I saw that, ives.
It's very difficult to be able to say really.
My first impression was that when he was sucking on the bottle he was feeling comfy and sleepy like little children do when they're doing that. His eyes are blinking.

Eye rolling _can_ be a tic. My son has never had seizures but had a lot of eye tics indeed. He even had eye tics where one eye went one way and the other eye went the other. Eye tics generally are a pretty common tic too from what I've seen in the TS community. My son's eye rolling and deviations lasted months but went away. His core eye tics still remain to this day although they're pretty mild now. Opthamologist said there was absolutely nothing wrong with his eyes, his eye muscles or anything else. He also wasn't having seizures. Eye tics, because they can be a sign of something else, are something that really needs the investigation that you're getting with the EEG although I don't know too much about that

http://tourettenowwhat.tripod.com/al...cs.htm#TicList
List of common tics.
http://www.tourettesyndrome.net/Files/CommonTics.PDF
Common Tics
Those lists are just guides, they don't include all possible tics.

Rolling of eyes and those other things _can also_ be part of seizures. You're doing the right thing to sort it out. However, those eye rolling and other eye movements CAN also be tics.

Thanks Lara, I also just saw your post in the Epilepsy forum :)


Also, I have one more TS question.... what do people with TS do in their sleep? He tics even when he is half asleep... barely awake but the noises stop the second he falls asleep. I do see some movements while sleeping but that could be normal in people that don't have tics I think. He came into my bed a little while ago and went back to sleep so I was watching him sleep. His hands, feet, and shoulders would twitch (not at the same time). Don't know if it's related to anything or not. I really didn't watch him that long, I got up and ran out here to post this! I don't know that he does that all the time. I'll have to watch him more sometime in his bed.

hi Dawn

my son doesnt tic at all when he is asleep, although he can sometimes have a sudden burst of them just before falling asleep

I just posted this on the E forum as well re the videos you took (god job on those as they will be very beneficial to the doc )

Thanks Chemar :)

I was just watching my daughter sleep and she had some twicthing as well, and she has NO tics when awake. So I think what Anthony was doing could just be normal things that people do while sleeping.

Some people tic in their sleep mildly and some people don't at all. There was another post about that here somewhere. If I find it I'll post the link. There are other movements people can do in their sleep, apart from just moving around I mean, but in a 4 year old I don't know whether that would be so common.

The period of time prior to falling asleep can be a time when tics are increased. You sound a lot like I did when my son was little. I used to watch him sleep too because I was scared. We had been told he could have some shocking things and I was frightened out of my mind. I used to sit in a chair beside his bed at night some nights. By the time my daughter started having her tics it wasn't a very big deal in comparison because at least I knew what was happening.

The hardest part, and what you're going through now until you get the test results, is just not knowing. Your appointment is tomorrow I think. Hopefully that will give you some answers and rule out any epilepsy concerns. If it doesn't, then at least you know what you're treating and that can begin immediately. I'm with Chemar... you need a professional diagnosis. The neuro. you're seeing sounds as if she's doing all the right things.

Thanks for the info, Lara.

The EEG is actually Wed. I'm glad it is so soon. When I was at the neurologist's office, I asked how long it usually takes to get in for an EEG (done at a different location, the children's hospital) and the receptionist said it probably wouldn't be until late August to September! :yikes: The neuologist was surprised and asked "WOW is it really taking that long!?" She said they are really busy and there is only one dr doing them right now. So I don't know whether I just got a REALLY lucky break and there happened to be a cancellation right before I called, or if the dr called and said we can't wait til September. Hmmmmm. I'll never know though.

Anyway, I called the neurol and asked if there's an email address and there isn't... BUT I just put those videos on a CD-R and I'm mailing them today so she can see. Hopefully she watches them!

G'day ives,
Just wondering how everything is going there. Hoping for an update when you get time.
I'm a day ahead of most of you (I'm in Australia) and I'm not sure if your appointment was last Wednesday now or next Wednesday.
Look forward to hearing from you.

Hi Lara :)

It was yesterday, but I haven't heard anything about it yet. I have to wait for the dr to read the test and let me know. Hopefully it will be soon. But I don't know if she is going to call me to tell me, or if she is going to type out a report to mail to me. Hopefully she'll call so it will be faster.