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Old 05-07-2010, 08:07 AM #2
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Chemar Chemar is offline
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Chemar Chemar is offline
Administrator
Community Support Team
Chemar's Avatar
 
Join Date: Aug 2006
Posts: 28,459
15 yr Member
Lightbulb

Hi and welcome

I am not a doctor but it sounds to me like you are definitely dealing with PANDAS related problems. I know of a number of adults who still have PANDAS like exacerbations when they are either exposed to or reinfected by strep, as well as any OTHER infections, even colds and candida "yeast" etc

very few conventional doctors understand or even accept PANDAS and so you may need to find a PANDAS specialist in your area to get effective treatment. From my understanding, long term prophylactic antibiotics are key, with many seeming to prefer azithromycin-zithromax for it's immuno-modulating properties. But often it is trial and error to find the right antibiotic to be effective for the individual
A lot of the patients are also trying IVIG and PEX with apparent success

I will send you a PM with info on how to connect with another adult who is still dealing with PANDAS, as he may be able to give you some pointers

in the meantime, here are some websites with a wealth of PANDAS info that may be helpful to you, even tho their focus is on the pediatric aspect

http://www.pandasnetwork.org/index.html
(premier resource for PANDAS info with especially excellent info in the left menu under the "Buster's Corner" tabs)

http://www.webpediatrics.com/pandas.html
(this is the website of one of the PANDAS specialists Dr. Kovacevic)

http://www.christianpost.com/blogs/h...-09/index.html
( a simple but clear explanation of PANDAS)


http://www.pandasresourcenetwork.com/index
(new site by Lynn Johnson (mom of Lauren, the "sneezing" girl) and Dr. Denis Bouboulis)

hope that helps a bit
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Last edited by Chemar; 05-07-2010 at 09:03 AM. Reason: adding extra link
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