NeuroTalk Support Groups

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-   Tourette Syndrome (https://www.neurotalk.org/tourette-syndrome/)
-   -   Welcome Friends! Roll Call, Please. (https://www.neurotalk.org/tourette-syndrome/36-welcome-friends-roll-call-please.html)

Dory 09-15-2006 11:00 AM

:D Mmmm, Chocolate and Coffee- it's what I live for!!

Tessa 09-16-2006 10:18 AM

How great to see more folks here!! I've started a new job and have been SUPER BUSY!!!!!:eek: so haven't been here much.

Welcome back Mrs D and Lara!! The toad looks totally disgusted with all of the attention :p !

Welocme Dory....seems to me that you posted at the old BT?

It is so very heartening to see BT2 rising from the memories of the old BT.

Have a great day all! :)

Take care,
Tessa

PS Thank you to all who helped make this happen!

carolyn_lsc 09-18-2006 04:38 PM

Hi Everyone :)

I'm here now too.

For anyone that doesn't know me. I'm 21 with TS.

Carolyn

Chemar 09-18-2006 09:01 PM

Hiya Carolyn
great to see you here:p

FeelinGoofy 09-19-2006 08:08 AM

Dory,
Did i read in a different place here that you are from Oklahoma? Thats where i am!...... I have a son who is 16 with tourettes....
edited to say i just went back to the other thread and checked and it was a diferent "dorry". :o

Dory 09-19-2006 08:27 AM

:) Hi,
Yeah- it's a different Dorry. I'm in Ontario, Canada.
-thinking about changing my name to avoid confusion:D

Laurie 09-21-2006 09:47 AM

Very happy to find this!!!!!!!!
 
Hi everyone,. I hadn't been on Braintalk for several months and then when I needed it, it was gone. Very disconcerting. I'm really happy that this site is here. My son had a few months of really scary rages and refusing to take supplements. Right now, we are back on track. We even found a school with great lighting, wood floors and no chemical odors. He's not in yet and I am wondering how to bring up the rages. So far, there has only been one time, where he has raged outside of our home. How have other people broached this topic? This is a private school for gifted children. I am afraid that this would disqualify him and it is the only school that I have found that is not physically toxic to him. I am really tired of homeschooling Laurie

Chemar 09-21-2006 11:05 AM

Hi Laurie :) how nice to see you here.
If you happen to have contact with any other folks from BT do let them know about these forums too

I know we all have to do things according to what works best for us and our children, so my style may not be right for you, but I have always been really upfront and honest with school people about my son's needs and health etc
I am a bit of a mommy lioness when it comes to ensuring that all school personel that he comes in contact with understand fully about TS and the co-morbid conditions that he has, and I have found that this approach has really prevented any misunderstanding or incorrect accomodations etc.

Important tho to remember that our kids frequently dont "let it all out" when they are at school or in other social environments...they save it all up for us!!:p which is actually somewhat comfirting to me, that my son feels safe and able to jsut release it all when at home (obviously within limitations of the need to maintain some self control and respect for other family members)

sooooo
maybe just take a wait/see approach at first and then ask for a meeting with the principal and teachers to discuss those issues which seem to be relevant, of which I believe the explanantion about TS is usually necessary. If he is not exhibiting the rages at school, then IMHO leave well enough alone.

let us know how things go! and congrats at finding a school that sounds so great environmentally :)

Tessa 09-23-2006 01:12 PM

Hi Laurie,

How are you?

I agree with Chemar, however, being the realist I think I'd wait until after he started and settled in. That way they'll know him and be more invested in him. Kids at private schools have issues, too, but the schools do have the final say on admission so I'd wait just a bit.

Once he's started, see who the "point person" is....the guidance counsellor or adjustment counsellor and then set up a meeting.

Good luck and let us know how your son likes it.

Take care,
Tessa

Vrie 09-28-2006 06:34 PM

Saying Hi again
 
Hope everyone remembers me- been a long time for some of us. I've been around forever, just am not always talkative! I just found this board as here today!

Anyway, I have a 12 yo with ADHD, OCD, Sleep disorder, tics, etc. She's been variously dxed over the last 8 years or so with many different meds. The last thing that seems to be happening is that ADHD meds drive OCD but there is no other way to handle her ADHD, so she is on minimal adderal and clonidine at night.

I also have a 10yo son who is deaf in his left ear, wears aids, and has been dxed with TS. TS so far is not medicated and is mild mostly. This dx was in March finally.

Just figured I'd give the intro here briefly! I remember lots of your names!


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