Hi everyone,

DiMarie-I don't know if you remember me but I was NAT in the old forums. I use to post frequently.

I don't know why I really stopped. I just felt like pain was taking a big piece of my life and I tried to put it on the back burner and not let it control me. I moved and had some changes in life...but now I am back.

I was diagnosed with TOS by Dr. Togut. But, now I have doctors that say I have myofascial pain disorder. I have been seeing some good doctors who actually communicate with each other and try to help me.

TOS or myofascial etc...who knows...many of the symptoms mimic each other. And, there is so much that the medical community is still learning that it is almost trial and error to see what works or not.

As you all know, having TOS or Myofascial Pain or whatever is a disability that others cannot see. It is hard to explain to your family, friends, co-workers what you are going through because they just wouldn't understand.

Having this forum and others who understand what this is like is so important. I am so glad that when I came back to it that there were good people still here supporting each other.

-N

Hi Nat,
I think my version of RSI/TOS has become some sort of myofascial syndrome.
Started out in arms & hands mostly, then spread into neck, shoulders and upper back and now low back, hips, legs, mainly I just get a bit stiff and achy if I stay in a position too long. I have to move around to be comfortable.

What kind of symptoms are you having now?

Have you found things that work well for you?

I mostly have pain in neck, traps, and down forearms. Sometimes in my hip and foot. And, I get horrible headaches.

I see a neurologist and a chiropractor now and they work together.

He has started this new procedure for myofascial pain. I am not medically technical, but it requires sticking a needle that transmits electrical impulses into the muscles with trigger points. When the muscle with the trigger point gets hit with the impulse it somehow causes it to relax.

That is the best I can explain it but I go about every two weeks and the entire procedure takes about 20 minutes. I have been dealing with this for about 10 years and this is the first time that I have found a doctor that has been able to help me.

Oh Nat, is it NAT treaty? from out here by me? Oh I wnder so much about those that move on, if they are better or just in changes of life. We are all here for each other. I remember the first time I found the old forum in 97 and how much it meant to me to meet those that got it, even smarted then the doc's and kinder at times.

I think that the myofascial is part of treating TOS and that is where I an at, I treat the myofascial and can get along. Where the nerve inserts into the muscle try to calm it down so the muscle stops creating a splint around it, or spasm. The wings, traps under armpits and up over the shoulder are my major complaint. The hips, low back come from the bad posture aggrivating back issues. Even the ankles and feet.

I am so glad you are back, I have been having down time reading, but had a break posting getting myself together the last year.

Always open arms here for new and old, unconditional hearts of care.
Have you by any chance seen Dr. Scott Fried? He has a dedication like Dr. T.
Hey Dr. T has a gf, real serious, they travel and are adventurous. Good for him.
Hugs to you
di

yes, it is me...I am glad to be back and among supportive friends

Hi Nat and welcome, glad you found us!

Is the above procedure you mentioned known as "neuro modulation"? I'm supposed to find a pain Dr who does that and wondered what it involved.

Anne

http://neuromodulationtechnique.com/AxiomsOfNMT.cfm

Hi,

I don't think it is called Neuro Modulation. I honestly don't know what it is called. I think that my doctor is one of the only doctors around that does this. I have an appointment next week and I will ask him. I will let you know after.

NAT

Hi NAT
I wonder if it is the thing like a TENS unit? At Geisinger in Wilkes Barre they did it years ago. But a friend of mine had a reaction and I don't know if it was worked out or not. The nerve ending flared up like ulcers on the skin. But on the forum I read others that worked with this machine. This gal had RSD real bad, not TOS.
Can;t wait to hear about this procedure.
di
PS I live a lot with this new TENS I got. I leave it on all evening.

I had a TEN's and it never really helped me. This is a procedure with a needle that sends small electric current into the muscles that have active triggers and causes them to release. There is no medication and although it involves a needle the procedure itself is not invasive.

I kind of think of it like acupuncture although that really does not describe it. There is really no information online about it because I have looked.

I actually have been doing this every two weeks for almost two years now. It takes about 15 minutes but I have found it helps me. The neurologist who does this works together in the same office with a chiropractor who is very good at trigger point massage. It has been a god send for me..