has anyone experienced, partial seizures about 8 times a day I have noticed the left side of my body trembling uncontrollably it last no more than a minute, my left side feels dull, but has movement , but its like I have to will it more to respond. I think its when my concentration it broken that it happens , perhaps this also accounts for the sleep seizures

its not getting worse and I cope ok with it, but it is another thing that can stop me in mid sentence. I am a no meds kind of guy so don,t want to take anything , but i have noticed stress can bring it on, like meeting new people or situations also a tic in my left wrist some times

its disconcerting but I am trying hard not to focus on it
a problem shared is a problem half ed they say

My right hand/forearm trembles/twitches/spasms almost any time I am at rest. If I'm using it, it feels a little weak, but I can use it. While it's not twitching it feels like there's a lot of tension in it that has to get out. Sometimes I feel like I cannot move it, even though I can. I takes that will to use it and I feel like it's going to give out on me, even if it doesn't.

Sometimes when I can't sleep at night I feel that feeling you are talking about. If I'm lying there for a while, I sometimes feel like my whole body goes numb and tingly and it takes an excessive force for me to lift anything, even if i can.

It's really bizarre and bothers my family when they see it. I have started to get used to it, but the right hand/forearm goes almost all day while I'm not using it.

My MD gave me 1,000 micrograms of B12 to help with that. It helps my fatigue, but the hand hasn't stopped.

Vini

It definately sounds like simple partial seizures.

I understand not wanting medication. But I have to caution you
on one small thing about seizures. Without medication to help
control them.

They can get worse, (meaning change types)

The kind you are experiencing right now are mild forms. They technically,
don't really get noticed unless like you are having so many a day or
everyday. But the complex partial and the 2nd generalized. Are sometimes
not far behind.

So I would definately suggest you talk to your neurologist about this.
Even a very small dosage of a medication might help.

Donna

This is my first post. Fortunately I am no longer in denial about my seizures.
I now know that they are Simple Partial Seizures and they have been happening since the first of the year! I knew that they were probably associated with the Cavernous Angioma that was diagnosed by accident in 2002. I have had periodic MRI's that did not show any changes. I am seeing a Neurologist who is all "main stream medicine". He started me on Keppra which was a complete disaster!!! I had extreme dizziness, loss of balance/coordination, heavy limbs, felt "drunk"/drugged, muscle aches, episodes of extreme need to sleep, then extreme hunger and shaky muscles. Tried for 2 days but couldn't do more. He switched me to Lamictal 25 mg and that small dose has worked well. Only one seizure or none a day. However, I don't feel like myself. Sometimes a little dizziness or loose of balance then later hyperactive and shaky. Is there a good time of day to take this??
During my seizures, I never loose consciousness and I remember everything. The ability to speak is slowed, but most people around me don't even know it is happening. Any advice would be much appreciated. I am wondering what the rest of my life will be like. Can I expect the seizures to get worse?
Thanks for you input

conroe,

You will likely get better responses and information on the seizures forum at http://neurotalk.psychcentral.com/forum11.html

I have epilepsy due to my brain injury...Petit Mals, Simple Partials and Complex Nocturnal. I didn't want to take anti-seizure meds on top of all the other meds I was on until I got educated and learned on my own and from my neuro that even the smallest of seizures can eventually evolve into the more severe Grand Mals which are much more difficult to control.

I can't seperate my epilepsy from my brain injury and don't seek seperate support for just epilepsy anymore. For me, the epilepsy is just another symptom of my brain injury but it may help you to check out the epilepsy site Mark recommended.

I would strongly recommend talking with a /your neuro about having an EEG, but tremors can also be caused by other meds you may be taking. Never self-diagnose, get checked out first then go from there. Wishing you well-being.

Jinx,

My neuro told me to not consider my seizures Epilepsy. Instead they are a trauma induced seizure disorder. Same symptoms, different etiology.

I think he was trying to prevent me from labeling myself and putting my diagnosis into a long term condition.

I eventually overcame my seizures. I have had repeated times when I was symptomatic with seizure free years and even decades between them.

I usually have other PCS symptoms manifest before the seizures manifest. Over time, I get my brain healthy again and the seizures end.

Now, the only time I have any seizure activity is when trying to fall asleep. I will sometimes have seizures just as I start to fall asleep. When this happens, I need to get up and sort of reboot my system so I can go to sleep without the seizures. It usually helps to eat something before trying again to go to sleep.

I am doing this right now. I could tell that my body was going to seize so I got up and sat at the computer while eating a small snack. My body gets a sort of tingling tension feeling. It is like my muscles are a stretched rubber band. When they finally relax and I feel warm, I can go back to bed.

Mark,

I've had that pre-seizure feeling also, even on anti-seizure meds. I have noticed that if I eat a small bowl of cereal (bran flakes, Cheerios...) it does seem to subside.

I rejected anti-seizure meds in the beginning, but then I was walking down a flight of stairs, had a small seizure and fell down the stairs, broke my leg and ankle on the way down

My seizures are small and nearly unrecognizable if one doesn't know what the outward signs are. My daughter was with me and knew immediately what was happening (she knows the "look") but couldn't catch me in time.

I take the meds now

Jinxicat~

Can you describe your seizures? They are almost un noticeable? Mine are that way so I am having a hard time believing they are really there.

Thanks~