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Old 04-16-2009, 04:28 PM #1
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Aarcyn Aarcyn is offline
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Aarcyn Aarcyn is offline
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Geez, Moi. I am so frustrated with this "reputable" doctor. I am not sure this guy is as good as he thinks he is. Being only 6 months in the area means he wants to build a clientele, looks like he is out one patient for sure.

The doctor that recommended him should know your experience. Not listening is a very bad trait.

It has been a huge pile of "s---" on your plate. But I like the Moi I have met on the net. I like your insight and willingness to share the good, the bad, and the ugly (i.e. diarrhea...).

It is good to see you here. I saw a post you made somewhere else so I went to TS immediately for the update.
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"Thanks for this!" says:
mistiis (04-18-2009), tamiloo (06-06-2009), who moi (04-16-2009)
Old 08-04-2010, 01:00 PM #2
janderson janderson is offline
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janderson janderson is offline
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as long as i can remember i have had ticks in my face and my necks and sometimes with other parts of my body. over the years i have met people who thought i was on drugs due to the ticks or tics. i went to a neuroligist 3 months ago and was dianosist with tourette. i have been taking some medication in the xanax family colonipin at night to see if it helps. i have not noticed any difference. i do not have vocal issues just body, face and neck issues. anyone have this same preoblems. i applied for a new job and i know for a fact because someone overheard them talking that i was not picked due to they thought i was on drugs and i have not been on drugs nor would i ever be. broke my heart!!
Quote:
Originally Posted by who moi View Post
(1 handed typing here. hope post will make sense as i try to condense things )

for years, i've had severe neck tic. i knew 1 day it would wreck havoc on my spine 1 day.

tried a lot of things including pressure.

either way. i think it has caught up w/ me...

besides neck pain, i now feel burning pain on my right hand that i think is nerve/spine related.

it is a burning pain. like it's on fire whenever i would jerk the neck (& only when i jerk the neck do i feel it and i am going through a major waxing of it as of late)

then there is the other constant pain where i have various tics with my hand that includes bending them the other way against my face or body or wall. and hitting/punching tics against objects...

as lara has suggested, i think is a x-over with complusive(OC) & tics combined
(hate the co-morbids,eh? )

as w/ the waxing. i have damaged my knuckles on my index and middle finger. cannot bend my index/middle nor extend them fully. Those pains are constant. 24/7 and has now gotten to the point of keeping me awake even if i take the sleeping pills.

i think i may have developed some arthritis w/ my banging/bending tics of my hand. and have been taking aspirin and back on my glucosamin/msm

hate to cry about it...not really a complainer..

the spine issue bugs me more actually...

i am going to see a doc next week about my spine as my wife and i suspect either spurs and/or pressed spine issues. or may have just ticced the spines heckit outta place...

i am not sure what my outlook is but will accept it as what is and find ways to deal w/ it although my must admit i have been defeating myself the past few days. but i'll come out of it. it is better than losing the ability to walk like when i was 14 yo. w/severe leg tics. (it lasted about a year)

(interestingly enough. besides my vocal and facial tics. most of my tics below the neck are on my right side...hmmmm...)

i guess i am asking to see if anyone has experienced something similar. i know there isn't much to do about it.

i feel it as a progressive issue. the neck tics are not going to stop. will i am not going to let it stop me.

i've been learning to type faster w/ 1 hand.

love to hear inputs.



ps may take me awhile to respond...

came back to add:

trying to describe my neck tic: it's a violent jerk to my right where my rt shoulder would hit my face and i can feel my spine pop
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Old 08-04-2010, 09:44 PM #3
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Hi and welcome

my son and husband have TS and both have found that medication really didnt help much but supplements like magnesium (they use the Natural Calm powder) B vitamins etc and careful diet really do make a big difference

I have a thread here on what has been helpful
http://neurotalk.psychcentral.com/thread1145.html

I am not sure if you are aware that Tourette now falls under the Americans with Disability Act and so it is against the law to be discriminated against because of the TS (like happened with that job interview where they should have been told, no, not drugs, it is TS)

there is lots that can be done to make life with TS better, without having to resort to strong prescriptions

we look forward to getting to know you
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