[Mark in Idaho]

t97tab,

Your previous thread got a bit off topic so I am starting a new thread for you. Go to Edit/find and type in 'delayed' to help find the part of the article that speaks to delayed symptoms.

Here is a simple comment from Mayo Clinic and other sources.

http://www.mayoclinic.com/health/con...ction=symptoms

http://www.livestrong.com/article/79...ms-concussion/

http://www.traumaticbraininjury.com/...isymptoms.html

http://www.yourlegalguide.com/concussion/

Here is a power point presentation. You can download a free Power Point Viewer from Microsoft. Google 'power point viewer'

http://www.google.com/url?sa=t&sourc...U0OiiGlMg6XsJg


The CME video that I posted on the other thread has a comment by the speaker about the importance of getting the medical record to note the concussion at the earliest exam so that later appearing symptoms can be properly attributed to the concussion. He discusses two important issues.

First, get the record to show the proper IDC-10 code. I think it was 854 or 954. He also suggests the need to have the trauma to the head listed in the record even if there are not immediate symptoms with a note of "probable concussion/854 due to impact to head." many concussion researchers note the problem that arises when impacts to the head are not properly noted in the medical record, regardless of symptoms.

The study of concussion subjects shows that this failure to note concussion or a possibility of concussion early in the medical process can disrupt the availability to concussion care at a later time, especially when it comes to insurance companies denying later concussion treatment/management.

Be sure to look at the footnotes. They often refer to published articles.

My best to you.

[t97tab]

Mark,
Thank you! You are a wealth of information. I live in an area where concussions occur quite frequently due to the popularity of adventure sports and athletics. Unfortunately, I have learned that there are few medical professionals with a depth of knowledge regarding the complexities of concussion. In fact, the statement that "symptoms that occur after 72 hours are not related to the concussion" came from the local neuropsyche who is recognized around here as the leading "expert" on concussions! My son's case has been both complicated and atypical and thus written off by the professionals who are supposed to be there to help.
This has been a frightening and frustrating journey and I truly appreciate the information that you have provided.

[PCSLearner]

t97tab: I'm so sorry you have to go through this with ill-informed health care providers. It's hard enough when your docs have a decent understanding of and compassion for concussion.

Have you had any luck following up with an ENT or eye doc? How is your son's dizzyness and nausea?

My daughter just went to her first vision therapy session. During his diagnosis the doc had her walk a straight line...I was astounded how hard that was for her and how much she has learned to move her body to accomodate for her skewed center line of vision. He then put some goggles on her and she walked the same line perfectly straight with normal posture. She will wear glasses all the time for 12 weeks, plus therapy, and see if that center line can shift back.

Our neuro's opinion of vision therapy was, "It hasn't been studied enough..but it won't hurt her so give it a try."

Another thing to consider...our neuro is convinced that people who are prone to getting migraines anyway really suffer with head injuries. She has a low threshold for migraine now. No way to really know if we are dealing with migraine or concussion symptoms at any given time. Not sure if this is the case for your son, but it is something to consider.

All this is just to encourage you to keep on searching for supportive health care providers and to remind you that even though your son's experience is "atypical" there are lots of us out here fighting this same fight. Embrace every little improvement and hang in there.

[t97tab]

Originally Posted by PCSLearner

t97tab: I'm so sorry you have to go through this with ill-informed health care providers. It's hard enough when your docs have a decent understanding of and compassion for concussion.

Have you had any luck following up with an ENT or eye doc? How is your son's dizzyness and nausea?

My daughter just went to her first vision therapy session. During his diagnosis the doc had her walk a straight line...I was astounded how hard that was for her and how much she has learned to move her body to accomodate for her skewed center line of vision. He then put some goggles on her and she walked the same line perfectly straight with normal posture. She will wear glasses all the time for 12 weeks, plus therapy, and see if that center line can shift back.

Our neuro's opinion of vision therapy was, "It hasn't been studied enough..but it won't hurt her so give it a try."

Another thing to consider...our neuro is convinced that people who are prone to getting migraines anyway really suffer with head injuries. She has a low threshold for migraine now. No way to really know if we are dealing with migraine or concussion symptoms at any given time. Not sure if this is the case for your son, but it is something to consider.

All this is just to encourage you to keep on searching for supportive health care providers and to remind you that even though your son's experience is "atypical" there are lots of us out here fighting this same fight. Embrace every little improvement and hang in there.

Thank you for your advice and encouragement. I wish the best for you and your daughter. I am in the process of seeking out vision therapy. I must say, at this point, that both my son and myself have become a bit gunshy with regards to the medical community!

[PCSLearner]

Gun shy is probably an understatement I researched our guy through NORA (googled it). Then I called a state early intervention service to see if they had any experience with him. They had had positive interactions. When we pulled in the parking lot my daughter said, "Mom..is this guy going to be nice to me?" It broke my heart.

I'm also not afraid to admit that when the doctor said, "I see this a lot..this is what's wrong...I can improve her life" that I broke down crying. More like sobbing. He was very gracious and kind and explained he has been fighting for the medical community to understand vision needs of head injured patients for 30 years. First person in 10 months to offer anything other than drugs or TIME.