Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


advertisement
Reply
 
Thread Tools Display Modes
Old 11-15-2008, 11:01 PM #1
jrgreenle jrgreenle is offline
Junior Member
 
Join Date: Nov 2008
Posts: 8
15 yr Member
jrgreenle jrgreenle is offline
Junior Member
 
Join Date: Nov 2008
Posts: 8
15 yr Member
Default Cervical Ribs/TOS

I am new to this board, 37/male, and just had an xray that showed pretty substantial cervical ribs. The doctor said they were the largest he had ever seen and a neurologist that I went to next said they were the size of cervical ribs that he thought you only read about. I have sharp pains in my shoulders,numbness, my arms get fatigued very easily, and through an EMG I have nerve damage somewhere which hasn't been pinpointed. I was hoping to get some opinions from the fellow members who have experienced the same symptoms or gone through surgery for removal, or what other treatments you have received. I have had these symptoms for a few years and the pain just seems to be getting to be unbearable. If any of you have had surgery, how was it? What was the recovery time? How long were you in the hospital? What were you able to do right away after surgery? How long to be able to drive? lift arms?

Please help, I am concerned and in need of advice and support. Thank you all for your help,


Rob
jrgreenle is offline   Reply With QuoteReply With Quote

advertisement
Old 11-15-2008, 11:41 PM #2
Jomar's Avatar
Jomar Jomar is offline
Co-Administrator
Community Support Team
 
Join Date: Aug 2006
Posts: 27,699
15 yr Member
Jomar Jomar is offline
Co-Administrator
Community Support Team
Jomar's Avatar
 
Join Date: Aug 2006
Posts: 27,699
15 yr Member
Default

Hello Rob,
We have a few that have had the extra cervical ribs over the years.
From what I recall , those with the extra c rib removal surgery usually had the best outcomes.
Of course finding an expert surgeon is very important, and being very careful post op.
Hopefully some of the others that actually had surgeries will see your post soon and reply.

From what I can recall...
I think for rib resections of the first rib, it is about a 2 month ?? recovery for return to daily activities.
I've seen hospital stays mentioned from 3 -7 days, longer if complicating factors.
There are so many variables it is really hard to compare though.
__________________
Search NT -
.
Jomar is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
jrgreenle (11-16-2008)
Old 11-16-2008, 08:36 AM #3
astern's Avatar
astern astern is offline
Member
 
Join Date: Sep 2006
Location: ATL
Posts: 720
15 yr Member
astern astern is offline
Member
astern's Avatar
 
Join Date: Sep 2006
Location: ATL
Posts: 720
15 yr Member
Thumbs up I had bi-lateral c-ribs removed

Hi Rob, and welcome to our group!

I had the rib resections - if you search my posts and others, you will learn much. Like here. Jo is right - finding an experienced Dr. AND having amlpe time to recover (1.5-3 years) are key to your success. Proper PT is also critically important as most PT will cause more harm than good for us TOSers.

Good luck to you - I hope you find some answers here.

Anne
__________________

.
"It is what it is."

Last edited by astern; 11-16-2008 at 08:42 AM. Reason: added 2nd link
astern is offline   Reply With QuoteReply With Quote
Old 11-16-2008, 04:50 PM #4
jrgreenle jrgreenle is offline
Junior Member
 
Join Date: Nov 2008
Posts: 8
15 yr Member
jrgreenle jrgreenle is offline
Junior Member
 
Join Date: Nov 2008
Posts: 8
15 yr Member
Default recovery time

Thanks Anne and Jo,

1.5 to 3 yrs? Why is the healing process so long? Thanks for the links, I hadn't found info yet that you sent me. I am hoping to get to talk to a cv surgeon in the next couple of weeks to discuss options, but trying to gather as much info as I can. It didn't seem like I have as bad of symptoms as some of the people I have read postings on on the website, but I am getting tired of the symptoms and ready to be done with them. Any info is appreciated! Thanks again!

