[StuckinBoston]

It's been awhile and finally have the energy to check back on the board. After my last post back in August I spent several days in the hospital as I was dehyrdrating and they couldn't figure out why - still haven't. Still feel terrible (no energy) and getting on with life is difficult but will keep moving forward.

Have had a bunch of blood work done and I would suggest to everyone that has had a brain injury with lingering effects to have a complete thyroid panel done, along with cortisol levels.

I am on a replacement dose for my T4 and T3...and the dose level has been adjusted many times. Recently it was increased and even though I notice a difference at this level..it isn't much.

I still can't excerise like I use to, but I notice if I take it slow I can get out and do lite running. Still want the doctors to address this but they seem clueless why I can't get my heartrate up with having severe headaches. They also don't seem to understand how important this part of my life was to me. They keep telling me I should be happy that I am even able to walk and talk.

Did have a sleep study done and they said I suffer from post-traumatic hypersomina. They want to put me on some medications but all we have tried have only made me feel worst. My fear is they are going to report me to the DMV and the little that I do drive will be taken away. From what I got from the sleep doctors was that someone with a brain injury can cause the hypocretin/orexin levels to become low. These chemical are your brain's"wake up" call. It all seems to make sense in my case as they do feel that something happened around my pitiutary gland which is next to the hypothalmus which releases the hypocretin.

Started to have some vision issues...words were jumping around on a page but did a couple months of vision theapy and that seems to have helped. I can't read for long periods of time but feel that is getting better.

I hope everyone is doing as well as they can in their point of recovery. This board is a great source of information and I thank all of you who take the time to post problems and how you have dealt with them and even to those who ask the questions...as someone might have the answer that helps everyone.

God Bless and Rock On