this? Front trap. has died and collar bone is hanging way down.
I can barely make phone calls--let alone find some plastic surgeon who can rebuild a neck like mine. I did contact a one near San diego once and even he turned me down over phone. Too many vital structures--If you can think of any place that might keep me alive--please forward my website with a note to call me please. Thank you. Triste