Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 03-24-2010, 10:21 PM #1
muddyriverrugby11 muddyriverrugby11 is offline
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muddyriverrugby11 muddyriverrugby11 is offline
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Quote:
Originally Posted by troyjoseph View Post
hey muddy, ive had pcs for two years, and i know what youve been going thru and its a living hell. i was always the loud funny person, up until this **** happened. but at about 25 months into it my symtoms just started to fade, im doing much better now and im totatlly myself again. i still have problems with dizziness and that weird pcs haze on rare occasion, but compared to what it was before, im doing fine.

Things that help you get through it - Distractions, no joke- any kind, friends, girlfreinds, hobbies, working out, stay busy as you can, you can totally lift yourself out of the hazy depression pcs throws at you by staying busy.

How to get better- Generally doctors will say "wait" itll go away in time. this may be true, but theres actions you can take. this is how much i recommend them in order.
1. -EEG training/LENS, very new technology your doctor might not know
2. -Chiropractor of the neck, cervical chiropractor
3. -Optomologist, which is an eye/brain type doctor
4. -Acupuncture, not as far fetched as you may think
5. -Neurologist medications, i personally dont like this one

i have heard many stories of people recovering comletely from each of these treatments. the thing about pcs is that its not fully understood so doctors often dont know what to tell you. But ive researched and talked to people and i KNOW many people who have gotten better as a result of these. and for others like me, its just a matter of time.

Stay strong. You have PCS, PCS does not have you. feel free to email me if you have any questions.
**
TroyJoseph, My man I appreciate it so much.......No one ever wants to admit they are struggling or losing their grip, but at some point you have to ya know.......I need to hear stories and insight on people who have had this or have this S***, because it helps...it really does.

You can workout now then you say bro? At how many months in could you?......Man, I gotta lift n workout haha.....Im losin it. I did light light weightlifting for a while on the amitriptyline and felt ok....(then I tried upping the weight and felt like a hot bag of garbage again)or which I didnt know what was right anymore since I felt so bad before......I recently read the U of Buffalo Sports and Medicine Concussion Clinic studies and website, which is regulated exercise, which would be cardio on a stationary bike, and it regulates the cerebral blood flow back so it says, since you brains oxygen and bloodflow is wacked from the blows to the head.

I spoke with one of the dr's and I'm debating on going to Buffalo over the summer for 3 months of their treatment. I read that many athletes have gone there and have returned to their sports(which I know Im done with rugby or contact sports) or feeling them selves again.......

Another question if you don't mind haha......what do think about drinking? I can drink sometimes and feel good after getting through 3 or 4 beers......or sometimes I feel like hell, slowed down, hazy like you have experienced....and I never had been a pot user, but have heard good things.....I appreciate the post back bro.......Hope all is well and take care
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Old 04-11-2010, 12:09 PM #2
erica21 erica21 is offline
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erica21 erica21 is offline
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Quote:
Originally Posted by muddyriverrugby11 View Post
TroyJoseph, My man I appreciate it so much.......No one ever wants to admit they are struggling or losing their grip, but at some point you have to ya know.......I need to hear stories and insight on people who have had this or have this S***, because it helps...it really does.

You can workout now then you say bro? At how many months in could you?......Man, I gotta lift n workout haha.....Im losin it. I did light light weightlifting for a while on the amitriptyline and felt ok....(then I tried upping the weight and felt like a hot bag of garbage again)or which I didnt know what was right anymore since I felt so bad before......I recently read the U of Buffalo Sports and Medicine Concussion Clinic studies and website, which is regulated exercise, which would be cardio on a stationary bike, and it regulates the cerebral blood flow back so it says, since you brains oxygen and bloodflow is wacked from the blows to the head.

I spoke with one of the dr's and I'm debating on going to Buffalo over the summer for 3 months of their treatment. I read that many athletes have gone there and have returned to their sports(which I know Im done with rugby or contact sports) or feeling them selves again.......

Another question if you don't mind haha......what do think about drinking? I can drink sometimes and feel good after getting through 3 or 4 beers......or sometimes I feel like hell, slowed down, hazy like you have experienced....and I never had been a pot user, but have heard good things.....I appreciate the post back bro.......Hope all is well and take care
Muddyriver- I've seen your posts on other threads and have responded, but I'm not sure you've seen my responses yet? I just joined recently and cannot remember which threads I've posted on! I thought I'd write on this one just in case you check this thread and not the other. I to am considering going to Buffalo over the summer to be treated. I've seen other doctors who have recommended and introduced this study to me and personally, I think its my best shot. I've tried to get in touch with John Leddy, the director there, but have had no luck. I was told he is out of town till tomorrow. Have you been able to get in touch with them? Do you know anything about the procedure done there/more information? I'm not from around the buffalo area- are you?

best,
erica
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Old 04-13-2010, 09:44 PM #3
muddyriverrugby11 muddyriverrugby11 is offline
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muddyriverrugby11 muddyriverrugby11 is offline
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Yo Erica!
Hey I havent seen any of your posts Im sorry! I havent been on here in a while......As for the Buffalo clinic I talked to the lady at the desk and she gave me Leddy's email.......It won't let me post his email on here because I onyl have 5 posts?? But here it's his last name((Leddy)at Buffalo.edu).......I called today and the lady told me to call back Monday when He and this other lady will be back to set up an appointment.

I am not from the Buffalo area so I'd be in the same shoes as you, but it's seems as the one of the few things left that would help.......I know they do gradual cardio exercise and make your own individual workout, which they control your heart rate etc with monitors and breathing machines........

I'm hoping I get in for this summer! Let me know if you get ahold of them!
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Old 03-24-2010, 10:45 PM #4
Mark in Idaho Mark in Idaho is offline
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LENS training is not known by most doctors because it is not approved by the FDA for diagnosing or treating any disease or injury. It has been around since 2006. It has an "exemption" status with the FDA. It can only be promoted as a relaxation device.

There are other true neuro-feedback systems (volitional neuro-feedback requires the patient to act to make the brain behave a desired way). LENS is a non-volitional neuro-therapy system. The patient does nothing but sit while the LENS device does its thing.

This subject has been discussed extensively in prior threads.
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