Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 09-22-2009, 04:08 PM #1
lopi lopi is offline
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lopi lopi is offline
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Default PCS 4 years today gettin worse

I was in a M/C accident 4 years ago today hit my head going 60 mph Have had several therapies done and every test done all show I was normal I can not work or travel my main issue is over simaltion from noise lights movement which makes life very hard I want to get LENS thearphy but my husband thinks it is hocs pocs and wants me to enter a rehab program I don't think that that is the answer but I don't know anymore I am so sick of my meds they are killing me but I don't know af any rehab that treats closed head injuries they all seem to treat TBI and I don't fit in that even if my life is very disabled does anyone know of a rehab center that treat PCS in Washington State
I think my marriage depends on it he is so tried of dealing with this I think he wants out even tho he was driving the MC and right know he is on a M/C trip for 5 days with his friends and having fun while I am suck at home suffering (sorry I had to Vent )
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Hockey (09-22-2009)

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Old 09-22-2009, 05:54 PM #2
Mark in Idaho Mark in Idaho is offline
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Mark in Idaho Mark in Idaho is offline
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I understand your dilema. I suffer from the same symptoms.

Tell us about you self, please. We are here to help. You will at least find people here who understand your symptoms are real.

Have you had a neuro-psychological assessment?

How about QEEG to map your brain functions?

What drugs are you on that are 'killing' you?

Have you had a serious hormone level assessment? Brain injuries can radically effect your hormone systems, especially in women who may already have wild hormone cycles.

What therapies have you had?

Are you doing any nutritional therapy?

What is your living environment like? Is it too chaotic?

These all impact how you recover and how you are able to accommodate your symptoms.

The best neuro services are in the Seattle area. There is a brain injury on-line resource. Check out

http://www.headinjury.com/ Based in Seattle.

http://www.biawa.org/

http://www.tbiwashington.org/


Your family and friends need to read Dr. Glen Johnson's TBI guide at

www.tbiguide.com

Print it out and give a copy to those who need to understand your condition. It is the best overview of your condition.

My best to you.
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Old 09-22-2009, 06:24 PM #3
mhr4
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Dear lopi,

Since you mentioned you wanted to get LENS therapy, I thought I would provide some information to you. First, your husband should know that there has been a lot of research done on neurofeedback for head injuries. In the 1990's, a team of doctors conducted a research study on this and found that 70% of the participants had improvements in symptoms by 78% or greater. Many of them were able to return to work and lead fulfilling lives. And, they were only using traditional neurofeedback on slow processing computers. As you are probably aware, and for the other members reading this, LENS in an advanced form of neurofeedback, that is light years ahead of what they were using when they conducted the research study mentioned above, that introduces a small electromagnetic current into the brain. Within the world of neurofeedback, this is considered the the best way to rehab brain injuries because it works on the brain holistically and, your brain doesn't have to do any work.
A lot of research is also now being conducted on brain diseases/injuries using electromagnetic stimulation with good results. So, if you can afford it, I would highly recommend you try this therapy.

As with everything, this therapy may or may not work for you and you may only see a slight improvement in symptoms. It is also not covered by insurance. However, the nice thing about LENS therapy is that you will know within a couple of sessions whether or not it's going to work. So if you try it and it doesn't work, you'll really only be out two to three sessions worth of money. It also requires fewer sessions, so it is actually more cost effective than traditional neurofeedback.

If you need links to the research articles to show your husband, let me know and I'll pm them to you.
Quote:
Originally Posted by lopi View Post
I was in a M/C accident 4 years ago today hit my head going 60 mph Have had several therapies done and every test done all show I was normal I can not work or travel my main issue is over simaltion from noise lights movement which makes life very hard I want to get LENS thearphy but my husband thinks it is hocs pocs and wants me to enter a rehab program I don't think that that is the answer but I don't know anymore I am so sick of my meds they are killing me but I don't know af any rehab that treats closed head injuries they all seem to treat TBI and I don't fit in that even if my life is very disabled does anyone know of a rehab center that treat PCS in Washington State
I think my marriage depends on it he is so tried of dealing with this I think he wants out even tho he was driving the MC and right know he is on a M/C trip for 5 days with his friends and having fun while I am suck at home suffering (sorry I had to Vent )
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Old 09-22-2009, 10:15 PM #4
concussionkate concussionkate is offline
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Hi Lopi,

I'm glad you found this site. I agree with Mark and mhr4, give us some more information about your current situation.

It's definately good to vent your frustrations here, because everyone gets it.

I'm sorry you are in this situation, and I hope we can help!
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Old 09-26-2009, 02:25 PM #5
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Default Welcome to NT

Hi Lopi,

I’m sorry about your injury, but I’m glad that you found NT. Here you will find people who understand exactly what you’re talking about and can offer sound advice and sympathetic ears. A brain injury can be very isolating and it’s important to reach out.

In addition to joining NT, you might want to check out the Brain Injury Association of Washingtons’ webpage www.biawa.org. In addition to being a great source of information for you and your husband, they have support groups all over your state.

Some other links you might want to check out are:

http://neurotalk.psychcentral.com/sh...ad.php?t=14378

http://neurotalk.psychcentral.com/sh...ad.php?t=14950

http://neurotalk.psychcentral.com/sh...ad.php?t=15571

http://neurotalk.psychcentral.com/sh...ad.php?t=14095

I suffered a serious TBI in a car accident and I know first hand the toll this can take on a marriage. Feel free to PM me if you ever need to vent.

Cheers
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