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06-07-2008, 03:53 AM | #21 | |||
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Junior Member
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Quote:
As for the Bontech products, I would use them if I didn't have to pay loads for shipping (plus I don't think I need all the B vitamins, for example I think niacin gives me a prickly feeling). I'm currently trying*: magnesium citrate 300mg (400mg) zinc 30mg (45mg) vitamin C 120mg (180mg) B6 25mg taurine 500mg chlorella 3120mg (for chelating heavy metals, if any are present) acidophilus plus and Candida Clear (for possible Candida) Weekly (because of problems with the niacin): B1 7mg B2 14 mg Niacin 4.5mg B12 25µg * Amounts in brackets are for when the usual dose isn't quite enough. Soon I will try fish oil and possibly evening primrose oil. Also possibly grape seed extract, but it seems quite expensive.
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Provisional diagnosis: Tourette's syndrome. Self diagnosed: GID. Suspected: auditory processing disorder, slight associative synesthesia. Also: social, attention, organisation and time-management difficulties |
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06-13-2008, 07:54 AM | #22 | |||
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Junior Member
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I meant to ask - what do each of these do (in relation to your son, not just in general).
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Provisional diagnosis: Tourette's syndrome. Self diagnosed: GID. Suspected: auditory processing disorder, slight associative synesthesia. Also: social, attention, organisation and time-management difficulties |
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12-09-2008, 10:28 PM | #23 | ||
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New Member
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thanks so much for all that info on TS and supplements.
I looked into Bonnies formular, and it looks interesting. Is it expensive? Should I just buy the ones that you suggested? I am most active in in my son's autism. I Have been to a DAN doctore as well. We did the chealation therapy too. I need to target his vocal noises now, which is our main concern. thanks for all your help. Can i write to you privately, or should I just go by this list. I don't know how to get my messges here, I got this one, but who knows how? thanks angela |
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12-10-2008, 11:06 PM | #24 | |||
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Administrator
Community Support Team
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Hi
you are welcome to PM me or post questions here on the forum many people with TS have found that the amino acid l-carnitine is very helpful for vocal tics. Bonnie's supps are excellent and very well formulated for TS, but yes, it does get pricey and also a lot have to be taken. I found putting together our own combos worked best. But using the Bontech range cuts a lot of the guesswork and provides what is needed.
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~Chemar~ * . * . These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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07-04-2009, 12:44 AM | #25 | ||
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Hi Chemer, I wanted to thank you for all your great information. I just joined this group and I am trying to learn as much as possible about Tourettes, in order to help my 6 year old son.
I have been giving my son Magnesium/calcium/zinc and I've bought several of your other supplements that you recommended, but I don't know how much to give my son. Can you advise?? Thanks so much Jill Mom of 2 boys, 1 with Tourettes |
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07-04-2009, 07:04 AM | #26 | |||
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Administrator
Community Support Team
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Hi and welcome
it really is impossible to suggest doses at it depends on age, and weight as well as individual's specific needs. usually best to check with a qualified professional on dose in a young child generally over 12 yo/100 lb can take adult dose, half dose 6-12yo and 1/4 dose under 6yo I documented what helped my son, but not everyone has the same requirements, although extra magnesium does seem to be needed by most people with TS and there is current feeling that it may be better not taken in conjunction with calcium have you heard of Kid's Calm ionic magnesium supplement. I have heard very good reports on it calming tics in young kids. My son, now 19yo, takes the Natural Calm version each night and it really helps promote restful sleep as well. The Epsom Salts (magnesium sulfate) baths are another real help for tic relief
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~Chemar~ * . * . These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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"Thanks for this!" says: | khakis (04-09-2013) |
07-05-2009, 01:05 PM | #27 | ||
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New Member
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Hi there, I'm very new to this forum, and I am trying all these supplements that you suggested for my 6 year old son, who has TS, but I'm having trouble giving him the supplements becuase he can't swallow. Any suggestions. I gave it to him in a smoothie, and he is fighting tooth and nail to drink it. Thanks so much.
Jill |
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07-05-2009, 02:16 PM | #28 | |||
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Administrator
Community Support Team
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some people find swallowing supps by drinking accompanying liquid from a straw helps them to swallow
I know parents have used apple sauce or yoghurt successfully too did you see my post re the kids calm magnesium drink?perhaps he will like that and at least then you are getting the magnesium in
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~Chemar~ * . * . These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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12-17-2009, 01:45 PM | #29 | ||
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New Member
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My son has been on clonidine and topomax(for ts), also the daytrana patch for adhd. I am concerned about long term side effects, and appreciate your info on supplements. I will tt his neurologist about weaning him before I do anything!
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05-16-2011, 12:15 PM | #30 | ||
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New Member
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I would love to be able to get my son off the prescription meds and find natural alternatives. I am so grateful to find this thread and forum. Does anyone mesogold and TS? I noticed that Greyhound mentioned Candia Cure- does anyone else with TS have concerns about yeast? Thanks
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