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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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02-01-2010, 12:29 AM | #1 | ||
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Member
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I'm four months into this pcs business and finally found a fantastic neurologist who listens! I'm really happy after having had a super bad experience with another one who told me I am a hypochon. Amazing how nice it is to be taken seriously. Anyhow, this new guy is testing my hormone levels, giving me some shots of prednisone and a painkiller in my head for help with the headaches (mine still hurts a lot, is tender where I was injured) and getting me set up to begin vestibular rehab for the dizziness, nausea, balance and movement issues. He said the vestibular rehab will make me feel worse at first but then will help my brain "rewire" and should help with the symptoms relating to movement I'm having. Has anyone had any experience with this? Any advice? What should I expect?
Second item, a friend recommended a supplement developed to help with brain issues called equilib, info at website with same name as supplement, won't let me post the link. Has anyone heard of this? Does it look useful? I know some of you know a lot about supplements for brain function and healing. It's pretty expensive so I'd love some opinions before I buy it. Thanks! |
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02-01-2010, 05:03 AM | #2 | |||
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Wisest Elder Ever
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This is Centrum Silver (for mature adults) formula, + some other things.
There is nothing harmful in it. But I always have issues with products that are composed of "proprietary ingredients". A general 504mg of a MIXTURE of several things, bothers me alot. There is not amount of each ingredient here listed...so you don't know what you are getting at all..how much of it. Inositol, grapeseed extract, glutamine all have to be taken in at least 500mg-gram size dose EACH. So you are in reality paying alot for very little. In essence there is not enough of the most useful items in this product. You can buy inositol powder on iherb.com 8oz for $13.00 which will last you at least 6months to a year. The typical dose of grapeseed extract starts at 100mg minimum. Bioflavinoids can be had from a fresh orange that you leave some of the white pith from the peel on...when you eat it. Most of the Vit C and other bioflavinoids are in that white pith. I have seen claims that 80% of the Vit C in an orange is THERE. Glutamine--- 8oz of powder = $13.00 at iherb too. http://www.iherb.com/Jarrow-Formulas...owder/186?at=0 I get our generic Centrum Silver at Costco -- 400tabs for $15.00 (over a year's supply). There is nothing magical in Equib... the only magical thing is the PRICE. Products like this are designed to appear "good" , with lots of impressive sounding things. What they don't tell you is that they are basically very weak and rely on your placebo effect capacity. EFAs, (essential fatty acids) are very useful for people with head injuries. And there are NONE in this product.
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"Thanks for this!" says: | vini (02-01-2010) |
02-01-2010, 05:22 PM | #3 | ||
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Member
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Thanks for the info, I knew someone would have a good opinion about the supplement.
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02-01-2010, 11:48 PM | #4 | ||
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Legendary
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I whole heartedly agree with MrsD. The push for autoship is a key indicator of the value of this program. Autoship is a way of sending and charging you for stuff long after you have stopped finding a value in it.
Many autoship programs take an act of Congress to discontinue. The basic ingredients are at such low doses that I would not consider them worth anything. The only ingredient of any consequence is the dl-phenylalanine. This is not something to take without good medical supervision as it is intended to effect norepinephrine levels. If these are out of whack, self-medication is not the correct response. At $1.30 per tablet, this is a very expensive pill. It does not say how many pills are a usual daily dose. I would bet they recommend three or more per day. I just posted my daily regimen under "Waste of's" thread. I get most of this regimen at Costco and only spend about $1.00 per day for the whole 20 some pieces. Costco sells a good Multipack of 7 pieces that I add to with more B's and such. My decades of experience with my regimen shows it to be very effective. My new physician has tweaked it just a bit since I started it at the recommendation of an MD back in the 1980's. The Equilib appears to be intended for depression and anxiety.
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Mark in Idaho "Be still and know that I am God" Psalm 46:10 |
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02-02-2010, 12:36 AM | #5 | ||
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Thanks for weighing on on this Mark, I will check out your previous post on supplements.
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02-02-2010, 05:43 PM | #6 | ||
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Legendary
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Becca
I'm so glad that Mrs. D knew about the supplement. She is very good with this part. I have done the vestibular training. I have a balance disorder along with having had pcs. I have to say it was one of the best things I ever did. It helped me very much. I had good Physical Therapist that helped me with this. I would also suggest that you make sure that if you find its really making things worse that you let the therapist know. It really shouldn't get that much worse in the beginning for long. They start with simple things, to see what you can do and work up to things that are harder for you. I hit a wall at a point and had to stop doing the exercises. But I had to stop because it just wasn't doing me any more good. But the way help it did me was so good that it has made my balance, dizziness, and other things so much better. That I have to say I would do it again. If after you start you have questions please ask. Donna |
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