hello everyone,
I'm really glad I've finaly found this forum since it's great to get to know people who share the same problem as me since I don't seem to find any local people who could have tos (I'm from Lithuania).
My case might not be a common one since I have tos only on my right side allthough I'm left handed. I was diagnosed with tos this August and the thing I was complaining about was head ache after lifting my right shoulder (my neck veins on right side also pump then). I got this diagnosis in 2 days and it also came out that my nearly persistant neck and right arm pains were caused by tos too.
After correcting my poisture (now I allways sit only straight so my group mates seem to start looking at me line a weirdo but I don't mind ) my neck pain stopped and I have relised that my arm pain stops when I keep it pulled down.
I could have lived with this but... recently I've started feeling occosional numbness in my smallest fingers as well as some pain in my left arm which is annoying me the most. I just hope that my symptoms won't get worse since my doctor has warned me that the only possible solution is operation and I wouldn't really like that...
Anyways, it's glad to become a part of this community.
Gabija

Hi and welcome to our group!
We are very friendly and glad to have you with us! We understand.
Please know that you can ask ANYTHING here there are no stupid or dumb questions. We've all had similar experiences in one way or another.

I'd watch it with the nerve damage. It can progress quickly. Do you have cervical ribs...or extra ribs they are sometimes called. They can be seen on an X-Ray. Have you had an ultrasound or veinogram to make sure it is not vascular ?? With pulsing veins in your neck it kind of sounds vascular to me???
Just some thoughts for you

Hope we can help!
take care!
hugs,
Victoria

Thanks for the welcome. I've had an ultrasound and the angiosurgeon who diagnosed tos for me said that there was no actual extra rib but the gap between my first rib and the collarbone is too small and by lifting my shoulder I make this gap even smaller so blood can't circulate properly and that makes the veins pump up. Probably that means that it's not vascular...

Welcome to our little family ! If there is anything you need to know or want to ask this is the place ! This group of people are so helpful and we are all here for you ! I have TOS and RSD.. It started on my right side and I just got thru frozen shoulder syndrome on my left side ( 8.5 mos). This is the best place for you !

Hang in there and Welcome !

Dolfinz

Hello & welcome,
I saw your post with the surgery questions before this one so I posted on it,

I'll put the link to it here so they can be easily connected -
http://neurotalk.psychcentral.com/thread62900.html

It seems that your case has quite much in common with mine though I haven't had the frozen shoulder syndrome (at least for now) but my pain is turning to left side too... Have you had any special treatment or been operated for tos?