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Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie. |
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07-20-2008, 01:06 PM | #1 | ||
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Hi , just wondering if anyone suffering with tos has used the edgelow protocol and had significant improvement approaching a cure?
thanks richard d |
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07-20-2008, 01:33 PM | #2 | |||
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There are some that are doing it, hope fully they will see you question and reply.
I do a version of Sharon Butlers' TOS program along with posture stuff that one of the adv PTs that I saw recommended. {the laying on the foam roll - to open chest and allow the shoulders to drop} I really think these are life long things we need to do and keep doing, I haven't taken the time lately and I can feel the tightness creeping into my neck and shoulders and then my hands start hitting the wrong keys LOL. Just being aware of how things affect you is important too, and maybe finding a way to to do something easier or so it stresses your body less. I also do a mix of Alexander posture awareness - keeping the head inline and not jutting the chin forward or up. chin should be a bit below level. and my far infra red heating pad & my EMS stim are my friends
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"Thanks for this!" says: | richard d (07-20-2008) |
07-20-2008, 01:51 PM | #3 | ||
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Thanks for having the decency to respond, I very much appreciate it.
thanks rich |
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"Thanks for this!" says: | Jomar (07-22-2008) |
07-22-2008, 04:16 AM | #4 | ||
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If I remember right about 2/3 of the people using the edgelow system get benefit from it. How "cured" you can get depends on how injured you are. My impression is that complete cures are rare but many people do get a significant pain reduction and increase in function with the program.Some people I know got through the whole program and my most injured friend was unable to do any of it.
Overall, one TOS doctor told me about 25% of TOS patients become pain free with appropriate lifestyle modifications. |
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07-22-2008, 11:42 AM | #5 | |||
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richard,
What are your most problematic symptoms? Maybe if you list them we can suggest what might help best for you. For me I get mostly muscle pain & tightness across the upper back and then it will spread to neck, upper chest & shoulders if I don't do my stretches & self care. But it took me a couple years, lots of reading and some really good PT people to get me to that point, where I can maintain myself. I do still go to chiropractor once a month also. That comes in handy when I have managed to set something off and need a bit extra treatment.
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"Thanks for this!" says: | richard d (07-24-2008) |
07-23-2008, 02:10 AM | #6 | ||
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I've done some of the protocol with a trained therapist @ UCSF. I was not cured unfortunately.
I only had 4 visits cleared thru WC. I might have really benefited from more. I have a hard time doing some of the exercises. Even the diaphramatic breathing pulls at my brachial plexus.... I don't know if u live in Northern CA. But I know Peter Edgelow himself will be a guest speaker at San Francisco's RSI Support Group next month ( see info here: http://sf-rsi.unsealed.net/ ) Its a great chance for anybody to check it out if they are curious! (Wish I could go- but I'll be outta town then.) I'm with Jo. I like Sharon Butler's approach (in her book Conquering Carpal Tunnel and other Repetitive Strain Injuries more so than her ebook material available thru her site). Also richard, have you done an advanced search here for Edgelow? You might get some leads as to whom you could private message directly about their PT experiences...
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I'm trying to do good for people tango-ing with RSI & Workers' Comp by blogging it out. Please drop in . . |
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"Thanks for this!" says: | richard d (07-24-2008) |
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