Burning Wrist Pain and other stuff

gibbrn · 02-13-2007, 01:24 AM

meant to be if it is like this!!

mothy19 · 05-01-2007, 11:34 AM

Wow, there are other people out there that experience the same problems. I think that is one of the most difficult parts about TOS is finding someone who can relate to the problems.

The biggest problems I have had with TOS are not being able to use my right arm as much as I would like and also sensitivity around my right shoulder. I cannot put any weight on my right shoulder without feeling discomfort. Most of all, from time to time, I get a pulsating lump right above my right clavicle. That drives me crazy!

I have done the Botox injections by Dr. Jordan with only temporary relief. I have considered surgery where they remove your top rib.

I have a couple questions...

1) For those who have had the rib surgery, do you recommend it? Will it bring relief to my pulsating lump (or muscle spasm)?

2) For those who experience the pulsating lump, how do you get rid of that?

Quote:

Originally Posted by johannakat

So I had a revelation today, and wanted to share.
Let me start with a quick summary for anyone who doesn't want to look through a bunch of posts to figure it out. I don't want to lead people astray who are having different symptoms than me.

1. I just produced baby #3 in Aug '05. I have been either pregnant, nursing, or both for about 4 straight years now

2. March/April of this year while and after doing some inversion poses in a vinyasa flow yoga class I felt severe pain in my arms, wrists, and the front of my shoulders. Pain also shows up as burning in my wrists (like a fireball is right in the center of them) when I am on the computer. I can't put any pressure on them, lifting myself up, closing the back door of my van, or anything.

3. Originally dx'ed as tendonitis and/or wrist sprain, went to PT for 2 months. It was helpful but also painful- the strengthening exercises would always make my traps hurt and my triceps. WHen I told the PT this, I was always told my psture wasn't good enough.

4. June '06 I passed a nerve conduction study, and was finally dx'ed as TOS (with different ortho) 12/10 on right side and 8/10 on left side. Pulse disappears very quickly on both.

5. Went to same PT place for TOS PT for 1.5 months. It only made me hurt, so I quit.

6. September '06 Went to see Dr. Jordan at ortho's suggestion to find out about Botox.

7. Dr Jordan gives me scalnene test block, claims that I have improvement and then suggests botox next. I was not quite convinced I had had improvement with the test block, but knew that I would try botox before surgery anyhow, so I went along for the ride.

8. Botox injections hurt very badly for 2 weeks, do nothing until about a month after- at which time I feel markedly better.

9. November '-6 to present- I want to take advantage of my loosened muscles, and I feel like I can't sit up striaght becaus emy whole back is just out of whack. I start seeing chiropractor and hellerworker- Chiro loosens up my neck significantly so that I can look to both shoulders again, explains to me that the weird pains I have been having in my back are muscle spasms (can you say clueless?) and helps work them out. They are presently better but not gone. The Hellerworker finds that my neck muscles and arm muscles are really tight which I expected, he also finds that the muscles on the sides of my ribcage are very tight and tell me he thinks this must certainly be contributing to my problem because he has rarely seen them so tight.

10. SO, on Dec 22 I saw Dr Jordan again, he says my pulse is back in the right arm after being goine for so long, congratulations on the improvement, come back in 2 months he wants to put more botox in before I get back to where I was. I am pretty psyched and ask to be sent back to PT because I know I need some help and feel like I am on the brink of progress.

11. Today I see Joyce Wilkinson and she says some things that really click for me. Therefore I want to share them because I haven't seen anyone else really say much about it and maybe it will cliock for others.
a. The muscles on the sides of my rib cage ARE really tight.
b. Sometimes the muscles of the neck and shoulder get tight because the ribcage is being pushed up from below and that's what really needs to be fixed before the scalenes and pecs have anywhere to lengthen to
c. and this one didn't click but it made me very very happy- there is a spot on my back that is super tight and that spot is probably what makes me feel like I am constantly stuck bending forward (unable to sit up straight). Now why didn't my chiro find that?
d. she found some "disfunction" in my wrists and they are really tight, probably contributes to the burning pain.
e. My pec minor is really really tight and probably has a lot to do with my issues.

