Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 12-09-2006, 02:01 PM #1
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Default Surgery causes TOS to flair....

I don't think we have ever touched up on this subject but I wanted to ask any of you about this.

I know I am probably ahead of all of you in having surgeries besides TOS. I'm not trying it just seems to be my life story. I have had 17 surgerical procedures since 95. The first one was the appendectomy with tumors removed and it goes on and on.

This surgery I had Thursday, they laid me on my back and had my left arm out about half way to being straight out to put the blood pressure cup on me. The right side I had the IV, my worst enemy with these surgeries. I'm waiting until they come up with a way to put that medicine in us without those needles. So much for modern medicine. LOL Anyway when I came home my TOS was really acting up on my right side. That's my TOS surgery side and surgeries gets it going when nothing else does.

Everytime I have spent nights in the hospital my PCP has had to get me out of there because of not being able to lay in bed for any length of time without the TOS starting up. It is so uncomfortable that I go into panic attacks. I actually have gotten dressed before I knew I was getting out, I was just so desperate to get out.

I was wondering if any of you have delt with this at all. Most surgeries we are laid on our back and flat on a hard table. I'm wondering too about if Ishould make the Drs. aware of this problem before I go into surgery. I'm always afraid to add anymore info to the Dr. then he already knows. Sometimes I'm gutsy if I am comfortable with the Dr. but most of the time I think I just need to keep my mouth shut. I always tell them I have RSD so they can do blocks if they are offered in hospitals.

I just never thought to ask about this before but this surgery brought to mind all of the memories of the past surgeries.

Thanks,
Ada
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Old 12-09-2006, 02:15 PM #2
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I'm thinking that when my arm is out in certain positions it does cut off the pulse/blood supply to that arm. That causes the muscles and the nerves to act up- I would think.

and that will cause the delayed?? sx increases and pain

plus-

the fact that you probably aren't used to having your arm out at that position for any length of time - so you muscles are being stretched & held like that for an hour or so or however long the surgery takes.

Something to ask about??
If they would be able to change your arm positions every 10 mins or so that might help..
{Is there a real reason ?? does it have to be out like that??}

It wouldn't hurt to tell them you have a shoulder/arm problem and it hurts for days/weeks after being in certain positions.
{since they may not know much about TOS anyway- simplify it for them-LOL}
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Old 12-09-2006, 05:41 PM #3
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Ada,
I always tell them to take my BP on my right arm because the left is the side that has the problems. I've had too many different surgeries to count also, since 2002 and I haven't really had any problems afterward as far as aggravating my symptoms. But I had a really good ear, nose, and throat dr. who had to remove a nodule on one of my vocal cords a couple of years ago and during my surgery my head and neck were going to have to be in a bent backwards position and he was very good about asking me if that was going to cause a problem and make my neck worse- in fact, he asked several times. That's the first dr. I've had that seemed to "get it" and be concerned about aggravating my condition.
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Old 12-11-2006, 12:50 AM #4
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Jo and Red,
I failed to say that my right side is the side that flares up. I had surgery on that side and they had the IV in that arm and at the time I went out it was straight down at my side, don't know if they moved it.

This pain is in my whole left chest area and back of my shoulder all the way down to my breast area on that side. I want to say that this isn't the TOS but I'm not sure. I go through this every time as I said when I have surgery. That whole area gets to hurting so bad that I can't lay in the hospital bed.

I just can't believe how a person falling could do such a job on their body. I fell 13 or 14 times but just to the ground not off of the Empire State Building.

It took me two days of heating pads, patches, and pills to get that calmed down.

I never thank to tell the Drs. to watch how they position me for the surgery.
From now on I am going to try to do that.

Thanks for the help,
Ada
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Old 12-11-2006, 01:35 AM #5
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[QUOTE=dreambeliever128;48232]Jo and Red,
I failed to say that my right side is the side that flares up. I had surgery on that side and they had the IV in that arm and at the time I went out it was straight down at my side, don't know if they moved it.

This pain is in my whole left chest area and back of my shoulder all the way down to my breast area on that side. I want to say that this isn't the TOS but I'm not sure. I go through this every time as I said when I have surgery. That whole area gets to hurting so bad that I can't lay in the hospital bed.

I just can't believe how a person falling could do such a job on their body. I fell 13 or 14 times but just to the ground not off of the Empire State Building.

It took me two days of heating pads, patches, and pills to get that calmed down.

I never thank to tell the Drs. to watch how they position me for the surgery.
From now on I am going to try to do that.

Thanks for the help,
Ada[/QUOT

Ada,
I guess I really don't have any more ideas as to what could be causing this except, could it be you have costochondroiditis? I've had some bouts of this and my DIL is dealing with it right now- anti inflammatories aren't helping so she's going to her PCP tomorrow to get a referral to see a chiropractor.
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Old 12-11-2006, 01:43 AM #6
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Hi Red,
I have been diagnosed with Costo. but this feels more like an injury. It feels like that whole left shoulder area is out of place or injured in some way.

I get triggerpoint injections for Costo and they do help. I get them all the way from my shoulder down to my breast area. My Dr. puts them around my heart area. He has done it for years and they do help but it doesn't seem to be flaired up. Those shots help for months even years. He uses lidocaine and I think zylocaine and Mericaine, at different times though, not all at once. He doesn't give me steriod shots because he says you can't use it but 3 times a year as compared to 1000. LOL

It might be something you won't to ask about.

Thanks for helping me.

I'm in a bad place tonight so I am talking on here to keep my mind occupied. My Grandson's are in bed and when they're here it just seems like I miss Bill even more.

