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Old 01-26-2014, 07:47 AM   #1
Katy4565
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Default What else

My son has now been diagnosed with 4 disorders sighs.....how many can one child have The doc observed ash in school and now diagnosed him ocd/tourettes/anxiety/and now adhd and putting him on med for it.They also noticed sensory which i knew already an invited me on a 6 wk course on sensory difficulties.They putting autism on the back burner also ......The list goes on
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Lara (01-27-2014)
Old 01-27-2014, 02:23 PM   #2
Lara
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Hi Katy,
I had been thinking of you and wondering how everything was going.
Thanks for the update, but I'm sorry it's all so very complicated right now.
Which med is the doc prescribing for ADHD?


p.s.

http://www.sensoryintegration.org.uk...-everyday-life
Sensory Integration and Everyday Life - from UK SI Network

http://www.tourettesyndrome.net/diso...dysregulation/
Sensory Defensiveness or Sensory Dysregulation - from TS "Plus"
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Old 01-28-2014, 02:10 PM   #3
Katy4565
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Default Hi lara

Thanks 4 thinking of me means alot to mex The med they r putting on isnt the regular ritalin but another one beginning wiv A they said ritalin would make the tics worse.We av to wait two weeks cos they upped his sentriline to 150 mg but it never helped so now we av to go bk to 100mg by 25mg one week then another 25mg this week then nxt week we start the adhd med.I was abit shocked by the extra diagnosis cos i didnt think he was .My eldest son had adhd and Ashley has far worse problems and they are different.Thanks 4 links lara xx how r u sweety an your family?
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Old 02-02-2014, 05:00 PM   #4
Katy4565
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Default Things get worse

Ash has been put on a risk assessment form at school he lost control in a lesson and went out of school in agigitated state and teachers had to find him he was punching walls and very distressed.
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Old 02-04-2014, 03:30 PM   #5
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Looks like ash may have to go to a specialist school as his mainstream have said they struggling to support his needs sighs....
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Old 02-04-2014, 07:24 PM   #6
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What's your gut feeling about why he's be having these meltdowns in class? I'm wondering what sort of modifications have been put in place for your son in the mainstream classroom that he is in now. There are so many tiny things that can be done to help a child in a mainstream classroom but I don't know if your school has put any of those in place.

Does he have an IEP already?

What needs are the school addressing right now that they don't think they can continue?

Do you think that maybe a smaller class and more one on one support might be what he needs at this particular moment in time?

Katy, I have absolutely no idea how your education system works in the UK, but I would imagine it would be pretty similar to how it works in the US or other places regarding a child who needs specific modifications in the classroom. It's actually not that hard for a school/teacher who is clued in to address certain needs he might have. Nothing is static. Your son isn't necessarily going to need the same support in a year as he needs now.
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Old 02-05-2014, 09:59 AM   #7
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Hi Katy
have they checked Ash for possible PANS? Not saying he has that....but imo always worth checking into.

PANS is a condition where tics, OCD and other neuropsychiatric symptoms can manifest as a result of infection, often (but not limited to) strep. TS and PANS are not mutually exclusive as someone with TS can have exacerbation due to infection.

There is a lot of info coming out about how many kids are misdiagnosed with Ts or with psychiatric disorders when in fact they have PANS

This site gives info about it http://pandasnetwork.org/
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Old 02-05-2014, 12:36 PM   #8
Katy4565
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Default Hi and thanks for the reply guys

Lara yes he has a iep and statement.I think school jus want rid tbh they cant cope with his emotional and anxiety state.My parent partnership officer is trying to fight for a specialist to b employed to com to his school and support ash and looking at a top shrink who deals with severe mental issues to get involved .my mind is swirling with all whats being said.My officer thinks he could b autistic too as she has read all his reports and looking at autistic specialist to come in.

Cham no pands hasnt been explored i will read your link thanks.
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Old 02-14-2014, 09:36 AM   #9
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Default Sighs

Now been excluded from school yet again
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Old 02-21-2014, 02:00 PM   #10
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What's happening way over there, Katy? Sorry I've not been around lately to ask you.
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