Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 07-14-2015, 01:02 AM #1
Mark in Idaho Mark in Idaho is offline
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Did you file an adverse event report with the FDA ? Gerdes claims his system is GRAS, Generally Regarded as Safe. His practitioners are the worst because they promote BST for conditions other than relaxation needs. He gets FDA exempt status by claiming the system is harmless.
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Old 04-28-2013, 10:05 PM #2
sariah.crandall@gma sariah.crandall@gma is offline
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Default Nuerofeedback

I was reading some of the posts on here. I am so sorry that neurofeedback didn't work for some of you. As for me, it was a huge blessing and life changer for me. I was in a car accident and suffered a brain injury. It was a very difficult time as I was trying to function as a "new" person.
Among other things, I suffered from migraines almost everyday, I no longer could be in crowded areas, I became agitated very easily, and I wasn't able to make decisions on my own without a huge anxiety attack. After seeing many doctors with no avail, I started taking more of a natural approach.
I was on high doses of Omega 3's and as long as a was very diligent in taking them, along with a couple other natural supplements I was able to function much better. However, if I missed 1 day, I was a mess and it took me a few days to "stabilize" and feel "normal" again.

I was introduced to EEG about 4 years ago. It took me about 5 months before I was able to do a full session because my brain had been so overworked and sensitive that I could not handle the protocols. We listened to my body and took babysteps starting out with just 5 minutes. We also stopped working on the cognitive side of the brain and focused on the subconscious part of the brain first.

I was only able to handle 5 minutes of that as well. I experienced a lot of the symptoms that have been mentioned on the board also, but they slowly subsided, which I believe was because my brain was becoming "healthier" and creating new pathways. I did a year of vigorous neurofeedback and I can now do simple tasks with no anxiety, I can be in a crowd for a limit time without having a panic attack, and I am on a normal dose of omega 3's for health purposes and not so that I can function and get through the day. It was a lot of hard work and time, but I have my life back for the first time since 2000. The BEST investment I made.
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Old 04-29-2013, 03:15 AM #3
Mark in Idaho Mark in Idaho is offline
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Sariah,

Welcome to NeuroTalk. I am glad to hear you are doing so well.

What exercises did you do with your neurofeedback ?
Was there a 'brand name' to the system or therapy ?

btw, You should ask a moderator to help you change your screen name to something more private. Maybe just Sariah or SariahC

Read the Vitamins thread in the stickies at the top. B vitamins and D3 are also very helpful to your brain. A B-50 Complex, a B-12 (1000 to 2500 mcgs) and D3 is a good start.

My best to you.
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Old 07-04-2013, 04:46 PM #4
tugboat tugboat is offline
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I've been reviewing comments. Have some questions but need to be private. Can some one email me for further discussion?
Thanks for understanding.
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Old 10-31-2013, 03:17 PM #5
Miss Understood Miss Understood is offline
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Default Neurofeedback results

I recently began neurofeedback for PCS. I've had 20 sessions and can already tell there has been improvement. Here are some very important things to know about neurofeedback.

1. Know your practitioner. Experience is critical to effectiveness. The more the better. Confirm that your practitioner is licensed and participates in ongoing education.

2. Who is actually working with you? Many pracitioners hire techs to do the neurofeedback. In other words, you may think you're going to be seeing the named guy, but in fact, the person actually treating you is a hired "tech" working under the "name practitioner." This includes Dr. Walker in Dallas, TX. You MUST ask who will actually be working with you.

2. The most advanced neurofeedback system is called LORETA. This system is able to do things that older, less sophisticated systems are simply incapable of doing. For example, the LORETA system is constantly doing a qEEG during neurofeedback sessions. It evaluates the entire brain, and can work many parts of the brain during every session. It can treat areas of the brain that the older systems cannot, e.g., deeper areas of the brain. (Compare to older systems, which are limited in the number of areas that can be addressed and do not allow the practitioner to concurrently monitor overall progress).

3. Unfortunately, there are only 50 or so LORETA practitioners in the U.S.

4. My suggestion is to see the best practitioner possible, even if it means traveling far away. If you think it's too expensive to travel, then think again. Nothing is more expensive than paying for something that doesn't work! I saw 3 local practitioners before traveling 1400 miles to get what I feel is the best treatment. One of them (a respected man who has been practicing for a very long time - not Dr. Walker) told me that I "have a good brain." The problem is that the old system he uses couldn't detect some of the problems. AND he farms out his work to techs because he's burned out.

5. Neurofeedback is real. It can do things that nothing else can. It is useful for a variety of issues, including depression, anxiety, seizures, migraines, autism, head injuries, autoimmune diseases, ADHD, and more.

Frank Duffy M.D., Professor and Pediatric Neurologist at Harvard Medical School wrote about Neurofeedback: "In my opinion, if any medication had demonstrated such a wide spectrum of efficacy it would be universally accepted and widely used (p.v) It is a field to be taken seriously by all" (Clinical EEG and Neuroscience, January, 2000.

Quote:
Originally Posted by sariah.crandall@gma View Post
I was reading some of the posts on here. I am so sorry that neurofeedback didn't work for some of you. As for me, it was a huge blessing and life changer for me. I was in a car accident and suffered a brain injury. It was a very difficult time as I was trying to function as a "new" person.
Among other things, I suffered from migraines almost everyday, I no longer could be in crowded areas, I became agitated very easily, and I wasn't able to make decisions on my own without a huge anxiety attack. After seeing many doctors with no avail, I started taking more of a natural approach.
I was on high doses of Omega 3's and as long as a was very diligent in taking them, along with a couple other natural supplements I was able to function much better. However, if I missed 1 day, I was a mess and it took me a few days to "stabilize" and feel "normal" again.

I was introduced to EEG about 4 years ago. It took me about 5 months before I was able to do a full session because my brain had been so overworked and sensitive that I could not handle the protocols. We listened to my body and took babysteps starting out with just 5 minutes. We also stopped working on the cognitive side of the brain and focused on the subconscious part of the brain first.

I was only able to handle 5 minutes of that as well. I experienced a lot of the symptoms that have been mentioned on the board also, but they slowly subsided, which I believe was because my brain was becoming "healthier" and creating new pathways. I did a year of vigorous neurofeedback and I can now do simple tasks with no anxiety, I can be in a crowd for a limit time without having a panic attack, and I am on a normal dose of omega 3's for health purposes and not so that I can function and get through the day. It was a lot of hard work and time, but I have my life back for the first time since 2000. The BEST investment I made.
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Old 10-31-2013, 07:20 PM #6
Mark in Idaho Mark in Idaho is offline
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Miss Understood,

Welcome to NeuroTalk. You have found a good place.

You sound like an advertisement for the neurofeedback system you used.

What practitioner do you see ?

You make a lot of interesting comments. I believe there are many techs who do a fabulous job. The practitioner should be setting the targets for the tech to focus on. The qEEG tech who did my qEEG was excellent. He read the waveforms and pointed out some of the areas for the practitioner (MD) to analyze.

So, in my opinion, it is the analyzing of the waveforms to find the areas needing attention that is important. If a tech can help the client achieve the improvements, that is fine with me.

The LORETA system is just an imaging system that can be used for neurofeedback or other diagnostics just like a qEEG.

I am surprised that after 20 sessions you are only starting to see an improvement. Do you see the improvement or is the improvement based on the LORETA readings ? If you see the improvements, what improvements are you seeing ? What are you most problematic symptoms ?

What kind of treatments/efforts are you directed to as you undergo a session ? cognitive focus, relaxation, ????

I hope you improvement continues. Please keep us informed about your progress.

My best to you.
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