Hi everyone,

First of all Mark in Idaho: I want to thank you for your many helpful posts and esp for posting the link to the TBI Survival Guide. I don’t know what we would have done without it. Please know you’ve made a positive difference for me.

My accident just happened august 2010. I was mountain biking – with helmet - at high speed downhill on a trail I’d been on many times before. I hit a big boulder in the trail and flew forward over the handlebars. I landed on my head.

After a couple ER and primary care visits I was fortunate to be referred to a neurologist who diagnosed me with PCS and has prescribed lots of medicine.

I’m 40, female, have a history of sleep disorders, and had concussion as a kid. It was amazing to see that primary care dr’s know very little to nothing about PCS.

I’ve been dealing with terrible headaches, unbelievable fatigue, difficulty walking / weakness on the right side of my body (in PT for this), problems with balance, dizziness (has improved) nightmares and disturbed sleep, foggy brain. Sometimes I feel like I have a bobble-head.

I’m very sensitive to noise – I haven’t had a lot of success being in large groups of people / in public. Going to the neurologist is a major undertaking – all the stimulation and long way to walk in that enormous building can make me sick for days. Last time I was down for 8 days afterward.

Ringing in my ears. Some days I wake up with blurred vision. Reading and using the pc for more than an hour or so generally brings on the headaches. Light sensitivity. I spend a lot of time resting and/or sleeping

Has anyone else experienced weakness on one side of the body or difficulty walking?

I'm to see an ENT on Monday about the ringing ears. My expectations are low. I think he is going to tell me to do biofeedback. Has anyone done this?

I found this community a couple months ago and read through many of the posts. I haven’t joined this group before now because I was convinced I would be well 100% and back to work after 8 or 10 weeks. When 3 months since injury passed last weekend I started to realize this is a serious injury.

the emotional side of this has been really challening as well. I go through periods of being tearful. I can be emotionally "up" but i still cry at things i would never have cried about before the accident. Anyone else have this?

I'm glad to have found this group.