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Old 04-26-2007, 05:51 PM #11
Lara Lara is offline
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I'm a little confused about all the fish oil information because I distinctly remember friends and their children having trouble with fish oil exacerbating tics and restlessness.

Someone on one of my autism forums asked about fish oils recently. There was a lot in the news last year here where I live regarding a study that had been done for ADHD (NOT TS). I think she did it in conjuction with people in England who had done the so-called Oxford study. I'll go look to try to find what was asked. I think the Aus. study used combination oils in a particular ratio.

http://www.unisa.edu.au/researcher/i...ary/story4.asp
"“Children in the study were given combined fish/primrose oil capsules or placebo oil capsules."

I swear they said the ratio they used somewhere but can't find it.

http://www.unisanet.unisa.edu.au/sta...e=Natalie.Sinn

http://www.ncbi.nlm.nih.gov/entrez/q..._uids=15867048
Pediatrics. 2005 May;115(5):1360-6.
The Oxford-Durham study: a randomized, controlled trial of dietary supplementation with fatty acids in children with developmental coordination disorder.
Richardson AJ, Montgomery P.

Here is the original article that had sparked the conversation about the fish oils etc..

http://www.boston.com/news/globe/hea..._babies_lives/
Basically this story is about something called Omegaven which was being used for children who had a particular medical illness called short bowel syndrome who have major absorption problems and were getting serious liver damage from some of their other previous treatments. They found that this Omegaven helped the liver.
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Old 04-26-2007, 06:10 PM #12
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Regarding TS and Fish oils as opposed to ADHD.

No word on these studies they were doing yet as far as I know. Anyone else heard any results??

http://www.tsa-usa.org/research/docs...ant_awards.pdf

Title: A Double Blind, Placebo Controlled Study of Omega-3 Fatty Acids in Children and Adolescents with Tourette Syndrome — Year 2
Award: $75,000
Vilma Gabbay, M.D.
Barbara J. Coffey, M.D., M.S.
Carmen Alonso, M.D.;
New York University Child Study
Center; New York, NY


"There is considerable evidence suggesting the involvement of
serotonin dysfunction in both disorders, along with an autoimmune
inflammatory process in a subgroup of children with TS and OCD.
There are also scientific data suggesting that serotonin dysfunction
is triggered by inflammatory mediators such as cytokines. Omega-3
fatty acid appears to act by down-regulation of pro-inflammatory
cytokine production and through pro-serotonergic activity, thus
addressing some of the pathways implicated in the basic causes of
TS and OCD."
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Old 04-26-2007, 07:58 PM #13
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Quote:
Originally Posted by Tessa View Post
Hi Mrs. D,

I will get her books from the library !

A few questions.....why the concentration in the Omegabrite-what do you think? And why do you use the enteric coated-for the "burps"?

Thanks,
Tessa
Dr Stoll believes that Bipolar responds more to EPA than DHA.
I think ADHD responds more to DHA than EPA. But there is some evidence that inflammation in ADHD--like allergies--may do better with EPA. There are also papers about depression and DHA as well.

We are not talking major issues here anyway.
The enterics we use are double strength...stronger...so burps may happen more commonly. They don't for us anymore, but why try to swallow 2 large capsules when one will work? And at the same price?

For people with inflammation, OmegaBrite is a good choice. But I don't think it is an end-all for everyone.

I think it is important just to do SOMETHING... we started with regular old fish oil and it worked. As you go along, you can choose to try another etc, like we did.
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Old 04-26-2007, 08:11 PM #14
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Lightbulb Lara...

That Omegaven story concerns TPN (total parenteral nutrition) IV for babies with defects of the GI tract. These babies cannot eat for a long time while surgery and healing fix the defect. Typical TPN mixtures did not include omega-3s....and the babies died of liver failure.

By putting Omegas in the TPN they survived. Now I am somewhat dismayed that this was not figured out long before. We now have omegas added to baby formula ..why would any TPN mix be any different in need? eh?
It is sort of the left hand not knowing what the right hand is doing in medicine.

EFAs are ESSENTIAL... why is essential so hard to understand? Well, at least they are putting them in the IVs now.

