Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 02-25-2010, 12:47 PM #11
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Thanks Hockey, I appreciate the encouragement and send it right back at you. When I read this forum it makes me feel fortunate since I don't seem to have PCS as severe as some.
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Old 02-25-2010, 02:07 PM #12
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Default don,t blame yourself

ok bob you went out for beer, thats not illegal you got assaulted probably over nothing, the persons who hit you are at fault, the fact you had been drinking has nothing to do with it unless you hit them first

you asked why the delay in symptoms well you may not have noticed them, we just try to get on with things others may have noticed changes but until your brain recovers to a point you can be unaware,

I won,t go into what happened to me but I too was assaulted and have 3 titanium plates in my head I was walking about at the hospital, but thought I was somewhere I was 3 days before, don,t know how long I was out for ether , I have been diagnosed with brain damage

the fact you have memory loss pre and post injury is significant

this has probably effected you on a few levels , but you are not alone, speak with your family if you can

headway UK have a help line and I can say they helped me, they have some good booklets to help you and your friends and family understand

you will and can get over this, you are young, I am the big 50 this year, try to keep in mind that we all have different levels of injury here,

this is a good safe place to vent talk and learn its also helps with keeping your brain active

keep off the booze, be kind to your self and rest and try to have some fun also
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Old 02-25-2010, 04:44 PM #13
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Bob,

If you can afford it, you need to get into some type of neurorehab program. Google: LENS neurofeedback ( I know they have a few therapists in the UK), vision therapy, vestibular therapy, and possibly HBOT. Check into these and get going on one if you can. I recommend the LENS system over all the others. Cheers.
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Old 02-25-2010, 05:50 PM #14
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Thanks for the support Vini.

mhr4, thank you I will look into that.
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Old 02-25-2010, 06:29 PM #15
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Oh and Vini, I'm sorry to hear your story and hope you're recovering well. I can imagine you've had a grueling time with your injuries but it's refreshing to hear such positivity from you.
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Old 02-25-2010, 09:55 PM #16
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Hi Bob,

I've been thinking a lot about your post.

I was hurt by a drunk driver and have often thought that I could accept all this better if I felt responsible for it. However, after reading about the guilt you feel over your TBI, I realized that reflecting of the circumstances of the injury, whatever they might be, isn't a constructive use of time or energy. We can't undo the past. All we can do is move forward and do the best we can now to aid our recovery.

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Old 02-26-2010, 04:56 AM #17
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Hi Hockey,

The circumstances are complicated so I wont go into much detail, but I had problems surrounding my irresponsible consumption for some time and eventually brought TBI onto myself. It wasn't just a case of I made a mistake one day and had an accident, the issues were known and I was trying to address them but evidently failed. I can tell you that having such problems and it resulting in this is tough psychologically, so the grass isn't much greener over here even though I've accepted responsibility.

I agree with your sentiment, the important thing is I've learnt from the past, am a better person for it and try as much as possible to look forward, not back.
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Old 02-26-2010, 05:09 AM #18
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Default pbob10

We all have a lot of if onlys. If only I had worn my seat belt when I was 21. If only I hadn't played hockey I would not have been hit in the head, I could say something like that for all of my head bangs. I think we all go through a faze of having a few drinks - I probably did the most when I was in my 20s and 30s. Since the head injury that has caused the most symptons and grief I hardly drink at all - instead headache. Red wine is the worst. Be kind to yourself, don't waste your energy on if only.

I believe I am a nicer person post injury than prior- not that it makes life easier though! LOL

Lynlee
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Old 02-26-2010, 11:03 AM #19
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Hi Lucy, thanks for the positive reply. As said it wasn't just an isolated mistake and so I take full responsibility. Nevertheless I have accepted it, changed my lifestyle accordingly and am focused on recovery and the future.

@mhr4 I've been reading up on LENS and it sounds like something worth trying and there is a facility nearby that offers this treatment. One question though, is vestibular therapy what will tackle this brain moving symptom, while LENS would be better for the fogginess and sound sensitivity?
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Old 02-26-2010, 12:59 PM #20
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Bob,

I'm not 100% sure that vestibular therapy would help for the "brain moving" thing or not. I have an appt with my vestibular therapist on Monday, and I'll ask her about that.

As far as the LENS goes, yes, it will help with the brain fog and sound sensitivity. The LENS works to either speed up or slow down the brain, depending on what your EEG looks like. One caution about the LENS. It is a very powerful neurofeedback device and as such, it can cause things to get worse temporarily. This is especially true in the beginning stage when the therapist ascertains your resilience to stimulation. During this process, the LENS may actually make your symptoms worse but don't let this discourage you from continuing treatment. If this happens all it means that your brain is highly unregulated and that you will need to proceed very slowly in your treatment. You are not incurring more damage to your brain. In fact, if someone didn't mind the exacerbation of symptoms, they could train this way and they would heal much faster.
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