SO...I took all of this in and chewed on it this morning. I have a couple of observations in no particular order.

1. Maybe Dr. Sanders is really onto something with his pec minor release surgery process. If others problems are more like mine it really might be a better answer than fixing the scalenes.

2. I think If I stuck with the hellerwork for long enough that might have been the right answer, too, because he was working to put my ribcage back in the right place and loosening the tension in my muscles. He found tension in all the same places as Joyce did, and had similar conslusions.

3. Botox in the scalenes and the pecs and traps alone probably wouldn't fix a problem with tight lats and serratus anterior.

4. My idea that sharon butler was totally on the right page was also right- it was her email FAQ that said for burning wrists you should stretch the lats and the armpits. Those are the areas that are so out of whack for me, and stretching them really does help the wrist pain when I get it.

Anyhow...I might come up with more later, and I'll come and update this. Joyce seems to really be the real deal. If you can't get to a similarly qualified PT, I would highly suggest hellerwork.

As always- this is just some things and thoughts that have worked for me, And I am no doctor. Just read and try to think.

Would also love to hear from anyone who has had pec minor release instead of the rib resection or scalenectomy, or anyone with other interpretations of my thoughts adn dx'es. I am putting it out there because I thought it was interesting and tried to make some connections that might help others.

happy new year!!!

Johanna

Jomar · 05-01-2007, 02:46 PM

Hi mothy19 -
I'll move a copy of your post to a new thread - you'll get more replies to your questions that way.

here's the link to it-
http://neurotalk.psychcentral.com/sh...ad.php?t=18674

johannakat · 05-03-2007, 08:03 PM

Since Mothy so kindly pulled up my old thread, it seems like a good place to put and update on my progress. Funny how reading what you wrote about yourself a long time ago can be revealing.

I have now spent 4 months in my second go at PT (2x a week), I continue to see the Hellerworker for double sessions and the Chiropractor for single sessions once a week each. I also had a second round of botox injections that sadly only lasted a few weeks like the first set.

Unfortunately i was also plagued with a very sick toddler for most of the winter and lost weeks at a time to hauling her around (bad) and missing my own PT and stretch/exercise time. I also think I may have further injured myself doing some of that, but not sure. In that time my pain med consumption has increased significantly as has my general pain level, though, i didn't realize how much until this week.

As many of you know, I have been gathering surgical opinions. I just returned from Denver on wednesday where i got opinions 4 and 5. I have decided that I am definitely going for surgery and I'll post my reasons here...to relate directly back to my December thoughts.

Also in the process of the surgical opinions, I have had each doctors "special" favorite analysis. This includes: the

MR Neurography that Dr Filler does,

Scalene blocks and an SSEP for Ahn,

Spiral CT for Brantigan, and

MAC study and scalene block for Sanders.

I also visited Dr Weaver, but he had no special testing requests. I must say that Dr Sanders MAC [medial antibrachial cutaneous nerve conduction study] test was clearly the most traumatic

but perhaps the most useful of all of them. I went on this crazy round of visits because I wanted to be comfortable with the course of surgery, And if figured if I visited everyone and got all the test I would know the most about my condition. If I could get whoever i picked to actually look at all of these diagnostics before surgery, I would have the best chance of him/her not being surprised when they open me up.

Either that or I am an insane engineer type on my own private TOS research mission [insert 'mission impossible'

music here ] to figure out "who has the best tool for the problem"

. If so, you all get to be my peer reveiw group to tell me if I am really clever

or simply out of my tree....

