Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 06-10-2012, 09:06 PM #21
lynntlb lynntlb is offline
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Default Just looking for an outlet/an ear...

Hi folks,
I found myself seeking out answers on the internet when I came across this forum. I am two months in following my injury and am feeling super down. Although, I am trying my best to be optimistic it is still hard to adjust to the change in lifestyle. I have also had to miss out on several special events/occasions, another which is coming up this week. Mainly, my closest friends and family live out of town so I use to regularly travel out there to visit on weekends and now I cannot do that anymore. They do visit me, but as they are the ones with small children it is a bit more difficult. I've had to postpone a fitness/training plan. Which is difficult when you end up physically doing the opposite of pushing yourself. I try to reintegrate into the social world, but it has had to be in very small doses. The worst part is that although you are feeling fine, it is only after that you feel the surge of symptoms hit- and then its too late. I optimistically make plans and have had to break them. I feel guilty expressing these feelings when many of you have suffered for years, but this is still my own individual battle, so I mean no disrespect and am sorry for all of your struggles. I guess I am still in the adjustment stage. And it is so frustrating.
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Old 06-11-2012, 08:53 AM #22
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Quote:
Originally Posted by Mark in Idaho View Post
Regarding exercise, I would suggest getting a wrist type blood pressure monitor. You want to keep you BP and pulse at lower than normal exercise levels. Do a search for "buffalo" on this forum. There are plenty of posts about the Buffalo protocol for concussion.

I am such a hypocrite. This evening, I will be watching the Boise State Broncos beat up on the Virginia Tech Hokies. Hope their brains survive.
Thank you for the BP advice; didn't even think of that! I love learning new tidbits from your posts.

And...I love the humor you add, as well! Thank you Mark! (I did literally Laugh Out Loud on that one!)

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March 2007, Oct. 2007, and Jan 2012 concussions sustained in martial arts/police academy training; suffering from PCS symptoms of fatigue/exertion problems,tinnitus,dizziness, overstimulation issues, photophobia. Also suffer from PTSD.

So we do not lose heart. Though our outer nature is wasting away, our inner nature is being renewed every day.
2 Corinthians 4:16
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Old 06-22-2015, 02:35 PM #23
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Default PCS sufferer

Hello, I'm writing because I am a very worried PCS sufferer.

My symptoms have been present for the past 7 months and I am starting to doubt if I will ever recover. I am only 21 years old and live for sport, mainly soccer. I have been browsing the forum and noticed your comment.

If you could get back to me with any news on how your condition has altered since posting in 2010 I'd really appreciate it.

Thank you for taking the time to read this and I sincerely hope you have made a full recovery or are at least happy in your life.

Jake, UK

Quote:
Originally Posted by Wanttobesurfing View Post
Craig,

I understand what you are saying completely. I injured myself snowboarding 1.5 years ago. I too am an avid hockey player. I have not yet fully recovered from my concussion. I am a passionate hockey player and haven't played for the past year and a half. I won't play at all this winter again. I have decided I won't play again until 100% fully healed and maybe even then I won't.

I'm not as young as you (39) but love hockey. Read this carefully "you should not play again until you are 100% better". Have you noticed what's going on in the NHL right now - go look at the injury list of different teams - PCS is dominating. You are nuts to go and play contact hockey let alone non-contact until you are 100% recovered.

I am also a surfer and snowboarder. I have snowboarded a little but just with my kids at relatively slow speeds. I've surfed a bit in conditions where I'm in complete control. I don't want to be a hypocrite as there is some risk with those things but I feel it is not high - unlike hockey.

You must make that decision re: hockey. It is not worth it. When you do recover you need to play non-contact only.

Try to find other things - I work out at the gym, weights, run and am pretty fit. It sucks compared to hockey but it's something. For the first year I was nauseated every single day all day so I understand. As I write this I'm having a bad day and am light headed and nauseated. I am keeping hope one day it will go away - it's not as bad as it was and you need to look at things on a longer horizon - easy to say but hard to do.

I'm not recovered yet and just deal with feeling like crap often during workouts. You have to maintain your self-esteem.

If you want to chat more send me a private message. I completely understand how you feel.
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Old 06-22-2015, 03:29 PM #24
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jake,

Welcome to NeuroTalk. None of the posters on this thread have been around in years. But, you still have plenty of people here to help you.

As an avid soccer player, I bet you have suffered a fair number of concussions and a magnitude more sub-concussive impacts. This makes your situation a challenge.

It is really counter-productive to try to compare individual outcomes. Even the researchers can not find a reason for the disparity in recovery times.

Please tell us about yourself, your symptoms, struggles and what you have been doing to help your brain recover.

My best to you.
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