Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 03-10-2010, 12:25 PM #21
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With your new doctor, rather than shoot down the suggestions, ask for more information about them.
I think that's advice we can all use!

I'm not a medical doctor, but the Ritalin, like other stimulant medications, works by increasing the production of neurotransmitters, such as dopamine and norepinephrine, in the brain. (Reif, 1998) That can cause ability to slow down and focus. It's pretty controversial. Are you taking the SR (time release) ?

Any new medicine can cause a wide variety of responses by the body for the first few days or week.

Good wishes!
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Old 03-10-2010, 12:37 PM #22
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Don't feel guilty! You've all done the right things in terms of sports activitives and slowly building her back up. School - as long as it is low stress - which it sounds like it is - and it does't make her symptoms worse - I'd have her go. The schedule and routine are good for them.

I also don't think you've done anything to slow down recovery. My daugher is at the 5 month mark and she's still not in school. For the past 3 weeks she's has been working daily with a tutor on only one class and we are slowly building up from this. She tried school for 2 periods last week and did ok. I tried to have her go yesterday, but she didn't make it due to a bad headache. I think we'd have less issues transitioning back into school if her injury hadn't happened 7 weeks into her freshman year. If she were back in 8th grade or if she were a sophomore it would be much easier.

Every situation is different and there is no one size fits all recovery plan. As a parent, we take in all the information we can - from the doctors, internet, other parents, etc - and make the decisions that feel right for our kids. Noone knows them better than we do. I am confident that you would have looked elsewere if you thought your neuro & pyschologist were off base.
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Old 03-10-2010, 07:18 PM #23
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Originally Posted by Mark in Idaho View Post
You are way behind the curve with your vitamin intake. You neuro is way off the curve.

What times do you take these supplements and what dosages? A multi is a start but a poor start.
Mark, here is what I take (supplement wise),
Ginko- 120 mg in the AM
Fish oil- 2400 mg in the Am and PM
Grape seed- 100 mg in the AM
Biotin- 2000 mcg in the AM and PM
Sub-lingual b-12- in the AM
Multi-vitamin- in the AM

I thought I was doing pretty well by taking the supplements that I take. Like I said in earlier post, my internist thinks that I'm just throwing my money away. The physiatrist hasn't said anything about them either way.

I was taking melatonin for sleep along with those but after they put in the baclofen pump-- it was a bit too much. Now with the Ritalin on top of that, I honestly think I could have an army of fire ants on me and I would just sit here half clueless to their arrival.
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Old 03-10-2010, 07:28 PM #24
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What dosage are you one? It could just be too high. It could also not be the right stimulant for you. There are lots of different options out there and not everyone reacts the same even to drugs that are in the same class. Formulations and release mechanisms really have an effect. If Ritalin doesn't work, the adderall family is also another option. (My youngest has ADHD and I have lots of experience with different medications...)
Nancy,
Just read my post again and realized that I didn't put the milligrams. I'm on just 1/2 of a 5 Mg tablet 2 times a day for this first week. Next week I'm supposed to go up to a whole tablet twice a day.

That's a really low dose and I'm like a zombie. Supposedly therapeutic dosage is around 10 Mg twice a day. I really am a light weight when it comes to these things. If I were a drinker-- I would be a cheap drunk.

Maybe it's a stimulant for some people. To me it seems like it does to me what a xanax would do for a lot of people. It's early though, I've only been on it for 2 1/2 days. Hopefully these effects will change. I'm glad it's spring break this week.
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Old 03-10-2010, 11:28 PM #25
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Nancy,
Just read my post again and realized that I didn't put the milligrams. I'm on just 1/2 of a 5 Mg tablet 2 times a day for this first week. Next week I'm supposed to go up to a whole tablet twice a day.

That's a really low dose and I'm like a zombie. Supposedly therapeutic dosage is around 10 Mg twice a day. I really am a light weight when it comes to these things. If I were a drinker-- I would be a cheap drunk.

Maybe it's a stimulant for some people. To me it seems like it does to me what a xanax would do for a lot of people. It's early though, I've only been on it for 2 1/2 days. Hopefully these effects will change. I'm glad it's spring break this week.
That's a really low dose. If you increase to the 5 mg and your still a zombie - then I would question if it's the right medication for you. The stimulants should make it easier to focus but not turn you into a zombie. I wonder if a non stimulant like Strattera would be a better option. It's supposed to help with focus in inattentive type ADD.
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Old 03-14-2010, 12:51 AM #26
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Phyxius,

Your regimen is very low in B vitamins and the other neuro supplements.
I would not rely on the ginkgo for much effect. It has recently been shown to have much less effect that commonly promised. I have been taking it for years, too.

I would suggest you take a B-100 complex. It will have 100 mg of most B's and 100 mcgs of B-12.
I would also add A, C, D, E, niacin, folic acid, magnesium, and be sure the fish oil has a good percent of DHA and EPA. Some are very low percentage. Shoot for at least 50 to 60%.
The multi will probably have some trace elements so you can stay with it.

Regarding B-12. There are two types, some people do not absorb the cheaper version and need the methylated version. Sublingual is intended to help absorption but check it.

The important number will be what a blood test shows. You want to be at about 1000 pg/mL for B-12. (picogram per milliliter), 20 ng/mL for folate. Vitamin D helps with a myriad of other processes besides bones so you need to have good D levels.

Magnesium will help with sleep. It also helps calcium absorption. Most people are magnesium, calcium and D3 deficient.

Meat protein will help maintain some amino acids needs. If you are a vegetarian, you need to be sure to get proper amino acids.


Your post said
<Ginko- 120 mg in the AM
Fish oil- 2400 mg in the Am and PM
Grape seed- 100 mg in the AM
Biotin- 2000 mcg in the AM and PM
Sub-lingual b-12- in the AM
Multi-vitamin- in the AM>
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