Originally Posted by Luke's Mom

Hi all,
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I believe Chemar mentioned the med Abilify in an earlier thread. The neuro did take Luke off of clonodine and prescribed Abilify instead. But, after three days, I have to say Luke feels terrible. His major motor tics are returning. Plus he is very nauseated, very irritable, angry, shaky, agitated, sweaty, clammy, etc etc etc.

We thought it was the new med, but then I remembered we should have probably tapered down the clonodine even though the dr didn't mention it. Any opinion? Would the quick cut in clondine be the likely culprit or the new Abilify. Anyone here have personal experience with Abilify??

I plan on calling the neuro tomorrow, but thought I'd ask here for ideas first. I'm a pretty strong believer in the shared experience of our families, so I like to ask around. Of course, I also forgot to only fill a partial rx when starting a new med and now we have a ton of them if he goes off!!

The dr did also keep a moderate dose of Xanax until we find the right dosage of the Abilify. But, I have to say, the stuff is amazing for his vocal tics (screaming, coprolalia, grunting...pretty major stuff)! I've never seen anything work well before this. And the combination with clonodine DRASTICALLY cut the motor 'head banging' tic too.

So, here's my next question...is Xanax ever used as a primary med for TS? I understand that it creates dependence. But lots of people with serious illness/injury use major pain meds that create physical dependence, and it's just acknowledged for them and they go about their life with less pain. Would it be appropriate to use on an ongoing basis?? Would the doctor think I was crazy for asking?? Could dependence on a med be worse than Luke giving himself a concussion or permanently damaging his vision??

Please share your insight.
Cheryl

P.S. If you haven't noticed, I do tend to be longwinded! Thanks for indulging me!