Hi,

I am so happy that I have no optic nerve damage, eyes look good, just the pain stemming from my neck.

I can relate to that pain of eye movement, it sucks. Plus the dizziness when following objects. But in a weird way, just knowing that there are treatments to help that and that those will be in the future makes me happy.

I just limit my TV watching to things that dont have flashing lights, I avoid driving at night (or have sunglasses), and avoid things that have a lot of movement.

I did my first reflexology appt about a week ago and it was so nice! I never knew how that could change how you feel! But yes, to have a taste of it, and then experience the headaches and pain again gets frustrating.

I try to look at it as: it is possible, and it can happen so that helps reduce the frustration and stress. I am working on letting go of that jump to the negative feeling, and trying to just enjoy the good feeling.

I had a concussion in my teens, and now looking back, I can see how much it changed things, and we never made the association and connection between the concussion and the random odd things that were happening for the years following.

Sorry to hear that you and your family have had to deal with all of this, its hard when it ends up consuming your life. I have tried to adopt the viewpoint of my friend who has MS. She lives her life normally and she sees it as its just something she has, its not something that she is.

That helps me feel normal and its just something I am dealing with, but I am still me.

You are right though, it can be a viscous cycle. Just need to find the path to getting out of it! These types of posts really help though!!!