hehe...i wondered when you would figure it out.

Hi everyone,. I hadn't been on Braintalk for several months and then when I needed it, it was gone. Very disconcerting. I'm really happy that this site is here. My son had a few months of really scary rages and refusing to take supplements. Right now, we are back on track. We even found a school with great lighting, wood floors and no chemical odors. He's not in yet and I am wondering how to bring up the rages. So far, there has only been one time, where he has raged outside of our home. How have other people broached this topic? This is a private school for gifted children. I am afraid that this would disqualify him and it is the only school that I have found that is not physically toxic to him. I am really tired of homeschooling Laurie

Hi Laurie how nice to see you here.
If you happen to have contact with any other folks from BT do let them know about these forums too

I know we all have to do things according to what works best for us and our children, so my style may not be right for you, but I have always been really upfront and honest with school people about my son's needs and health etc
I am a bit of a mommy lioness when it comes to ensuring that all school personel that he comes in contact with understand fully about TS and the co-morbid conditions that he has, and I have found that this approach has really prevented any misunderstanding or incorrect accomodations etc.

Important tho to remember that our kids frequently dont "let it all out" when they are at school or in other social environments...they save it all up for us!! which is actually somewhat comfirting to me, that my son feels safe and able to jsut release it all when at home (obviously within limitations of the need to maintain some self control and respect for other family members)

sooooo
maybe just take a wait/see approach at first and then ask for a meeting with the principal and teachers to discuss those issues which seem to be relevant, of which I believe the explanantion about TS is usually necessary. If he is not exhibiting the rages at school, then IMHO leave well enough alone.

let us know how things go! and congrats at finding a school that sounds so great environmentally

Hope everyone remembers me- been a long time for some of us. I've been around forever, just am not always talkative! I just found this board as here today!

Anyway, I have a 12 yo with ADHD, OCD, Sleep disorder, tics, etc. She's been variously dxed over the last 8 years or so with many different meds. The last thing that seems to be happening is that ADHD meds drive OCD but there is no other way to handle her ADHD, so she is on minimal adderal and clonidine at night.

I also have a 10yo son who is deaf in his left ear, wears aids, and has been dxed with TS. TS so far is not medicated and is mild mostly. This dx was in March finally.

Just figured I'd give the intro here briefly! I remember lots of your names!

Hi Vrie

so glad you found us

Hi guys,

I changed my name a bit...I think most will still know me when they see my new username...I will pop in when I can to post...I have missed the old BT and I am happy to see everyone. John Lester did send out an email saying the old BT would be back soon...let's hope all of the previous posts will be there...so much information...a shame if it is lost! Take Care, Ronna

Hi Ronna what a treat to see you here.

It would be great if you get some time (huh! time! what's that eh!! ) to give a PANDAS 101 thread here. Yes, I agree it would be a shame to lose all that info on BT1 but,even if BT1 comes back online, many people will be staying here, or visiting between the two, and so it would be so helpful to have some good PANDAS posts here from folks like you who know what it is all about.

BTW, you can access the cached versions of your old posts at BT1
Here is a thread on info on this
http://forums.braintalk2.org/showthread.php?t=1699

I just didnt feel comfortable going in and taking your wealth of info and posting it here, so sure hope you will in whatever form time permits (time? time? there is that elusive thing mentioned again )

luv ya
Cheri

I will for sure try and put together a thread this weekend. HMMM...I can't seem to get to my old posts...I don't see the "cached" thing but I will keep trying.

Hi Everyone,

I had to change my name for Mustang Carole to White Horse.

I have 2 sons with tourette syndrome and more so hope to
add some pearls of wisdom to help others out there.

Take care,
White Horse

((((Carole)))))
nomatter what your name, YOU are very welcome here!