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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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#1 | ||
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Junior Member
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I'm having chronic migraines. My neurologist thinks they might be caused by focal seizures.
Anybody else having problems with these, and if so, what medications are you taking? I was on 1200 mg of neurontin / day, but have been taken off of that in favor of tegretol to control the seizures. I've been in chronic pain for the past 3-4 weeks and I really can't take it much longer. |
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#2 | |||
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Magnate
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I hear you. Thanks to a major TBI, I've had a headache that while it varies in intensity, has been with me every single minute for almost three years. I know how it wears you down. Frankly, if I didn't have a small child...
Unfortunately, my neuro thinks that there is nothing that can help this sort of headache, so that's what he gives me. ![]() Like you, I'm on tegretol. How high is your dose? I ask because one of the possible side effects of that drug is HEADACHE!!!!!! I know it's hard, but hang in there. |
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#3 | ||
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Junior Member
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Right now I'm on 400mg a day, but will be jumping up to 600mg / day in a few days. |
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#4 | |||
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Magnate
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Tegretol is given by weight. If you're a big guy, 600mg isn't too out there, but it's climbing. My new dose made my druggest gasp and insist on confirming with the neuro.
![]() You'll have to see how you handle the 600mg. I'd keep a journal to see if your headache increases along with the dose. A common alternative to tegretol is Lyrica. It didn't work for me and the withdrawl was murder, but some people really like it. Have you tried accupuncture for your headaches? It's generally not that effective against PCS headache, but it's worth a try. I can't remember, has a good chiro checked out your neck for contributing issues? Some of the folks here also swear by biofeedback. I'm trying to save my pennies to give that a whirl. Hang in There! |
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#5 | ||
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Junior Member
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Thanks dude, I'll give accupuncture a try. It's weird sometimes the headaches are really bad, like a typical 'headache' but most of the time it's more like 'pressure'... Like my brain is too big for my head, or my head is wrapped really tightly in a towel or something. Just hoping I get back to normal or close to normal.. it's really wrecking my life. |
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#6 | |||
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Magnate
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Yeah, I know the "head won't fit in skull" feeling. There are times when I seriously think my head will explode. I really feel the headache at the temples and at my eyebrows, too.
With the accupuncture, they can put in needles that you can wear for three days at a time. I find it can help if they put them in to lower my stress level. If I keep my blood pressure down, the headache seems less pronounced. |
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#7 | ||
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Junior Member
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My doctor changed my meds from Neurontin to Tegretol, after witnessing me have a focal seizure. Any experience with Teg? I've noticed little to no change, and if anything feel kinda worse (and totally out of it at times). |
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#8 | |||
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Junior Member
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"Thanks for this!" says: | Hockey (01-04-2010) |
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#9 | ||
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Junior Member
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Different strokes for different folks I guess. |
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#10 | |||
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Magnate
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Hey Jay,
My blood pressure becomes as issue when I'm tense or when I exercise too hard. I use accupuncture and relaxation for the stress. (I decided against SSRIs after reading a study out of Toronto's Sunnybrooke Hospital that indicated they could actually make things worse for TBI patients).When I exercise, I have to monitor my heart rate to make sure it stays below a certain number of beats per minute - or my head explodes. How much tegretol are you taking? Cheers |
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Chronic Headaches, No Known Cause | New Member Introductions |