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Old 02-05-2014, 10:59 AM #1
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Hi Katy
have they checked Ash for possible PANS? Not saying he has that....but imo always worth checking into.

PANS is a condition where tics, OCD and other neuropsychiatric symptoms can manifest as a result of infection, often (but not limited to) strep. TS and PANS are not mutually exclusive as someone with TS can have exacerbation due to infection.

There is a lot of info coming out about how many kids are misdiagnosed with Ts or with psychiatric disorders when in fact they have PANS

This site gives info about it http://pandasnetwork.org/
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Lara (02-21-2014)
Old 02-05-2014, 01:36 PM #2
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Default Hi and thanks for the reply guys

Lara yes he has a iep and statement.I think school jus want rid tbh they cant cope with his emotional and anxiety state.My parent partnership officer is trying to fight for a specialist to b employed to com to his school and support ash and looking at a top shrink who deals with severe mental issues to get involved .my mind is swirling with all whats being said.My officer thinks he could b autistic too as she has read all his reports and looking at autistic specialist to come in.

Cham no pands hasnt been explored i will read your link thanks.
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Old 02-14-2014, 10:36 AM #3
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Default Sighs

Now been excluded from school yet again
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Old 02-21-2014, 03:00 PM #4
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What's happening way over there, Katy? Sorry I've not been around lately to ask you.
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Old 02-22-2014, 04:32 AM #5
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Default Hi lara

Hope u r ok Lara xx well im waiting for a meeting to take place at the special needs meeting called senap they discuss statementing and statmented children they will decid how they can help ash at school but i fear the school just want him out and ash is picking up vibes because he said they dont care about him anymore cos he can tell.He gets depressed alot and says things like he wishes he was dead he has had a couple of bad meltdowns this week as it is the school holidays .So i will learn his fate on wednesday if he is going to stay at that school or if he has to go.still waiting 4 adhd med his blood pressure had to b checked cos it kept showing a high reading cos he gets so stressed when they use monitors etc and he fears they going to do a blood test anyway they finally got a better reading but i have concerns about the med i need to voice first before i allow them to adminster it.Whats happening at your end Lara x
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Old 02-23-2014, 02:48 PM #6
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Hi Katy,
Here's hoping that some helpful recommendations come out of this meeting. It's really concerning that your son is so down but with so much going on right now it's good to know he's at least talking to you and letting you know how he's feeling.

Crossing fingers for a helpful outcome from the meeting.

All good here. Feels as if it's been the longest summer ever. Very tiresome really, but that's weather.
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Old 02-25-2014, 04:05 PM #7
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Quote:
Originally Posted by Lara View Post
Hi Katy,
Here's hoping that some helpful recommendations come out of this meeting. It's really concerning that your son is so down but with so much going on right now it's good to know he's at least talking to you and letting you know how he's feeling.

Crossing fingers for a helpful outcome from the meeting.

All good here. Feels as if it's been the longest summer ever. Very tiresome really, but that's weather.
Hope so lara fingers x glad u n your family okx sometimes we get so full of our own probs we forget to ask how the other person is doing.Thanks 4 your support here it is so very appreciated sometimes i am that worn out and at the end of my tether when ash has these horrible meltdowns i feel like im out of my depth xx
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