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Old 07-21-2010, 01:46 AM #1
poulsp poulsp is offline
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poulsp poulsp is offline
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Question hello

maybe it has to do with the ear ? sounds awful ...
i am new here and am looking for info about LENS
anyone have experience with this therapy they could share with me? i have multiple brain injury/PTSD etc....and am searching for alternatives to the medical / psych community that has pretty much said "oh well" ...
thanks :0)



Quote:
Originally Posted by Phyxius View Post
Was wondering if anyone here has experienced protracted headaches that were better or worse dependent on whether or not you were lying down or sitting up? Worse yet moving around?

I've been in hell for the last 2 weeks and I'm about ready to lose my mind. My head doesn't seem to hurt much when I'm lying down or mostly in a prone position. The problem comes about if I'm up and about for more than 30mins at a time. That's when it feels as though I've been shot with a deer arrow.

I don't know why this has started. I haven't had a spinal tap or anything like that. It started a couple of months ago with ear problems and progressed to this. I think I'll take the ear problems back if givin the choice.

Does this sound like anything you guys have experienced or heard of?
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Old 07-21-2010, 10:21 AM #2
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Phyxius Phyxius is offline
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Quote:
Originally Posted by poulsp View Post
maybe it has to do with the ear ? sounds awful ...
i am new here and am looking for info about LENS
anyone have experience with this therapy they could share with me? i have multiple brain injury/PTSD etc....and am searching for alternatives to the medical / psych community that has pretty much said "oh well" ...
thanks :0)
I understand the feeling of the medical community just saying "oh well".

I don't know about LENS. What is that?

It's possible that you're right with the ear thing. For about 4 months prior to the beginning of the headache, my tinnitus was really troublesome and I had horrible pressure in my left ear that seemed almost like it was full. It just wasn't. When that went away, the headache came. I'm not sure that those things are connected. People with TBI often have wacky things with tinnitus and inner ear-- as well as inner ear. Who knows.

I really do understand your frustration with the medical community. I'm going through some of that myself. It seems that many doctors spend so much time studying while in school that once they get finished, they really want to spend as little time thinking as possible. They have their lab reports sent to them already read with values determined. X-rays have been read by the radiologist with clinical impressions already givin for them-- telling them what to think in advance. They develop a sort of intellectual laziness.

There are some of us patients who do not fit into a docs preformed boxes. We may require more intellectual stimulation and thinking outside of the box to figure out. The intellectually lazy will just say, "ah, it's nothing". It's easier that way. It gets them off of the hook.

There is an old saying in the medical field, "if you hear hoof steps think horses, not zebras." That is true probably 90% of the time, but they can't lose sight of the fact that there are still zebras in existence. I have docs that will not even look to see what it is.

Last edited by Phyxius; 07-22-2010 at 01:31 AM.
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Old 07-21-2010, 09:29 PM #3
Mark in Idaho Mark in Idaho is offline
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Mark in Idaho Mark in Idaho is offline
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poulsp,

There are plenty of posts about LENS. Do a search for LENS.

If you have plenty of money to spend, you may want to try it. If you do not have money to throw away, LENS is probably not a good investment. When Len Ochs, the inventor of LENS is willing to publish the research and research methodology, I may give LENS a better review. So far, he is the only one promoting LENS. It is not FDA approved for treating mTBI, PCS, PTSD, etc.

Some clinicians promote LENS for almost every condition of the nervous system, including fibromyalgia. When a device or therapy is so over promoted, i get skeptical.

You may want to look into volitional neurofeedback. It is a therapy where you are taught to increase some brain wave forms and decrease other wave forms.

LENS, ROSHI, and EMDR are non-volitional neurotherapies. They use external stimuli to try to reprogram your brain.

Hope this helps.

btw, What symptoms are you struggling with that you hope LENS will help?

It is best with PCS, etc to work with each symptoms individually.

My best to you.
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Old 07-23-2010, 01:11 AM #4
poulsp poulsp is offline
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Question oh well brain mapping training

yeah the med community has little to no answers if they even believe or understand half of what is happening. i have been looking at the the brain mapping or brain training idea and will be going to an assessment to look into it further. would really like to know if anyone here has had any experience with this therapy? they are making some fantastic claims that seem too good too be true? anyone???


Quote:
Originally Posted by Phyxius View Post
I understand the feeling of the medical community just saying "oh well".

I don't know about LENS. What is that?

It's possible that you're right with the ear thing. For about 4 months prior to the beginning of the headache, my tinnitus was really troublesome and I had horrible pressure in my left ear that seemed almost like it was full. It just wasn't. When that went away, the headache came. I'm not sure that those things are connected. People with TBI often have wacky things with tinnitus and inner ear-- as well as inner ear. Who knows.

I really do understand your frustration with the medical community. I'm going through some of that myself. It seems that many doctors spend so much time studying while in school that once they get finished, they really want to spend as little time thinking as possible. They have their lab reports sent to them already read with values determined. X-rays have been read by the radiologist with clinical impressions already givin for them-- telling them what to think in advance. They develop a sort of intellectual laziness.

There are some of us patients who do not fit into a docs preformed boxes. We may require more intellectual stimulation and thinking outside of the box to figure out. The intellectually lazy will just say, "ah, it's nothing". It's easier that way. It gets them off of the hook.

There is an old saying in the medical field, "if you hear hoof steps think horses, not zebras." That is true probably 90% of the time, but they can't lose sight of the fact that there are still zebras in existence. I have docs that will not even look to see what it is.
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Old 07-23-2010, 01:33 AM #5
poulsp poulsp is offline
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Join Date: Jul 2010
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poulsp poulsp is offline
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Post lens

lens is another name for brain conditioning program that i am looking into trying. i am looking folks that have tried it or know of others that have heard of it . they hook you up to a computer and introduce sound waves to the damaged areas of the brain to recondition the brain back to working again. sounds wonderful but too easy. makes me skeptical but at this point i guess i am grasping at straws which makes me an easy target for scams.
hope you headache is getting better


Quote:
Originally Posted by Phyxius View Post
I understand the feeling of the medical community just saying "oh well".

I don't know about LENS. What is that?

It's possible that you're right with the ear thing. For about 4 months prior to the beginning of the headache, my tinnitus was really troublesome and I had horrible pressure in my left ear that seemed almost like it was full. It just wasn't. When that went away, the headache came. I'm not sure that those things are connected. People with TBI often have wacky things with tinnitus and inner ear-- as well as inner ear. Who knows.

I really do understand your frustration with the medical community. I'm going through some of that myself. It seems that many doctors spend so much time studying while in school that once they get finished, they really want to spend as little time thinking as possible. They have their lab reports sent to them already read with values determined. X-rays have been read by the radiologist with clinical impressions already givin for them-- telling them what to think in advance. They develop a sort of intellectual laziness.

There are some of us patients who do not fit into a docs preformed boxes. We may require more intellectual stimulation and thinking outside of the box to figure out. The intellectually lazy will just say, "ah, it's nothing". It's easier that way. It gets them off of the hook.

There is an old saying in the medical field, "if you hear hoof steps think horses, not zebras." That is true probably 90% of the time, but they can't lose sight of the fact that there are still zebras in existence. I have docs that will not even look to see what it is.
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