Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 01-17-2010, 11:10 AM #21
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Default welcome

hi guy

there are two schools of thought on this ?

struggle on and end up worse off, the brain has the ability to destroy adjacent areas of damage, if you stress it out

or struggle on and get through, dose happen

I struggle on ,as you do, and ended up being dismissed ( were is it written the world is fair ) I was a project manager and of my own admission no longer fit for purpose, but its natural, to get up and give it your best huh !

THEY the uninjured will put it , in the depression or cant cut it box , because they cant understand, could you before this happend ?

this is only a decision you can make, there is also the problem of neuron scaring , which may surface later on.

please see link to an old post of mine

http://neurotalk.psychcentral.com/thread59661.html

keep us posted
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Old 01-17-2010, 07:54 PM #22
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Grin Chronic migraines

I have had chronic migraines for years. My neurologist has me on depakote ER, it seems to help some but if I really have some of my breakthrough headaches she also has given me imitrex and midrin to take when I have a headache. Maybe ask your doctor to give you one of those to take as needed when you get a headache but I will warn you they will make you tired.

Tracy
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Old 01-18-2010, 03:11 AM #23
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Hi Hockey,

Nice hearing from your. I'm sorry to hear that you experience absence seizures. I hope that is not the case in my situation. I remember about ten years ago my son had a child in his class that suffered from them. The other children weren't even aware that the absence seizures were happening to their classmate. I have a history of panic disorder that had been in remission (no attacks whatsoever for over five years) before my injury, so unfortunately I'm all too familiar with the depersonalization feelings, they are horrible and I have three episodes since the injury. It was discouraging because I though the panic disorder was behind me.

I believe I've had at least two concussions prior to this one without any PCS that I noticed at least. The first one was in August of 1968 when I was five years old I was struck in the head by a car and hospitalized for concussion and in 1995, I had a wrought iron aquarium stand fall off of a pallet and it landed on the bridge of my nose shattering it in a few places and a hairline fracture to my cheek bone. I was dazed and felt odd for a couple of weeks, but nothing even nearly as bad as how I felt after my latest injury in April 2009. This one really knocked me down big time. I'm still confident that I will awaken one day and all will be normal. I'm an optimist by nature and refuse to concede to this syndrome. But I know the way I've handled it thus far didn't help matters, although my neurologist never told me to take time off to rest and I just trudged along to where I am now. I'll accept some blame, but the neuro should have advised me about resting.

Nice hearing from you again!
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Old 01-18-2010, 07:46 AM #24
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Hi Jemahon,

Don't beat yourself up over the panic attacks. TBI can cause anxiety and panic issues. The idea of me having a panic attack before my accident was unthinkable, but now... God, they're awful.

Again, you need to be candid with your doctors - and yourself.

Cheers
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Old 01-18-2010, 10:02 AM #25
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Default Amitriptyline

Hey Hockey,

You really ought to try Amitriptyline. I have found that it helps my headaches, whereas other headache pills such as non-steroidal anti-inflammatory drugs (NSAIDs) did not help.

If your neurologist doesn't want to try anything, just go to someone else. Ordinary non-specialists such as your primary care doctor can prescribe this. It doesn't have to be a neurologist. You can start at a low dose 10mg nightly and work up. I believe you can go as high as 150 mg nightly.
I take 12.5 mg nightly and it seems to help me.
It also helps you sleep and I don't think that it is adictive.
You should check it out.

CS


Quote:
Originally Posted by Hockey View Post
I hear you. Thanks to a major TBI, I've had a headache that while it varies in intensity, has been with me every single minute for almost three years. I know how it wears you down. Frankly, if I didn't have a small child...

Unfortunately, my neuro thinks that there is nothing that can help this sort of headache, so that's what he gives me. Others here are getting relief from various medications like Topamax and plain old acetaminophen and I'm sure they'll be along to share their experiences. I suggested some of these meds to my neuro - and he just sneered at me. I've got to think you'll have better luck with your doc: the world can't really be big enough to accommodate two a##holes of such enormous proportions.

Like you, I'm on tegretol. How high is your dose? I ask because one of the possible side effects of that drug is HEADACHE!!!!!!

I know it's hard, but hang in there.
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Old 01-18-2010, 10:43 AM #26
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Default hockey

Originally Posted by Hockey
I hear you. Thanks to a major TBI, I've had a headache that while it varies in intensity, has been with me every single minute for almost three years. I know how it wears you down. Frankly, if I didn't have a small child...

Unfortunately, my neuro thinks that there is nothing that can help this sort of headache, so that's what he gives me. Others here are getting relief from various medications like Topamax and plain old acetaminophen and I'm sure they'll be along to share their experiences. I suggested some of these meds to my neuro - and he just sneered at me. I've got to think you'll have better luck with your doc: the world can't really be big enough to accommodate two a##holes of such enormous proportions.

Like you, I'm on tegretol. How high is your dose? I ask because one of the possible side effects of that drug is HEADACHE!!!!!!

I know it's hard, but hang in there.
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hi hock


I have had daily HAs for two years but thankfully they are relieved by laying down ,but very wearing I take strong pain meds if I have to, perhaps you could get referred to a specialist head ache clinic I know there is some in the states


an old friend on another site said this little pearl of wisdom

IF THE DOCTOR DISMISSES YOU !!! DISMISS THE DOCTOR !!!!

but not until you have one with ears
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