Tattoomom, Rice Dream used to have the message about the barley. Now it doesn't and it is labelled "Gluten Free" instead. I called the makers of Rice Dream to get it figured out and they said it is considered gluten free, something about the new technology they have now to be able to test it differently. I'm really not sure of the specifics, you can call them to ask more about it. How long has your son been gfcf? Does it seem to help his tics?

As an update on my son....... his tics picked back up a few days before he started school. I figure it's just things changing/stress or whatever. He's now been in school since 8/30 and I'm not seeing many tics at home, some blinking but not a lot and no vocal. I wrote a letter asking his teacher what she sees at school though, and she says he has the blinking and vocal "a lot, almost constant". Yikes. Wish it was the other way around- better at school, worse at home- but oh well.

I brought him to his neurologist on Monday and she asked about his tics... I told her he has blinking, the vocal "hm" and a lip licking which made his lip red/chapped for a while there but has since gotten a bit better. Anyway, she said that's not a tic, but rather it's sensory...?????? huh? Anyone agree with that, or does it seem like a motor tic?

We have had our nine year old son on a gf/cf diet for three months now. We were very hopeful at first. But it's very difficult to follow and you can drive yourself crazy trying to figure out what he reacts to and what he does not. I can say I have not seen any real positive changes. Now my son is almost paranoid about what he eats. I don't know if that's a good thing or a bad thing. I feel he has enough going on right now, he shouldn't have to worry about everything little thing he eats.

Hi
I also posted this on the other thread but usually only people who have allergies/intolerances and sensitivities to foods benefit from eliminating them

did you eliminate wheat and gluten foods becasue your child tested allergic to these or just to see what would happen?

the only food restriction that we have is artificial chemical additives as my son doesnt have other food allergies

We went to a holistic doctor who put Jacob on all kinds of suppliments which most of them I thought made sense. We have not had Jacob tested for any type of food allergies but the Dr. insisted on a W/G free diet very little carbs and no dairy! Whats left?? We followed it for a while but my son is quite thin he only weighs 60lbs. So we put him back on dairy. The Dr. reasoning something about yeast candida in the intestines causing some reaction with the brain? But so far I don't think there's any relation. But it was worth a try. Right now our biggest problem seems to be my son's behavior at school. He is becoming a big distraction he talks all the time while the teacher is trying to give a lesson. He makes jokes and acts silly. He was never like this before. I don't know how much of this behavior he can control . We switched meds from keppra to tennex. The Dr. said that should also help with his behavior. I don't know.

Hi Lori

have you had candida testing? Candida really can trigger all kinds of things.

here is a non scientific diy test for it
http://www.1stcandidacure.com/candidatest.html

it isnt conclusive but does give an indication if candida may be present

there is an excellent book called The Yeast Syndrome that has info on it and also receipes for a candida cleansing diet

we have found Candida Clear by NOW to be an excellent supplement to eradicate it