Hello everyone,
I am a 15 year old female who has had motor tics since I was 2. I started having chronic motor and vocal tics in grade 5 and have been diagnosed with Tourette's Syndrome this year. In this 6 (ish) months, I have had "flare ups" or episodes that look a lot like dystonic symptoms. They are by no means chronic, as I only get them with very high stress/anxiety levels. They happen in my hands, back, arms, and sometimes legs and face. Most of the time they last a few days where it will be locked in a vey uncomfortable and unnatural position or it will go away after my massage therapist spends some time on it! I also had a(n) episode or reaction this winter, I have no idea what it was, niether does any doctor I see including specialists, er doctors, psychiatrists, and neurologists. I was convulsing and rock ard everywhere and not respondng. My tongue was stuck out and my eyes were rolled up and I remember NONE of this. I am wondering, does this sound like anything anyone has ever experienced before? I've had tests done to confirm it is not a type of seizure. Is it maybe just severe Tourette's? Dystonic tics? Dystonia? Something else I'm unaware of? Any opinions would be great! Also, I'm on a very low dose of Clomipramine for anxiety/depression but it doesn't seem to have an effect on it.
Thanks!
Emma