Ada
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Old 12-11-2006, 01:53 AM #7
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Quote:
Originally Posted by dreambeliever128 View Post
Hi Red,
I have been diagnosed with Costo. but this feels more like an injury. It feels like that whole left shoulder area is out of place or injured in some way.

I get triggerpoint injections for Costo and they do help. I get them all the way from my shoulder down to my breast area. My Dr. puts them around my heart area. He has done it for years and they do help but it doesn't seem to be flaired up. Those shots help for months even years. He uses lidocaine and I think zylocaine and Mericaine, at different times though, not all at once. He doesn't give me steriod shots because he says you can't use it but 3 times a year as compared to 1000. LOL

It might be something you won't to ask about.

Thanks for helping me.

I'm in a bad place tonight so I am talking on here to keep my mind occupied. My Grandson's are in bed and when they're here it just seems like I miss Bill even more.

Ada
Ada,
I'm so sorry for what you're going through.....I can't comment on steroid shots in the area you're talking about but have had them in my feet and that's one of the most painful things I've ever had done. I don't know what I was thinking when I agreed to that the first time, much less the 4 or 5th time.....You're right- only 3 shots in the same area per year. One of the explanations for my insanity as far as they go is, an ortho gave me a cortisone shot in my upper hip for pain one time and it didn't hurt at all. So, when the podiatrist mentioned trying that the first time, I thought to myself, "well, how bad can it be? It didn't hurt in my hip".... WRONG move....Never mind that I have plenty of "padding" in my hip and your feet have NONE and he puts the shots right into the joint of my big toe and in the side of my feet in the joint of the 5th metatarsal. Suffice it to say, the last time he put one in the same area I'd had surgery on a few months before that, I told him no more of that- I'd rather have surgery again than have another one of those in my feet. I hope you can get to the bottom of what's causing this and will feel better soon.
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Old 12-12-2006, 03:43 PM #8
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Red,
I did the same thing you did. I went to my foot Dr. I have RSD in my right foot worse then some of the other places. I have a Neuroma under the foot of the middle toe area. I was going to have surgery on it but another surgery came up that was more important.

Anyway, like a nut I let the Dr. put a shot under my foot in that area, that hurt worse then anything I have had a shot for. It has helped every once in awhile I have trouble with my foot but I am putting off the surgery as long as I can on it.

I also had 28 shots put in my stomach at the UofC and then about 10 more at a later time, I said no more to that either. I have a great PCP that is also a sports med. Dr.and he gives me all of my shots. I talked Bill into having them on his shoulder a couple of years ago and he never had trouble with that shoulder again. I get the shots everywhere from him and I can't even tell I'm getting them. He doesn't use those long needles like some Drs. do.
I will definately say it depends on who's giving them to you. He gives them to me in my chest area around my heart if my TOS and everything else flares up but he never would let any other Dr. do it in that area. I use to trust every Dr. going but now I've learned to pick and choose the best ones I can.

Thanks for the advice.
Ada
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Old 12-12-2006, 05:41 PM #9
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Red,
I did the same thing you did. I went to my foot Dr. I have RSD in my right foot worse then some of the other places. I have a Neuroma under the foot of the middle toe area. I was going to have surgery on it but another surgery came up that was more important.

Anyway, like a nut I let the Dr. put a shot under my foot in that area, that hurt worse then anything I have had a shot for. It has helped every once in awhile I have trouble with my foot but I am putting off the surgery as long as I can on it.

I also had 28 shots put in my stomach at the UofC and then about 10 more at a later time, I said no more to that either. I have a great PCP that is also a sports med. Dr.and he gives me all of my shots. I talked Bill into having them on his shoulder a couple of years ago and he never had trouble with that shoulder again. I get the shots everywhere from him and I can't even tell I'm getting them. He doesn't use those long needles like some Drs. do.
I will definately say it depends on who's giving them to you. He gives them to me in my chest area around my heart if my TOS and everything else flares up but he never would let any other Dr. do it in that area. I use to trust every Dr. going but now I've learned to pick and choose the best ones I can.

Thanks for the advice.
Ada
LOL, Ada- "like a nut".....you got that right! I was a nut to get the first shot, an idiot to let 'em do it again! The shots do usually help me, after I get over the initial PAIN of getting them and the 2 or 3 days it takes for the pain to go away....I've had 3 different podiatrists give me these shots and they've all hurt- it's especially "fun" when they get that "foot long" needle in there and move it back and forth. That's the only time I've ever had something done where I broke out in a cold sweat. Afterwards, the nurse told me how GOOD I did...she said, "most people scream".
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Old 12-12-2006, 06:07 PM #10
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Red,

I don't remember if you have the RSD or not but the bad part about having surgery on the feet they are like the hands, they are said to bring out the RSD even worse. For some reason the hands and feet are suppose to be the worst place to have surgery if you have RSD. I plan on having triggerfinger syndrome next year and I will get my Dr. to give me a block but getting that surgery done worries me more then most.

I didn't scream but I too broke out in the sweat, I swore I'd never let him give me a shot in the foot again. My PCP even said he'd do it for me the next time I need one but I'm even reluctant about him doing it.

I also had 4 shots put in the palm of my hand in Sept., again I broke out in a sweat and almost past out, I laid on the Drs. table until I felt better and then the nurse had to walk me out to Bill. I won't let him do that again. I'll go through the surgery next. My PCP just had it done and he advised me to have it done rather then to keep going through the shots. They don't last.
No matter who gives shots in the hands, feet and stomach, I think they would hurt.

Ada
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