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-   -   Tourette Syndrome: A Success Story with Supplement Treatment (https://www.neurotalk.org/tourette-syndrome/1145-tourette-syndrome-success-story-supplement-treatment.html)

Greyhound 05-03-2008 05:23 PM

Oh, and may I ask what sort of magnesium you use? It's is magnesium stearate or magnesium taurate or what? (And please tell me the difference if you know!) Thanks :)

Chemar 05-03-2008 05:59 PM

Hi
my son uses both mag glycinate and mag citrate and has taken taurine separately, but I've seen it suggested that mag taurate is best for those with TS....absorption is what I think it is related to.

we buy our supps online at iherb.com as we find them by far least expensive, but not sure how much they charge to ship to UK

when I lived in London I got my vits at Boots tho that was many years ago and I wasnt as aware of additives then so not sure how pure their stuff is

Greyhound 05-04-2008 04:25 AM

Thanks. I might be able to get hold of magnesium taurate but it's overpriced and has to be ordered from somewhere.

I can get hold of other magnesium from Holland & Barratt but they all seem to contain magnesium stearate. I don't know if magnesium stearate is just not such a good idea, or if it's because isn't just not very good at all. On the Bontech website, it's made very clear that no magnesium stearate is added. With the magnesium I can get, I can get types other than stearate, but they still contain stearate as well.

I'm so confused!

I'll take a look at iherb.com though :)

Greyhound 05-04-2008 08:09 AM

I've had a look at iherb.com

They do ship to the UK (although I don't know how much it costs yet).

The trouble is, I can't always tell if the products are suitable for vegetarians or not (religious dietary requirements).

Also, I'm still not sure of the recommended dosages.

If it's not too much trouble, would you be able to link to the exact products on iherb.com so I can see how many milligrams you use and the exact formulas which you've found to work.

If you could that would be great, but don't worry if it's too much trouble :)

Chemar 05-04-2008 09:25 AM

Hi Greyhound

there really are no "exact formulas" on supps for TS and all is very much dependent on individual deficiencies. even two people of same age with TS may have differing biochemistry. Also my son's needs have changed since we started using supplements in 2001 and he also has Crohn's disease so it wouldnt be productive for me to link you to what he uses as your needs may be different.
BonTech supps are the closest thing to an "exact formula" around, but as mentioned before, even there, while the majority of people seem to do very very well on them, some dont and that is likely related again to specific needs and possibly a reaction to the high B's or some other ingredient. Plus if cost is a factor it can get pricey as an adult needs quite a large number of TS-plus capsules per day I think............But overall if one wants a well researched formula for TS, Bonnie's come highly recommended by many. She also has a lot of good info on her site www.bonniegr.com

we dont use magnesium stearate as a supplement per se, as it is, from my understanding, more a filler than a well absorbed source of magnesium. It is usually added to most supps tho and often unavoidable


Did you take a look at mrsD's magnesium info on the Vits board?
that may really help you sort thru the different kinds of magnesium
http://neurotalk.psychcentral.com/showthread.php?t=1138

if you click thru to individual products on iherb it gives you the details on ingredients and usually lists whether the capsules are vegan
eg this mag citrate by NOW

it took us a while to get the right mix for my son and it is trial and error unless you have a knowledgable healthcare pro for guidance

you mention taking St John's Wort and Inositol...I assume this is becasue you also have OCD,depression and /or anxiety? as they arent specifically tic reducers but rather help to boost serotonin

the basic premise with supps for tic reduction is to avoid anything that elevates dopamine and to supplement magnesium primarily, and supplement any other deficiencies, especially with those supps that promote neurological health

have you tried epsom salts (magnesium sulfate) baths...my son has them regularly

also
there is a very helpful reference book by Sheila Rogers on Natural treatments for TS
http://www.latitudes.org/book.html

Greyhound 05-04-2008 09:49 AM

Quote:

Originally Posted by Chemar (Post 272424)
we dont use magnesium stearate tho as it is from my understanding more a filler than a well absorbed source of magnesium. It is usually added to most supps tho and often unavoidable

So it's okay to contain it, as long as the main magnesium it contains is a different type?

Quote:

Originally Posted by Chemar (Post 272424)
Did you take a look at mrsD's magnesium info on the Vits board?
that may really help you sort thru the different kinds of magnesium

Yes, but I'm still so confused about it all. I'm trying though :)

Quote:

Originally Posted by Chemar (Post 272424)
you mention taking St John's Wort and Inositol...I assume this is becasue you also have OCD,depression and /or anxiety? as they arent specifically tic reducers but rather help to boost serotonin

I think some of my complex tics are OCD-based.

Thanks a lot again for your help :)

Greyhound 05-06-2008 11:25 AM

Okay, I've reorganised the regime.

Currently:
300mg St. John's wort
30mg Gingko biloba
100mg magnesium citrate (started today)

However, I've posted a little about it on the Tourette syndrome forum I belong to and had a concerned member telling me he thinks I'm overdosing :-S

Greyhound 05-07-2008 12:59 PM

It would help if I knew which were more essential and exactly what each supplement does and which ones work with others (e.g. does taurine have to be taken if magnesium is and vice versa?)

For example, I know:
Magnesium can help with tics
Taurine can help with tics
St. John's wort can help with anxiety and OCD

But I don't know which (on a tight budget) I should try and which I should leave out (I'm referring to http://www.bonniegr.com/ts-PLUS%20CONTROL.htm )

I keep thinking of trying taurine, evening primrose oil and zinc, but I don't know.

Sorry for being constantly confused about this! :D

steamroller 06-05-2008 05:34 PM

Hello i'm 19 and suffer from facial and neck ticking. Really annoying. It was never really bad until like a year ago. I'm a male and currently experimenting with supplements and herbs. Also I looked at that girl bonnie website and why does she require you to take so many pills? Like for the vitamin its 20 pills? What is the logic behind this thank you. Also a possible conclusion my girlfriend had a yeast infection. We have been together for about 14 months and like i said it got worse a little over a year ago and thats when we started having sex could sex be the trigger of why it got so bad? I know yeast can be a cause. Well thank u for anyone who replies and helps.

Chemar 06-05-2008 07:12 PM

hi steamroller and welcome :)

Bontech supplements are formulated by Bonnie to deliver optimal amounts of the stuff people with TS need and the number of pills varies with age/weight

I put together my sons supps to be as close to what Bonnie recommends but he took far less pills a day with the combos we used.

Magnesium seems real important and I know of many people with TS who find the Natural Calm ionic magnesium citrate mix to be really helpful, along with the soaks for 20 minutes in epsom salts tubs (2 cups magnesium sulfate "epsom" salts in a tub of warm water-- best in evenings as very relaxing.)

re the rest, androgens and other steroid hormones are known to be waxing triggers for tics so yes, if the hormones are up then tics tend to be too

Candida clear by NOW is excellent for getting rid of yeast infection in the gut, which often leads to genital yeast infection outbreaks too. antifungal creams are best for topical yeast eradication, but the candida clear is really good for getting rid of the internal candida.

hope that helps.


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