<-- remember, this is me on an ordinary day.. read with caution

My First point is this: PT and hellerwork HAVE really helped me. They have helped with the vascular part of my problem so much that when I saw Dr. Sanders this week he refused to believe that I have ever had a circulation issue. So, maybe I don't have one now, but I did in the beginning. I know this (but did not belabor it with him) because in the beginning no dr or practitioner had any trouble making either pulse go away. This includes 2 doctors and 3 pters. (and those first PT'ers were nothing special)

I believe my PT and Hellerworker helped me most effectively because they worked together...SuperJoyce would say..I need [insert muscle name here] to be looser so that I can make [insert body part here] work better. I'd go to Robert the hellerworker and request that he work in that area. He didn't waste any time figuring out what to do, and was much more efficient at loosening muscles that the PT was. For some muscle groups, I was able to maintain the improvements that Robert made. The lats are an example. For others, I have not been able to maintain the improvements. My posture is not great, but it is better. My spine is not completely limber, but it is significantly more limber than it was, My hips are aligned and some of the leg muslce that affect your postue have been adjusted, stretched, and aligned.

This leads me to my second point: Eventually my progress has been limited by the amount my nerves are compromised. Having tried to work on some of the same spots (the knife in my upper left trap/rhomboid areas, for instance) for a few months now and not finding progress, I believe that mynerves are compressed too much for the body work to really get at the trouble spots. I know Di often posts about how when the nerves are feeling threatened or irritated, the muscles around them spasm to protect the nerve from further irritation.

So, even though in my heart I believed everything my hellerworker told me about how he can make any muscle the right length and elasticity again by working on it, that he can't neccessarily fix the 'nerve feeling threatened' part. In my case, I think I have reached the limit of what he can do for me until I get the nerve problem fixed. DOn't et me wrong, he has helped me tremendously, an I intend to have him finish up once I am done getting all these dumb stinking nerves released.....but we definitely hit the limit.

How did I come to that conclusion...? Well, in the same style as TowelHorse, I will have to come back and tell that part of the story when the numbess in my wrist dies down a bit....

talk to you all again soon,

Johanna

johannakat · 05-08-2007, 12:26 AM

Basically, PT Hellerworker and I had great progress jan-mid march. But late february my littlest asthma baby got cold number 3 of 4 really bad practically-in-the-hospital kind of colds this winter. and I didn't have time/strength/energy to keep up with my end of it. I am also not sure i didn't injur myself more during that stretch because at the end of cold number 3 i just knew i was done. PT and Hellerwork became more of a "keep me going" than a "help me make progress" thing. I fooled myself for a while there thinking we were making progress, but looking back I think it was all pretty cirular. I had a good talk last week with SuperJoyce and she pointed out a few things that cemented my own thoughts.

Also, looking back, it was about the time of cold number 3 that I made a decided shift to needing more pain meds. Part of that could have been the wearing off of the second botox injections. or, as i was hypothesizing, that I hurt myself providing all the extra attention that my daughter needed during that time.

Lastly, after feeling the relief in my arm at the left scalene block this past tuesday, I can understand why I (or anyone elses with TOS!!!) am having so much trouble making progress. I could just feel the tension melt out of my arm when the block went in. Something in the way the nerves are compressed makes me hold my arms in a certain tense way. I don't unsertand it, maybe it is a little like when you turn on the IF stimulator a little too high and your muscles all want to contract uncontrollably. Having felt it come and go was so eye opening. I just don't see how you can override that once it is there????

Conveniently, I had been evaluating surgeons since Early March just in case.... so I guess now I just know for sure in my heart that it is time to move on and get it done. Actually, I am looking really really forward to it.

I am about 90% sure of my course of action including surgeon/surgery type. However, I have two more test results I am waiting for from last weeks trip to be 100% sure.

As soon as I get those I will post how I came to choose a surgeon. Maybe I'll do it on a new thread...not sure yet.

I am really rambling. Time to go to bed.

Sweet dreams everyone.

