NeuroTalk Support Groups

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-   Traumatic Brain Injury and Post Concussion Syndrome (https://www.neurotalk.org/traumatic-brain-injury-and-post-concussion-syndrome/)
-   -   adverse reactions in neurofeedback (https://www.neurotalk.org/traumatic-brain-injury-and-post-concussion-syndrome/107698-adverse-reactions-neurofeedback.html)

Mark in Idaho 02-04-2015 12:56 PM

ada02,

Welcome to NeuroTalk. Sorry to hear of your struggles. As you see, a number of people have had adverse results but I haven't seen anybody comment about successful corrective treatments.

My best to you.

neurodude 05-21-2015 08:09 PM

Yes, I absolutely would be happy to connect with you to discuss and learn of possible solutions to help restore normal CNS function. ** thank you.

BDNF 05-22-2015 07:57 AM

I could not really find much on scholar about this therapy and evidently you don't even need a medical degree to practice it so it's hard for me to trust.

Something related which has been well studied is Transcranial magnetic stimulation, they were trialling it for depression here in Australia and last I heard there was insufficient evidence for its use at least in depression.

*admin edit*

manincar 07-13-2015 07:24 PM

belated reply
 
Quote:

Originally Posted by ada02 (Post 1122080)
Similar experience with Brain State here. Only 1 week has passed since the treatment, but anxiety and insomnia are now out of control. Looking for help/possible actions to restore CNS functions. Please contact me. Thanks

Hi ada02, I rarely check in here so apologize for late reply. My two Brain State intensives were back in 2010. I would have to say that the damaging effects have been virtually permanent. I still suffer from insomnia, depression and anxiety. I had mild symptoms prior to BST work but nothing like this. I made formal complaints to the FDA, NIMH, Florida dept of health, Arizona atty gen's office, and contacted senior members of ISNR. All to little avail. I am sorry to report that we are very much on our own in this matter. I contacted over 40 law firms trying to elicit interest in a damage suit against BST. It was too far out of their scope to undertake and very difficult to prove harm. I hope you have found some relief. I pursue quite alternative measures now to correct the dysfunction caused by BST and their software. I also sent letters to Lee Gerdes and was severely shunned by his legal team, he has a firewall of lawyers around him guarding their holy grail of a product. I know of a law firm that has successfully sued Gerdes in Az, and they keep a watch around the country for new cases, hoping that eventually there could be enough for a class action suit. Contact me if you still seek help, not sure what I can offer, but know that you are not alone. Best wishes

Mark in Idaho 07-14-2015 01:02 AM

Did you file an adverse event report with the FDA ? Gerdes claims his system is GRAS, Generally Regarded as Safe. His practitioners are the worst because they promote BST for conditions other than relaxation needs. He gets FDA exempt status by claiming the system is harmless.

manincar 07-14-2015 09:22 AM

Quote:

Originally Posted by Mark in Idaho (Post 1154944)
Did you file an adverse event report with the FDA ? Gerdes claims his system is GRAS, Generally Regarded as Safe. His practitioners are the worst because they promote BST for conditions other than relaxation needs. He gets FDA exempt status by claiming the system is harmless.

No I did not file an adverse event report with the FDA. The whole ordeal of filing complaints was so cumbersome that I eventually let it go. No one seemed to care or even be concerned. As for BST staff, they seemed to be be controlled to the degree of cult members and coached on deflecting any criticism or complaint. BST HQ colluded with their affiliate member in burying my case and avoiding all legal and ethical responsibilities. Quite amazing for a group claiming to be health advocates. When asked for copies of my medical records under HIPAA laws they simply delayed and delayed until the statute of limitations period (two years) had passed. I intended to file complaint with HIPAA but by that time I was exhausted and quit.

needing help 12-01-2015 12:46 AM

Quote:

Originally Posted by Mark in Idaho (Post 1122134)
ada02,

Welcome to NeuroTalk. Sorry to hear of your struggles. As you see, a number of people have had adverse results but I haven't seen anybody comment about successful corrective treatments.

My best to you.

Please, if someone know some advice or something i can do for a family that feel terrible after 15 session of neurofeedback please tell me. i will be very grateful... People that are in the same situacion please contact with me please. thanks for all, we need to something! sorry about my english jeje

Lara 12-01-2015 01:06 AM

Hello and welcome to the NeuroTalk Support Groups.

Can you tell us more about yourself or your family member who has had the adverse reaction to neurofeedback as that way the members of the forum may be able to offer more support and information.

Mark in Idaho 12-01-2015 03:10 AM

Needing help,

There are many different types of NeuroFeedback. Do you know what kind your brother had ? LENS, ROSHI, or any other the other types.

Why was he treated with NeuroFeedback ? What symptoms was being treated ?


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