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Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie. |
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02-18-2014, 02:30 PM | #21 | |||
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I was initially diagnosed with torticollis at age 19, intermittant occurrences of it that lasted several days. Twenty-six years later I've had rib resection-diagnosed with TOS, which has not resolved my ear/head/neck pain...so this is very interesting info for me-thank you for taking the time to post it!!!!!
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~Robin www.rtosjourney.blogspot.com |
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02-18-2014, 08:38 PM | #22 | ||
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A tos specialist diagnosed me with this but I thought it was the part of same thing...How many people with tos have cervical dystonia too?
The scalene removal would resolve it right...no muscles to spasm? Last edited by abegins; 02-19-2014 at 12:58 AM. Reason: grammar |
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"Thanks for this!" says: | rbn4jsus (02-27-2014) |
02-19-2014, 03:21 AM | #23 | |||
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Many doctors will use the term dystonia but the spasms we often have w/TOS is not true dystonia. Dystonia/Torticollis is a movement disorder and generally results in a tilt to one side and possibly uncontrollable jerks. This is treated often with ultrasound guided Botox to specific muscles. I don't know if the scalenes are often (or ever) implicated with dystonia, so scalenectomy is not a treatment for it.
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Marc . ACDF C5-C6-C7 2/28/11 . . . . |
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02-19-2014, 07:45 AM | #24 | ||
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Quote:
Check this out: Spasmodic torticollis due to neurovascular compression of the spinal accessory nerve by the anteroinferior cerebellar artery: case report. http://www.ncbi.nlm.nih.gov/pubmed/10981767 |
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02-27-2014, 02:34 PM | #25 | |||
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when i had first rib resection in '08, I also had scalene removal and it did not help my tos or torticolis long term. Hmmm...? I do wonder how many tosers also have wry neck or torticollis??
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~Robin www.rtosjourney.blogspot.com |
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07-29-2014, 09:34 PM | #26 | ||
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Shelley - I just ran across your thread and am very interested in hearing more about this. I hope you are still on this site (I see where this post is about four years old) and you will contact me! I recently visited a MD who does integrative medicine and he thinks my Spasmodic Torticollis is caused from a virus. I also see a naturopath and through process of elimination in looking at the viruses that show up on her Orion Bioscan machine, we think that if my ST/CD is caused from a virus that it's the chicken pox virus. I had a very bad case of chicken pox when I as a teenager.
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