Johanna

towelhorse · 05-08-2007, 07:15 AM

hi johannakat, i had significant pain on the inside(same side as palm) of my wrist that extended towards my elbow. it felt as though someone was dragging an eraser on my skin. touching it lightly was extremely painful. when the problem was subsiding the last little bit left was at the wrist. when the ribs are tight and the thoracic spine is hypomobile this is called T4 syndrome.My chiroptactor loosens my thoracic spine which feels great. i am wondering if anyone out there who has TOS on one side only, when they feel their top ribs at the front of their chest with their fingers without crossing their arms, is the rib near the collar more pronounced on the affected side?

johannakat · 05-08-2007, 02:31 PM

my chiro and PT and hellerworked have been trying to loosen the thoracic spine for months. In fact, hypomobile might be a generous wod for them

, they just won't budge. My thought is that the muscles are just clenched tight because of long thoracic nerve aggravation. My traps and rhomboids are in constant spasm, worse on the left side. It is one of many things I am hoping will have a chance to resolve after surgery.

Regarding your question about pronounced ribs- my PT does observe that on certain days when symptoms are better or worse on one side that my ribs and muslces are tighter/looser on that given side. She can generally feel the ribs in the back somewhere in the knot that is my trapezius muscle, not so much in the front. It used to be that on the left she could feel my ribs go up and down with a breath but on my right the rib was stuck up high

and would not move. At that time, my hips would tend to be out of alignment in the opposite way. They eventually were able to get my ribcage released (the one really permenant lasting change from PT and hellerwork was loosening the lats and releasing the ribcage most of the way) and both sides go up and down now and my hips stay in better alignment (i think because I am not compensating for crooked ribcage anymore)

As for my wrists, my pain is different that yours- mine is kind of a burning knot that feels as if it is in the center of my wrist

....Sharon butler said to stretch the lats and armpits for that kind of pain. My wrists have hurt somewhat less since my lats were loosened, but not gone. I have also really cut computer time

over tha last several months and since I got Dragon in December so I am not 100% sure if there is a connection.

Johanna

MelissaLH · 08-09-2007, 09:31 AM

Quote:

Originally Posted by johannakat

The Hellerworker finds that my neck muscles and arm muscles are really tight which I expected, he also finds that the muscles on the sides of my ribcage are very tight and tell me he thinks this must certainly be contributing to my problem because he has rarely seen them so tight.

Johanna,

I just did a search on rib mobilization and came across this post... now I totally see what you meant when you said you and I had similar symptoms (you probably don't remember, but I also had/have the burning wrist pain). I've been seeing steady progression in physical therapy, including a large gain in my grip strength, by simply undergoing myofascial releasing cranial sacral therapy of my head, neck, and upper chest and back. However, because my armpits still tend to throb a bit, my physical therapist did some rib mobilization last week. I woke up the next morning with more nervy burning pain symptoms running down into my arms that I'd had in months. Over the weekend, I spent quite a bit of time packing for a move (only small stuff, but apparently that was enough), so my nerves continued to be irritated to the point where now I'm in practically a full-fledged flare. This whole episode leads me to believe that I, like you, suffer from tightness of the muscles attaching to the ribs by the armpits. I have seen my physical medicine Dr. since this flareup, who found more tight chest and rib muscles and has referred me to pain management for a scalene block. I'm planning on requesting a pectoral minor block first, just to see if that can temporarily alleviate my current flareup of symptoms.

Has your Heller worker been effective in treating your tight rib muscles? Have you tried a block of some sort for them?

Best wishes,
Melissa

johannakat · 08-09-2007, 07:09 PM

yes, hellerwork is the most efficient way to get all my muscles relaxed...jsut not so much to keep them that way.

I have recently started seeing a PT who also is a feldenkrais practitioner. todays lesson was very good- it was something my current PT adn a yoga teacher had tried to explain how to do previously but it never quite worked for me. today i really understood it, and grapsed some of what is to come in my lessons- learning how to relax my own muscles.

I have had a scalene block and botox (which is essentially the same thing) on both sides. The block MAY provide some temporary relief but I believe it is really a diagnostic tool more than anything else. The length of relief depends somewhat on what medecine they inject, but even botox, which is the longest lasting, gives me about 2 months.

we should chat at more length, i am have to run now, there is lots, though to say about it. I vaugley rememebr you were having surgery, or considering it, RU still?

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