There is a post in our Vitamin forum that discusses this...
http://scholar.google.com/scholar?hl...to+d2+receptor
This has to do with dopamine binding and TS... which I think is a special case.
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Old 04-26-2007, 09:01 PM #15
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Thanks mrsd!

Yes, I understood the treatment and reason in that story when I read it.

I'll go read the url you sent me. Sounds interesting. I just don't understand why fish oil would make some people more ticky than others if you know what I mean. I can see from the studies that people are finding it helpful for ADHD, but not everyone with TS has ADHD. I'm just trying to figure something out.
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Old 04-28-2007, 09:43 AM #16
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Mrs. D,

Thanks for the info ! I have been thinking about switching brands. With a son entering college we are looking at cost saving measures, too ! I do recall you mentioning Costco as a source for supps and will check out one not too far from here. Is there a particular brand that you use?

Regarding tics and fish oil....I do recall many interesting threads on the old forum discussing this. Very strange how some folks react differently to fish oil. I, for one, see an improved change in tics and restlessness in both of my sons (One with TS, one with an occasional tic and neither with ADHD) using fish oil (Bonnies brand-Bontech). I think it is great overall for many things. My TS son had GI issues which I believe were helped greatly by this along with probiotics and magnesium taurate (along with his routine vits).

I haven't heard any more about the TSA sponsored study (the one authored by Coffey and colleauges). I sure would like to, though.

Thanks, ladies. have a great day !

Take care,
Tessa
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Old 04-28-2007, 03:37 PM #17
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Hi Tessa

yes, my son is one of that subset of TSers who cannot take fish oil as it makes them tic more.

He gets his omega 3s from flaxseed oil and products, as well as wild alaskan salmon, which he loves and eats often.

It is interesting to me that those people who dont tolerate fish oil supplemnts, for the most part, are fine with eating fish
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Old 04-29-2007, 05:54 AM #18
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Dr Weil's newsletter today talks of the benefits of fish oil for OCD
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Old 04-29-2007, 10:17 PM #19
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Yes, it does.
However...

I'll try the counselling, and I'll try the fish oil but there's no way I'm going to take magic mushrooms especially for OCD. LOL! (can't stop cackling. The cat thinks I've gone insane)

It's down near the end of the article.
Someone tell me that is not real. Please.
__________

OK, I stopped laughing in disbelief and checked around and frankly I just can't believe that psilocybin would be good for anyone or anything particularly someone with severe OCD. I find the whole suggestion frightening.


http://www.ncbi.nlm.nih.gov/entrez/q...arch&DB=pubmed
: J Clin Psychiatry. 2006 Nov;67(11):1735-40.

Safety, tolerability, and efficacy of psilocybin in 9 patients with obsessive-compulsive disorder.
Moreno FA,Wiegand CB,Taitano EK, Delgado PL.

Department of Psychiatry, University of Arizona, Tucson, USA.
____________

http://news.bbc.co.uk/1/hi/health/6210694.stm
BBC UK
Monday, 11 December 2006, 07:31 GMT
Psychedelic drug 'hope for OCD'
By Arran Frood

Quote:
Serious doubts

But critics say the study's flawed methodology means that conclusions cannot be made about the drug's efficacy against OCD, and some question whether it should have taken place at all.
Quote:
I'm concerned that the study only measured effects up to 24 hours and OCD is a chronic condition
Dr Paul Blenkiron -Bootham Park Hospital, York
Quote:
I'm very concerned that people with obsessional problems who experience bursts of nasty images, are being given a drug known to produce intrusive mental phenomena
Professor Paul Salkovskis - Maudsley Hospital Centre for Anxiety Disorders
Quote:
But because there was no group given a different drug or no drug at all to compare them to, the benefits could have been simply due to care and attention from the researchers.

Last edited by Lara; 04-30-2007 at 02:46 AM. Reason: to give directions
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Old 04-30-2007, 07:52 AM #20
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phew! for a moment there I thought you were referring to Dr W recommending magic shrooms, Lara! Then I saw your link and quote from another article

yes, I agree.......OCD is quite enough to deal with without adding hallucinogenic stuff to the mix eh!!
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