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-   -   New to TS... (https://www.neurotalk.org/tourette-syndrome/163118-ts.html)

Spanish Moss 01-14-2012 10:33 PM

Quote:

Originally Posted by Lara (Post 839820)
Hi again Jasmine.

I went to a TS conference in D.C. in 1998. I don't know how many people were there, maybe 500 or more in the one room, but it was a real tic-fest (and I mean that in the nicest way)... tics can be quite catchy indeed. :)

What an amazing experience that was, Lara! I remember walking in the opening session with hundreds of ticcers - like a wave of movement and sounds - and Ed saying "I hope my tics don't bother anyone". :D He talks about that conference as a "tic smorgasboard...all you can tic".


Welcome, Jasmine. I hope you find the support and maybe the answers that you need here. I don't have TS but I am in the minority in my household. My husband, now our 7 year old daughter and our 6 year old son is showing some minor tics. I have 2 grown children whose tics have waned.

anon20160311 01-30-2012 05:41 PM

Quote:

Originally Posted by jnt1989 (Post 839424)
I was diagnosed with TS this past May.
....I worked at Pizza Hut for a few years.
....After I changed jobs a year and a half ago, it got way worse!
....I was supposed to see the doc last week to see what else we could do besides meds, but it turned out that the only thing she planned on trying was botox
....I'm afraid that I'm going to end up losing my job because of days missed or something.


Read this from Neurosurgeon Dr. Jack Kruse:
http://jackkruse.com/primal-cpc-1-to...nary-medicine/
..

jnt1989 02-16-2012 12:14 AM

A bit of an update...

So, my doc started me on sertraline for my mood swings. She's gradually upping it...still at a low dose, though. The idea was that maybe if my moods weren't so up and down, maybe my tics wouldn't be so bad. Well, moods aren't getting any better. I'm not having a problem with tics now, though. I mean, a few insignificant ones here and there, but nothing major.

Well, I started seeing a therapist again just for an outlet of sorts. She thinks I might actually be bipolar. I'm just so up and down now...it's like I'm on a rollercoaster and I'm not sleeping well. So, if it's not one thing, it's another.

Hope y'all are doin' well...

Lara 02-16-2012 01:08 AM

Jasmine, it's very good to read your update. Sometimes getting those other issues under control does help the tics wane. It's great you're taking these steps to sort through everything. Hope you get some good sleep soon. Keep in touch and let us know how you're getting on there.

take care

jnt1989 02-24-2012 08:42 PM

Been sleeping MUCH better...well, except for last night cuz I got really hyper last night.
I tried to email the doc to let her know how it's goin' with the sertraline like she asked me to, but no respone. So, I don't know.
Decided to learn to crochet. Only, mom can't remember how to do it right. I've just been messin' around with it. It's actually really relaxing. It gives me something to do with my hands (which I really need). So maybe havin' something to do that I can actually work on will be good.
I'm trying to get a roadtrip set up and planned for this summer too. A week long vacation with my sister and my grandma...if I can get off work. I just really need a break and a chance to just escape this everyday mundane life and relax! I guess I've been a little worried about my tics flaring up on the trip, but oh well. I'll just have to deal with it...and make sure I pack my meds! Lol! I'm really excited about it and it's givin' me something to look forward to where I've had nothing to look forward to or be excited or happy about for a while! So, things are lookin' good! If only the doc would email me back so I don't get really frustrated over not getting any response...

Lara 02-24-2012 08:51 PM

Hey Jasmine!

Sounds from what you've typed that things are going way much better. That's wonderful news.

I just had a look online and there are some video tutorials if you want to learn to crochet.

When my son was little and his tics really bad, I bought him origami paper and books and he would find that really relaxing too. Gosh, he got so good at it really fast. He did that for a very long time. To other people the amount that he made may have seemed a little excessive lol but it really did help him a lot.

The road trip sounds great, tics or not. Might be just what you need right now.

Hope the doc. gets in touch soon.

Take care there and keep up the good work. YAY I love good news.

EDITED to ask...

Do you play any type of musical instruments at all? Piano. Guitar? That would keep those fingers busy too.

jnt1989 02-24-2012 10:44 PM

No, I don't play any instruments. I sing, but that ain't gonna keep my hands busy! Lolz!
When I get paid next week, I'm gonna see if I can find some books or something. I think my aunt knows how, but we don't get to spend a lot of time together. Maybe asking her to teach me will give us a chance to spend some time together. I don't know. Anyway... I don't know. I have so many ideas about what I want to do this summer, and I know only so many of them can actually happen! And then I wonder how long it'll be before I get bored with these projects and plans and how many will actually get finished.

Lara 02-25-2012 12:19 AM

No, singing won't keep your hands busy, but it is relaxing. :)

One step at a time. Don't think you're alone by having many plans and ideas that don't always end up being done for whatever reasons. Happens to all of us I think.

jnt1989 03-13-2012 08:26 PM

Woohoo! :D
I'm going to the eye doctor to get some contacts Thursday! I haven't been able to wear them for a long time because the constant blinking and squeezing my eyes shut really hard all the time really bothered my eyes when I wore them...but I'm giving it a try now that the tics seem to be under control for the most part.
My brother looked at me like I was stupid cuz I was so excited, but hey, it's a big deal for me, and I'll be stinkin' excited if I want! (Well, just not TOO excited! Haha!)

Lara 03-14-2012 02:52 AM

Hey, that's really good news, Jasmine.
Contacts are great. You've obviously had them before from what you wrote, so you would know how they feel at first. You certainly do have reasons to be excited. Go for it. Thanks for your update.


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