Rob
jrgreenle is offline   Reply With QuoteReply With Quote
Old 11-16-2008, 06:22 PM #5
Jomar's Avatar
Jomar Jomar is offline
Co-Administrator
Community Support Team
 
Join Date: Aug 2006
Posts: 27,699
15 yr Member
Jomar Jomar is offline
Co-Administrator
Community Support Team
Jomar's Avatar
 
Join Date: Aug 2006
Posts: 27,699
15 yr Member
Default

I don't know if you saw our info stickys above the main TOS thread area-
Dr & PTs - http://neurotalk.psychcentral.com/thread135.html
useful links & info - http://neurotalk.psychcentral.com/thread84.html
there are some polls, articles , videos {links} as well as various therapies in the useful sticky
__________________
Search NT -
.
Jomar is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
jrgreenle (11-16-2008)
Old 11-20-2008, 08:27 AM #6
jrgreenle jrgreenle is offline
Junior Member
 
Join Date: Nov 2008
Posts: 8
15 yr Member
jrgreenle jrgreenle is offline
Junior Member
 
Join Date: Nov 2008
Posts: 8
15 yr Member
Default questions to ask

Jo, I just read again your note about 2 month recovery time(the 1.5 to 3yrs that Anne emailed me makes me worried), that is what I am hoping for if I have to do it. I see the surgeon on Monday, can you email me with some questions I should ask?

will I be able to lift 15 pounds afterwards?(laptop computer bag)

thanks for your help,

Rob




From what I can recall...
I think for rib resections of the first rib, it is about a 2 month ?? recovery for return to daily activities.
I've seen hospital stays mentioned from 3 -7 days, longer if complicating factors.
There are so many variables it is really hard to compare though.[/QUOTE]
jrgreenle is offline   Reply With QuoteReply With Quote
Old 11-20-2008, 01:51 PM #7
Jomar's Avatar
Jomar Jomar is offline
Co-Administrator
Community Support Team
 
Join Date: Aug 2006
Posts: 27,699
15 yr Member
Jomar Jomar is offline
Co-Administrator
Community Support Team
Jomar's Avatar
 
Join Date: Aug 2006
Posts: 27,699
15 yr Member
Default

I wish I could say for sure, but so much depends on the level of damage that is done already, what the cause is, the surgeons skill, whether your body produces excess scar tissue or not , good PT and followup care....

My time frame suggestion was for return to most daily activities of life after an important surgery like this.
{doesn't always include return to work - depending on the job.}

It's just hard to say for sure either way..
__________________
Search NT -
.
Jomar is offline   Reply With QuoteReply With Quote
Old 11-20-2008, 03:21 PM #8
astern's Avatar
astern astern is offline
Member
 
Join Date: Sep 2006
Location: ATL
Posts: 720
15 yr Member
astern astern is offline
Member
astern's Avatar
 
Join Date: Sep 2006
Location: ATL
Posts: 720
15 yr Member
Default

It was not I who emailed you my friend.

another Anne?
__________________

.
"It is what it is."
astern is offline   Reply With QuoteReply With Quote
Old 11-20-2008, 04:11 PM #9
Jomar's Avatar
Jomar Jomar is offline
Co-Administrator
Community Support Team
 
Join Date: Aug 2006
Posts: 27,699
15 yr Member
Jomar Jomar is offline
Co-Administrator
Community Support Team
Jomar's Avatar
 
Join Date: Aug 2006
Posts: 27,699
15 yr Member
Default

maybe Rob meant he gest the emailed notices of posts- if he subscribed to them that way....??

Oh Rob, what is your avg general pain levels during a day?
0 being none & 10 being extreme.
__________________
Search NT -
.
Jomar is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
astern (11-20-2008)
Old 11-21-2008, 09:05 AM #10
jrgreenle jrgreenle is offline
Junior Member
 
Join Date: Nov 2008
Posts: 8
15 yr Member
jrgreenle jrgreenle is offline
Junior Member
 
Join Date: Nov 2008
Posts: 8
15 yr Member
Default pain levels

Oh Rob, what is your avg general pain levels during a day?
0 being none & 10 being extreme.[/QUOTE]


I can avoid most of the pain from keeping my arms down, but once I elevate my arms (like holding a steering wheel or holding my children or anything about 15 pounds), my arms get numb and am in a decent amount of pain(probably 7 of 10)

I feel burning in my shoulders behind my neck and my fingers and toes tingle when I am sitting.

any thoughts?


Rob
jrgreenle is offline   Reply With QuoteReply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
TOS from Cervical Ribs - Surgery Suggested bhall0464 Thoracic Outlet Syndrome 12 02-21-2009 09:18 PM
cervicle ribs!! new to me Danzy New Member Introductions 6 01-30-2008 03:02 PM
Have question about ribs.... dreambeliever128 Thoracic Outlet Syndrome 2 11-29-2007 01:42 AM
T.o.s. - Caused By Cervical Ribs cmartin Thoracic Outlet Syndrome 9 02-16-2007 12:16 PM
T.o.s. - Caused From Cervical Ribs. cmartin Community & Forum Feedback 1 02-07-2007 06:48 AM


All times are GMT -5. The time now is 02:21 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.