Having problems with strange sensations in leg but now both. Been feeling like water trickling over foot and that foot is wet when isn't. Now been having episodes , getting more frequent and longer, like I have both cramp and pins and needles or something like that at the same time. Problematic at night as do not know what to do with leg and foot. walk on it, put on something cold, in bed out bed etc..... It has now started on other leg. ?'d with one doc who thought maybe restless leg. Just wondered if anyone else experiencing similar and any advice. I gather if it is it is more prevelant in women 40 + and is progressive. There are some drug therapies but having had problems just recently with lamotrigine , which gav me migraine everyday for 3 + weeks til it got out of system, you can see why not over keen.

Am trying the lidocaine patches...just to see if takes edage of the surface burning horrible pain. Know it wont touch the deep hideous pain but anything is help plus the patches are cold. Yep issue with sticking - cannot remember what others said about helping keep it on.

Basically fed up - understatement. At least fracture mende though left with problems as thumb tendons not grest...so having MCP joint injected. My body is not a temple it is a ruin!!!!

I understand.

Sorry you have so much to deal with. It's hard to cope with when you have too many issues. Hang in there. You're stronger than you think.

I'm not understanding the MCP right now. I've had my right thumb tendon injected on two different occasions. It did help my thumb triggering. 2 different drs, 2 different meds, 2 different outcomes. It helped me. Don't be afraid of the needles. Just make sure they numb you some way. It'll be okay.

HI Helen
I am sorry that you have so many health things on going. But, it was good to hear you make a joke about being a temple in ruins.
The lidoderm patches, where do you place them? On your feet or at the origin of the ridiculopathy. I place mine on the small of my back, upper hip area.

The pain is coming from there to my feet. When I get the weird sensations in the feet I use preperation H, it has lidocain in it to numb. THe % is lower then the patches, but at least it is directly on the sensory skin area. Otherwise, If I cut a piece of patch and then put a sock on to hold it. I use arch supports, like a band of ace bandage to hold it in place.

Today I have in the small of my back and one cut in half on each hip to the sides of the low spine.
feel better soon
Di

restless legs can be triggered in my experience by otc meds. 1st thing i would try is to eliminate them and see if it helps. the ones that hurt me are:

aleve (or in fact any NSAID)
benadryl (the same thing is in tylenol pm)
robitussin dm

also, sugar. eat fruit before noon. don't eat refined sugar at all.

i have tried the meds for restless legs and they did work for me. the one i used was sinemet. it's the same drug they prescribe for parkinsons but at a lower dose. i don't take it anymore but when i was i never noticed any side effects at all. except for the one where i dreamed george strait asked me to dance because i was purty. (i can take more of those side effects!)

i can relate to not wanting to try new drugs because of potential side effects. most of the time i feel the same way myself. but i have no bad pr for sinemet.

Hi Di

Patches well I place them anywhere, in fact I was hoping that they could make a body sized patch!!! I do cut them up and spread them about. It takes the tingle off the pain not really helping but I think it does in a strange way, cannot really explain, the pain is there but the patch makes a tingling sensation which is different to the hideous pain. I have even wrapped a piece around my thumb which was wonderful!!!

I am going to use some cohesive bandages to help hold mine in place as with the excessive sweating nothing seems to stick. I will try the one on the foot as they, partic the left is driving me mad. Back to see specialist begininning of July.

Great to hear from you....just I cannot get on too often as well you understand.
Love Hx in lovely hot uk.

Thanks Tied.....NOt on any otc meds at all, and have gone thru meds and side effects.

There is one med that they are considering but they want to wait til see specialist and try and work out if is restless leg or something from what is already in the mix with me.

Re trying meds....do anything to a point to help but the experience with the anti epileptic was not great at all.

Take on board the fruit and sugar thing and give it a go. Must admit avoid processed foods and artificial additives.

Thanks
Take care Hx

And Hi to all on forum...

JUst this month I had three separate nights of horrifying, painful, restless legs. I seriously could not lay still for 10 hours each of those nights.

Why????? Don't know - this after 6 1/2 years of this? Why now?

strangely, I have been taking Benadryl occasionally for a year since the hospital stay per doc's orders for bedtime. He wants it every night, but I just use it when I'm really in a flare.

Does anyone else think it's related to Benadryl???

Hi Helen,

I am sorry to hear of all your woes!
You may want to try to keep your patches on if they are on your leg or arm with a stockingette.....

http://www.metromedicalonline.com/2195.html
that sort of thing...it breaths and at work we used to keep bandages on with it....if you get it go to your pharmacy and ask for the net one as it will not increase sweating and it breaths and will hold things on well!!! no tape on sensitive skin!! mine are on my back and neck so they usually stay on pretty well!

now as for the restless leg thing....try drinking a tonic water before bed as it has quinoline in it and that is the drug they used for restless leg if it is restless leg you have....need more investigations if you ask me....

hope some of this helps!!
much love my dear!
hugs,
Victoria

Hi Victoria (and all)

The stockingnet...I know what you mean, the lightweight loose thread version of the tubigrip = elaticated stocking- Will dig about for some and have a go. Have tried some of the film dressings (opsite, tegaderm - sure you know them and used them a plenty like me) they work but are cost prohibitive really. The stocking is good idea but again no good after one use as it does not hold its shape and I cannot use anything elasticated. I have used a cohesive bandage and they are ok but pricey and not great to reuse.

One of my big problems is sweating , no sorry men sweat ladies perspire! Some of my drugs are contributory to this. The patches just do not stick to the back of my neck and is problematic. I feel that the problems and the benefits probably cancel each other out so I will have to think about it.
On the quinoline --Mmmmm know we use it here in UK for cramp and partic nighttime cramps so maybe give it a try. Not my idea of a favourite tipple but I can always add to it.

Best wishes to you all.
Hx

See specialist soon so will raise this problem with him. Just something to add to the ever growing notes of mine!!

Chat more soon.

Hx