Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 02-22-2010, 04:04 PM #1
pbob10 pbob10 is offline
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Join Date: Feb 2010
Posts: 42
10 yr Member
pbob10 pbob10 is offline
Junior Member
 
Join Date: Feb 2010
Posts: 42
10 yr Member
Default Hi I'm Bob, PCS sufferer...

Hi everyone

I believe I came accross this forum several months ago when searching for information regarding concussions and my symptoms, and have just done the same but this time decided to sign up, post and maybe ask some questions...

I've had PCS for a little over a year and it kicked in roughly a month after my concussion. For many months I had the apparently common 'foggy' sensation which was boardering on dizziness at it's worse, but basically felt like my head was fuzzy all day every day. I think it has improved but it's not completely gone. If 100% was the worst the fogginess got, I'd say it is something like 50% now, possibly lower, it's really hard to tell. Excercising makes it worse.

I also had headaches to begin with, but this soon subsided and it's possible they were just due to tension and stress as I get headaches regularly anyway. Also some mild tinnitus which seems to have gone, but noise sensitivity is still an issue. I had a lot of fatigue but that was the first thing to reduce and is now gone as far as I can tell.

Perpahs the most troubling of all the symptoms is the feeling that my brain is moving around whenever I shake my head or make any significant movements. This doesn't seem to be a reported symptom of PCS so I find it quite worrying. It is worse when I am tired and especially bad when I've had a long sleep. As the day progresses it typically reduces a lot. I'm quite a compulsive person so I got into a habit of shaking my head a lot to feel this weird sensation, but I try to avoid that as much as possible for obvious reasons.

I haven't had any obvious problems with vision, personality or memory. I've done online short memory tests and performed well. I do technical work and am able to perform much the same as before.

I went to the doctor a couple of times when all this first surfaced, but very little was done, I had some blood tests for unrelated illnesses and my suggestions of PCS were ignored. I gave up with the doctor but I'm thinking I should go back because of how long this has been going on. I'm in the UK so it's harder to get things moving in terms of seeing specialists and getting therapy, I'm not even sure how available this sort of thing is.

Is is likely that all this will clear up one day? I'd like to think I could do some intense excercising again one day. Also is anyone here from the UK who has any idea if I can be helped on the NHS?

Thanks for reading.
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